GP told m today Fibro was caused by stress

I went to the doc today complaining of all these aches and pains and such. She said it sounded like I had fibromyalgia. She then said that fibro was triggered by stress. What?

[PlateletGal]

I know that physical stress, such as a car accident, can make fibro worse. However, there is no evidence that fibromyalgia is caused by stress. I would consider asking your physician for the research to back up her claims.

[kitonthemoon]

There's one born every minute..........I meant, doctor with 'psychological' theory on Fibro, ME/CFS!!!   Can  I cuss?  just kidding.

[TXMomOfFaith]

I was thinking, well why do I still hurt even when I am not stressed? This doesn't make sense. I mean I have heard of people getting tense when they are stressed, but getting a whole condition. I don't think so. I do not doubt however that some of my stress over my medical problems I am dealing with have caused me to make myself sick,  but not with fibro.

[PlateletGal]

Its funny because a lot of money was allocated towards research to find a link between stress and CFS. And yet no link could be found ! What they suspect is pathogens... the same probable cause for autoimmune "syndromes" such as Sjogren's Syndrome and Guillian Barre Syndrome.

[Melissa70817]

I do have to wonder.  I believe that I had fibro for much longer than when my pain actually started.  I actually believe that I've had it since the birth of my youngest child.  BUT, my pain started during a VERY stressful period in my life.  The company I was working for was sold, I had very low self esteem at the time as far as how smart I am, the company was known for buying smaller companies and closing them down.  Once they came in it was like a whirlwind, they swooped in and started laying people off.  Nobody including me knew if they were going to have a job.  Being a single parent with children dependent on me I was FREAKING out.  I received no child support so I would have had NO income.  I didn't know what I was going to do about supporting the kids.
  I was jet skiing and we turned, when we turned I felt the tendon on my shoulder slide from one side to the other.  There was no pain at all until about 2 days later, I couldn't lift my arm to bring my hand to my lips.  That was the first of my pain.  I wasn't injured, no surgery, no nothing, just major stress.  My pain never went away, instead it started spreading.  To this day I have not gone a day without pain since my shoulder first started hurting.  
When I had my last child, I had a tubal and the wound from that surgery got infected.  I had a bad pregnancy, very stressful, almost losing my son, went into labor from the time I was 5 1/2 months pregnant until I finally delivered and so on.  I was put on so many meds to stop my labor.  I just wonder if that experience along with the surgery for my tubal and the infection had something to do with it.  Since I had my son I have had chronic vaginal bacterial infections.  I believe this was the first sign of FM.  I guess we will just have to continue guessing as to what the cause might be.  We know what the effects are, don't we......

[droopy56]

Stress is caused by stupid doctors.

[telephofee]

I'm with Droopy56.  I have it, but it took over 2 years and for things to get worse to finally diagnose it.  Other things had to be ruled out.  I fit the criteria and tender points, etc.  I also have IC, which can tie in with it.  Hope you are doing o.k.  Not fun to not feel well.

[telephofee]

Also, rheumotologists are the ones that should be making the diagnosis.  They are the doctors that deal with fibromyalgia.

[PlateletGal]

Not all rheumatologists.. LOL! I know rheumatologists who are very upset that they are getting the fibromyalgia patients because they feel that neurologists should be seeing these patients. Actually... they have a point because fibromyalgia is a neurological / immune disorder.

In my opinion, the best physician is one who keeps up-to-date on the latest research and knows about the alternative methods that the fibro experts are using to treat the condition. Co-cure.org is one of the websites that lists these physicians who are so interested in helping fibro patients.

[PlateletGal]

I forgot to add... my rheumatologist told me that she did not believe in CFS or fibromyalgia. I found out later that their attending physician was telling all of the residents in rheum that these illnesses did not exist.

[benedwards1]

Hello Plat

I was just wondering how your protocol was going and if you see any improvements.  thanks

[PlateletGal]

Its going great... thanks for asking. Since I've been on this "pathogen killing" treatment.. I've made so much progress. I have more energy on my good days, my adrenals are functioning better, my allergies are soooo much better and my intolerance to gluten is GONE. I also rarely have tachycardia anymore and my blood pressure is more stable. I also have a mole on my left food that is disappearing ! Amazing... considering that I've had it there since I was a child. From what I'm reading and understanding... this treatment should be lowering my risk for cancer as well. This is what healing is... not taking drugs to help with my symptoms. Not that I have anything against it, but I like for people to know that they always have options and it is their job to find the information, review it and make an informed decision about their health and their body.

The only frustrating thing with this protocol is that it makes you feel somewhat worse and it can take years. Its removing years worth of pathogens that are responsible for my immune dysfunction and symptoms.

[tonyad]

I agree with you 100%
That's where most of my stress comes from!

