FIBROMYALGIA COMMUNITY
FM/CFS/MS?

FM/CFS/MS?

About ten yrs ago I had mono and it lasted quite a while, but I "got over it" eventually. Since then I have always been a lot more tired than most of my peers, lacking energy not drive. I just accepted this as a part of my life. I would take in extra caffeine and sleep longer hours during the night. Many of my friends questioned if I had CFS but I never persued it with a physician. About two years ago, I noticed my hands going numb and becoming week, almost paralyzed, in the cold. I didn't seek treatment because when I was warm again, they were fine. I just thought it was a family history of poor circulation. About six months ago many things started to happen all at once. I started to feel vertigo (constantly), migraines every morning, joint stiffness, my body parts would go numb or tingle, my muscles felt achy all the time, and cognitively I became a mess. I wasn't able to keep working because of this. Since then, I've had mri's, ct scans, labwork, ncv's, brain wave tests, etc. My neurologist can't find anything wrong with me and is sending me to a rheumatologist. I've also started having pain that is on top of the rest of the pain I've already been feeling. It started a few weeks ago in my upper left back and has since started to move around to my rib cage. It's not at my sternum, persay, but my whole shoulder/back/rib area on my left side is in tremendous amounts of pain. I'm self diagnosing myself with fm since there is no sign of ms, but there's nothing I can do for the pain. I take everything over the counter I can find. I've been continuously getting increases on Lyrica since August. I'm seeing a therapist who believes these are physical issues. With all of the seemingly "neurological" symptoms, is it possible I am gradually developing fm? And what can I do for the pain? (I've also tried stretching and massages.) Is this how FM works? It hurts in every position I'm in and when I breath, cough, laugh, or blow my nose. And, I have several tension knots that I had not had before. Why can't I get a diagnosis? Or, even an exam to rule out fm?
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One statistic from Dr. Sarkozi’s research showed 90% of those who are diagnosed with fibromyalgia do not have this condition. A book that goes into more detail:

The Missing Pieces of the Fibromyalgia Puzzle written by Jeff Sarkozi, M.D., F.R.C.P.C.,F.A.C.R., a rheumatologist expert specializing in the diagnosis and treatment of fibromyalgia and chronic widespread musculoskeletal pain.
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Hey Gues.
The Mono - Epstein Barr virus- that you got over- is a latent virus.
It stays in your body for life and can be re-activated anytime when your immune system is under serious stress. Symptoms like migraines, headaches, fever, joint stiffness and muscle aches are consistent with
a re-activation.  It is possible  what symptoms you are experiencing presently, are  from this virus flaring up again.
These symptoms could also be caused by some low grade bacterial infection like mycoplasma.  It might be in your best interest to get some specific blood tests done to screen for other potential pathogens. For this you must deal with an LLMD and the testing through IGENEX Labs.
Anything done outside LLMDs and IGENEX Labs is taking a huge chance
with your health, as you might get undiagnosed or misdiagnosed.
There are far too many incompetent or worse MDs who follow IDSA guidelines and general Labs with too many q.c. issues.
Hope this helps.
Let me know if you have any questions.
Take care.
Niko
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