I am 29yrs old and was diagnosed with fibro about 4 yrs ago. Lately, I have been feeling worse than ever. My throat feels like it is swelling shut, I have lost 10 lbs in less than 2 weeks, without trying, I am getting over pluerisy and bronchitis, got about a month ago. The lack of sleep is killing me. Every morning I wake up, I feel like I haven't slept in weeks. I am on ambien and it helps me get to sleep, but not stay asleep. My whole body is just aching all the time now. I have been having slight fevers since I got bronchitis, my memory is kinda foggy, and I am just plain drained. Is anyone else's fibro getting worse and what are you doing for it.
Do you know what your doc based on for dx you with fibro? From what you described it sounds like you might have ME/CFS instead, or in addition to fibro.
A 'stressor' like respiratory infection th at refused to go away can definately make your fibro symtoms (symptoms) get worse, that inculdes pains and aches and foggy brain.. If you're like me, it usally takes me longer than 'normal' person to get over any infection.
Did your doc treat your bronchitis?
As for sleep meds.......unfortunately, there's no magic bullet there and each of us is different when it comes to medicine; meaning, what works for me may not work for you.
I take klonopin 0.25mg at bedtime.
Thank you for the advice. I will talk to my rheumy and PCP. I think he dx me with fibro due to the tender points. I am also being tested for lupus and severe vitamin D defiency. I have been on vit D pills for 2 months now and still no improvement. I am on another 2 months of that. The rheumy has given me ultram, ambien, and provigil. I am also on Zoloft. My insurance stopped covering the provigil. Whatever it is that I have is affecting my work. I am in the military and can barely get through physical fitness because of the pain, and I am having trouble remembering things at work. I am getting into so much trouble. I have been in for 11 yrs and never been reprimanded. I am now getting reprimanded every other week because I have forgot to check on things. As for the bronchitis, I was treated with 2 antibiotics, cough meds, and an inhaler. I am finally feeling better from that, but my other fibro/CFS is acting up. Thanks again for the advice and for listening.
I was dx in 3 years ago but it took 2 years and 12 specialists before being dxd. I have a sister whom was dxd in the mid 90's and years later here I am with it. Drs. don't know where this comes from but believe its from an infection such as bronchitis. My Grandmother has Muscular Dystrophy, 3 aunts, 1 uncle, and 2 cousins have it as well. I've wondered if this is an off-shoot of MD. Anyhow, I awakened one day and I couldn't move and my sister took me to the hospital. 1 year later they find out I am Diabetic, Hypertensive, Anemic, Obstructive Sleep Apnea, and Asthmatic. Later I would Depressed, have Anxiety, Mood Disorder, and am Bipolar, have Irritable Bowel Syndrome and High Triglycerides, needing Kidney protection and Microscopic Colitis. The only thing that has gotten me through the severely extreme pain, fatigued exhaustion, the lonliness of the change that had to occur in my life, all the pills I must take is hope, faith, and love. There is room in my heart for love. I've cried rivers, I've even had a nervous breakdown. Hope for the best in the future because Isaiah 33:24 says "soon, no one will say I am sick." Faith in my Heavenly Father, I lean and put my burdens on him because I can't carry them. Love is powerful, it brings joy to others as well as myself.
You're most welcomed, Elmo!! I've been where you're and know how awful and scary it made me feel.
I tend to have frequent bronchitis, pneumonia, too. It usually lasts and lasts. I'm relieved that your are over this nasty infection. Which Vitamin D are you deficient of?D3?D4? I too am very deficient on D3,D4 at the moment. Wish I could get some sun myself. But, I'm very sensitive to heat, so that's that theory. Chuckles.
Reading about all the medicines you're taking, makes my stomach go 'ouch'. I just read about Ultram will affect Zoloft's effectiveness. You may want to check with your doctor about the interactions between all the medication you're making.
Please make sure you have a log everytime you're reprimented for physical fitness and being forgetful, sick days you had to take, etc.. Reason being, if you ever gets too sick to work, you have these record to back your claim. Just being cautious here.
No thanking me is necessary, ...... we are all in the same predicament. If I can be of more help, do not hesitate to ask. We are here to support each other.
Snootynan, ME is short for 'myalgic encephalomyelitis', most European countries adapt this term. CFS is the name we use in US and few other countries, like Australia also use. It is basically the same syndrome. There's a Name Change movement now calling for ME/CFS, so medical professional won't minimize our condition as simple chronic fatigue.
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