~Tonya

[kitonthemoon]

Are you refering to Marshal Protocol? just curious.

[PlateletGal]

Yes ! I originally was on the MP, but recently switched because I found out about Dr. David Jernigan. He is successfully treating lyme disease without antibiotics. But he's also successfully treating chronic illnesses, including autoimmune conditions. His formulas are all natural and kill the mycoplasmas and other pathogens in CFS, FM and other patients. So basically.... it does the same thing as the MP (still having herxing issues too), but without the low-dose antibotics.

I believe that I'm also lowering my risk for cancer because of this treatment.

[kitonthemoon]

I shall look into your doc's site......and bring his protocol to my doc.   Thanks so, so much for the info.

[PlateletGal]

For those of you who wish to actually see CFS patients (and fibro & autoimmune diseases) worst nightmare... L-form bacteria:

http://bacteriality.com/2008/05/07/mpintro/

Highly recommended.

[Shanannagins]

I doubt it is caused by stress but it has been my experience that stress aggrivates my symptoms.

[BlackGold]

Nothing is cause by stress, stress may make it worse.

It seems like I got CFIDS when I was exposed to HHV 6  & CMV at the same time.

None of those virus seems to harm 90% of the population just the last 10% and I am one of those last 10%.


Why Me?  Why has god punished me ? I can't take it any more. I have pain , coginitve problem and much more... I am sick and tired of everything.

[PlateletGal]

I sometimes wonder if we are genetically predispositioned ? Of course another thought is that these mycoplasmas are altering our DNA.

What helps me a great deal is not concentrating on how I feel, but concentrating on what I can do to get better. I am currently on a treatment that is helping me and I think that healing is the best gift there is. The day I quit fighting.. will not be a good day. But I have high hopes that a year from now, I will be so much better. In fact, I already am 50% better than where I was a couple of years ago. Don't give up... we can beat this !

Ten discoveries about the biology of CFS (Chronic Fatigue Syndrome)... by Dr. Anthony Komaroff --- professor of medicine at Harvard Medical School, senior physician at Brigham and Women's Hospital in Boston and the editor-in-chief of Harvard Health Publications.

LINK: http://www.cfids.org/about/10-discoveries.pdf?tr=y&auid=3723150

Also see:

"Seven genetic types of ME found" --- LINK: http://news.bbc.co.uk/2/hi/health/7378440.stm

[BlackGold]

I have taken 3 years ago, I was on doxycline for over 1 month. Then again 2 months ago on doxycline for 1 month again. Should that not of have taken care of it.

Lets just put it, I made very bad mistake in life, but I don't deserve these bacteria and virus.

Why me, I am only 24.

Most people are old enough . At age of 24, do you know how it feels to not be able to comprehend things quick, and learn new things.

[BlackGold]

The link http://www.cfids.org/about/10-discoveries.pdf?tr=y&auid=3723150
...OMG, all of that is so true.

I have elevated NK Cells, B - Cell, High Lymocyte.

for last 4 years, my lympocytes and NK cells are always elevated.

HHV 6 I Have & CMV.

But isn't HHV 6 normal ? Most people have them ?

[PlateletGal]

This may answer your question :

We have yet another viral discovery linked to chronic fatigue syndrome (CFS or ME/CFS) - and it's a protein in a particular strain of human herpesvirus-6 (HHV-6), a virus long suspected of playing a role in many cases of ME/CFS.

Japanese researcher Kazuhiro Kondo, MD, PhD, has spent the last 2 decades trying to identify a "latent protein" responsible for chronic nervous system disease and associated mood disorders, and now he believes he's done it. (Latent means not currently active or not apparent.)

Dr. Kondo says his team found this strain of HHV-6 in people with ME/CFS, but not in healthy people. This virus travels from cell to cell, taking up residence in the brain and other tissues. Because it doesn't release particles in the blood, standard blood tests don't pick it up.

Adding support to Dr. Kondo's claim is a Stanford University study showing that the antiviral drug Valcyte (valgancyclovir) (known to be effective against HHV-6) improved cognitive function in people with ME/CFS.

link to entire article:

http://chronicfatigue.about.com/b/2008/06/29/95.htm


Please check your inbox... I'm going to send you another link to various treatments, including the one I'm doing.

[pinklady42]

HI THERE HOW ARE U CAN U SEND IT TO MY INBOX AS WELL I REALLY NEED TO CHECK THIS OUT ALSO THANKS LISA

[BlackGold]

Hey,

Thanks for the great support. Are sharp pain in the head and headaches are part of CFIDS. My antibodies did detect a HHV 6 in .

I am confused, can I pass this entire CFIDS from one person to another person. If not, than I can surely pass the other pathogens correct ?

It seems like CFIDS comes quick if I run or work out heavy.

Thanks

What abnormal blood report many of you had ?