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FMS and Pain Meds and Living in Pain
I was recently diaganoised with FMS last year (after several years of doctor appointments and tests). The meds I take really don't help. I currently take Cymbaltra 60mg, Gabapentin 300mg (9 pills a day). I had allegic reactions to Lyrica and my doctor won't let me try Savella because of the Lyrica reactions. The only thing the Gabapentin does is take some of the touch pain away. I take Hydrocodine as needed, which is needed constantly--I try not to take more than 2 a day. I still live in pain. How does one learn to cope with this kind of pain. I have a hard time concentrating on anything. I have what my doctor calls fibro fog. I can't drive anymore, I can't work, but SSI doesn't consider me disabled. I have lost everything I have ever worked for and doctors won't disable me. They just increase my meds that don't work and only make me more dysfunctional. Friends and family look at me and say you look okay. They don't understand why I can't do the things I used too. Only my daughter (who is a nurse) and my husband understand the pain I'm in. If I was an animal, they would of put me down a long time ago. So, How Do You live with this? Some days I just feel like chucking it all in. Instead I curl up my bed cry until I force myself to get up and stop feeling sorry for myself. I just keep trying to go forward. What I wouldn't give for one good nights sleep. I take ambian but that does not stop the pain and let me sleep either. Does anyone else feel this way?
Zaji appears to contain lemon juice, vegetable juice and ginger. (I think a V-8 would be more wholesome and probably cost less). Please come back and let us know how you feel this treatment works for you after a month. I'd love to hear the outcome. :-)
Thank you, It helps knowing that others know how how you fee. I think I just needed to vent. I'm going to talk to my doctor about a different treatment. Let me know if your treatment helps.
wow you sound just like me:( im still looking for that magic pill...but you have to be carefull I just got out of detox as after 15 years i found it...but bad for your liver...and tooo costly and you have to take more as you get a tolereance to it...no im not telling you what i took ...its sooo f(&^%$ing hard just hang in there...some day some way something will come up...im gonna try a new thing i have seen...zaji????a plant juice from hawia????sounds promising..as the amytripilin makes me too tired...as for disability..i could have sworn that they now reconize fibro??...hang in as i say im still looking after 15 yeas
I understand. We all would love to have a 'magic pill' and this is exactly what the pharmaceuticals know...it makes is much easier for them to push meds. on those who are sickly. There is no pill...only drugs. Sad thing is the drugs only treat symptoms. Only when the medical arena begins to address the bacterial/viral components will people begin to feel better and heal. One huge issue is politics...the cheapest drug on the market are antibiotics.
Until I found this forum I was doing the same thing everyone else is doing...taking all kinds of drugs trying to find something that would work. Problem: FMS has so many symptoms to treat that they can load us up with medications...one to treat this and one to treat that; another to treat the side-effects from a particular drug. It's horrible.
I've been taking colloid silver for over a month now and it's the best thing i've found. I have more energy, my mind is clear and the pain is less. I plan to add an immune booster to this as well. Docs. do not want to use alternative medications because it isn't profitable for them...sad but true.
Until I found this forum I was doing the same thing everyone else is doing...taking all kinds of drugs trying to find something that would work. Problem: FMS has so many symptoms to treat that they can load us up with medications...one to treat this and one to treat that; another to treat the side-effects from a particular drug. It's horrible.
I've been taking colloid silver for over a month now and it's the best thing i've found. I have more energy, my mind is clear and the pain is less. I plan to add an immune booster to this as well. Docs. do not want to use alternative medications because it isn't profitable for them...sad but true.
Thank you for your kind words and advice. I think I just wanted to vent my anger. I am still having a hard time accepting this conditions and just want a pill or something to make it all go away.
Bless you both and thank you.
Bless you both and thank you.
I believe that everyone of us have felt that way at some point. It is difficult to get disability on FMS alone. It's horrible to say, but if you have other medical conditions you are more likely to be considered disabled.
FMS is a real disease (and I feel confident it will eventually be classified as such; many researchers now call it a disease) that others just do not understand. They can't imagine the pain or fatigue we have. They don't know why we can't do the things we once could do. It's even more difficult when our own family members do not seem to empathize (it's likely due to the stigma surrounding the illness).
Our Health Pages have the latest research being done, as well as treatments that can help. The medications begin given/released for use with FMS only mask the symptoms, not address the cause. More and more research shows that it is caused by underlying bacterial/viral infections. Dr. Garth Nicolson has written about this in his studies. You do have options as far as treatment goes.
You can also google Co-Cure's Good Doctor List to see if there are specialists in the FMS/CFS field in your area. They know how to address the infections and get one started on the road to health.
I hope you find something to help you feel better soon. We do understand what you are going through and will help any way we can.
Take care.
FMS is a real disease (and I feel confident it will eventually be classified as such; many researchers now call it a disease) that others just do not understand. They can't imagine the pain or fatigue we have. They don't know why we can't do the things we once could do. It's even more difficult when our own family members do not seem to empathize (it's likely due to the stigma surrounding the illness).
Our Health Pages have the latest research being done, as well as treatments that can help. The medications begin given/released for use with FMS only mask the symptoms, not address the cause. More and more research shows that it is caused by underlying bacterial/viral infections. Dr. Garth Nicolson has written about this in his studies. You do have options as far as treatment goes.
You can also google Co-Cure's Good Doctor List to see if there are specialists in the FMS/CFS field in your area. They know how to address the infections and get one started on the road to health.
I hope you find something to help you feel better soon. We do understand what you are going through and will help any way we can.
Take care.
That's really tough. I'm actually having a good week so far (crossing fingers) but I think that's only because I limit my activities so much. Once I over do myself I end up in bed for the next few days in severe pain. Pain is a hard issue to handle especially when you feel alone in it. I'm glad you have family that supports you and perhaps you should seek another doctor who understands how Fibro affects your activities of daily life. I am currently waiting to see if I am eligible for disability. Last year I worked as a health care aide and had a very busy and active life. Now I'm just happy when I can get the house clean and make supper. It's hard when people don't understand the pain and symptoms that you have to deal with each and every day. I hope that you will frequent this forum because there are a lot of great people here who understand what your going through.
I hope things get better for you and try and stay as positive as you can, for me that's the key to enduring through the pain.
I hope things get better for you and try and stay as positive as you can, for me that's the key to enduring through the pain.
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