Well it's Sunday morning and I awake with a lot of pain...like a roller coaster I'm up and down with this thing we call Fibormyalgia.. For the most part I keep moving and working with the pain but sometimes it gets very hard.
How do you manage your pain? Do you keep going? I cannot seem to find a happy media..
Carolyn I was diagnosed with Fibromyalgia in 1992. It's not easy and each day is a new day. Some days are better than others. When I wake up I try to always stick to my routine. Unless the pain is really awful and I can't stay with my routine I keep to a schedule.
And the last 6 months that schedule includes going to the local gym and getting in warm water. I don't take classes, I couldn't manage that. I've had 7 surgeries on my spine in addition to the FM. I walk about 40 minutes in the warm water. I started out doing 5 minutes and now have worked up to 40-50 2-4 times per week. Then I sit in the sauna for 15 minutes. For that hour and half my pain is almost non-existent. My head is clear and I've met some of the nicest ladies, some in their 70's, some my age-48, some much younger. A lot with pain, some with depression. Being in the pool, out talking is such an amazing thing. It helps you get outside of your head and pain. I've also managed to take off 20 pounds doing this. For years my pain has been so bad and I decided I couldn't exercise. But I was going in the wrong direction, my weight went up to 205, I didn't weigh that much when I had my 2 kids and I felt so much worse with my FM pain. I decided I had to work on my health in other ways. So exercise, avoiding foods that make pain worse such as sugar, breads, white potatoes, white rice, drinking 98 ounces or more of water per day, adding iodine, Vitamine D2000, getting B12 shots monthly, taking Grapefruit Seed Extract or Astragalus the moment I start to feel a flare up or a cold coming on has helped me so much.
Still with all of this FM gets the best of me some days, it's something we can't control and that is something I have had to work hard to accept over the years.
Also being on the right medications also helps. Because of the 7 surgeries and this was a hard one for me, I am on oxycontin 40 mg daily, percocet for breakthrough pain, trazadone for sleep-I also use a Cpap machine, Levoxyl(a low dose helps tremendously for FM pain). Having the right pain management medications is essential. A side effect of exercising has been taking less and less percocet for break through pain and less sleep medication. My cholesterol also dropped dramatically.
If you can try to see what the patterns are, what makes your pain worse. You can try and predict if the next day your pain will be worse because of something you did the day prior. Some times looking for patterns helps to manage the pain. Not always though, that's the nature of FM. So go easy on yourself and when the pain is there allow yourself the time to feel it, I pray when it's really bad.
Thank you for your help Annette, I do need to drink more water..I also was told to do this by my doctor...just can't bring myself to doing so. I sure will put forth more effort.
I love soaking in my tub. I agree, to me this is the biggest help. I do that before and after my work day.
I'm sorry to hear you have had to have so many surgeries. That is so much for you to have to endure. I really could not imagine what you have had to go through, I sure am counting my blessings.
I keep moving with FM and I'm a hard worker it just seems that with FM you never know what your going to get. During the months of having this mess I have excepted it and very determined not to let it take me down.
You have been a big help Annette, I too will keep you in my prayers.
Thank you for the "friend request" it's so nice to get! Get yourself a pretty water bottle. Fill it up a few times a day and keep it with you at all times. Please try, it really helps. Somebody explained it to me once, your body is like an engine and keeping it lubricated with water keeps it functioning properly. It helps so much with pain.
Take good care!
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