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Hello I'm new around here!
Hi all I've just joined your community tonight. I wondered if anyone has the same problem that I have with a burning touch. Whenever (usually later in the day) my cocktail of pills start to run out and on a night as I get really tired, someone touches me they really burn me yet it I touch them they feel normal. I suffer with hot feel on a night normally and have to put an ice pack in the bottom of the bed (much to my hubby's delight) but this is getting a bit mad now. My gran suffered from reynauds and I am wondering if I have a bit of that but wanted to know if was just me. I would be grateful of any feed back. Thanks x
I am so glad to find this resource! This disease can be like 1000 miles of bad road some days - lonely and rough! Knowing that others are out there make it easier to deal with. My poor husband must get weary of caring and hearing about it. Thanks again, Mishinalaska
Amitriptyline, which used to be Elavil (generic is only used now) works on nerve burning and pain also. The problem I had was grogginess. I know other people who take it, like my Mom, who has no problem with grogginess, it helps with sleep, and she takes a higher dose.
I was down to 5mg. and people start at 25mg. usually. I just couldn't tolerate it.
BUT, I had no headaches, FM was cut in half at a low dose 5mg. and I slept well.
I'm off it 2 days now and I am trying to see the difference off vs. on it. If life is better which way?
I was down to 5mg. and people start at 25mg. usually. I just couldn't tolerate it.
BUT, I had no headaches, FM was cut in half at a low dose 5mg. and I slept well.
I'm off it 2 days now and I am trying to see the difference off vs. on it. If life is better which way?
The thing that works good for me and the burning nerve pain is Lyrica,,my INS wont pay for it so my doc is at the moment trying to convince them I need it,,if that dont work Im gonna call the makers and sometimes they will help with the cost or give it free,,,have u tried or take Lyrica
When I was first diagnosed with FM, I had the burning on my lower back. Wearing pants or anything was sooo painful. It was even hard to take a hot shower. Once I was put on the antidepressants and pain meds it went away. I'm lucky that it hasn't come back. I think the last episode I had with the burning skin was maybe 3 years ago. Good luck girl!
For me it is my scalp that burns to the point where when I cannot take it anymore I run to the sink and put my head under cold running water!!!
If I'm in the sun, even with sunscreen on I get, later the burning feeling on my arms.
Quite often I have it on my neck under my ears and jaw.
FM is a neurological illness, therefore this burning comes from irritation of the nerve endings.
Recently I had a reaction to a medication. I got mad at someone and as the saying goes "the heat rose" it did. My whole body from my waist to my cheeks, became hot as if I was taking muffins out of the oven and left my upper torso in there. The skin became red and raised.
My Dr. explained it was inflammed nerve endings. It was what we all experience just x's 10. thank goodness it lasted only 1.5 hours.
If I'm in the sun, even with sunscreen on I get, later the burning feeling on my arms.
Quite often I have it on my neck under my ears and jaw.
FM is a neurological illness, therefore this burning comes from irritation of the nerve endings.
Recently I had a reaction to a medication. I got mad at someone and as the saying goes "the heat rose" it did. My whole body from my waist to my cheeks, became hot as if I was taking muffins out of the oven and left my upper torso in there. The skin became red and raised.
My Dr. explained it was inflammed nerve endings. It was what we all experience just x's 10. thank goodness it lasted only 1.5 hours.
Hi and welcome,,,I also have the burn me when touched syndrome from fibro,,,,my hubby will barely rub his hand against my arm and its like stinging fire,,I also get the burning cheeks and at night am on fire to where I have to keep moving my legs on areas of the sheet that are cool and cant stand anyone being real close to me in bed cause I can feel there body heat and it drives my skin crazy. Im going to do some research on this and ask my doc in the morning about it. Have a wonderful night and morning,,hope to hear back from ya
Hi, Welcome!!!
I, too, have those strange burning skin.........I still scream when my skin hurts and scared the heck out of my hubby when he touches me.
As I read an article lately, all autoimmune diseases share many similiar symptoms. I have ME/CFS......I'm not familiar with Reynauds. Try and do a research by just type in 'reynauds symptoms'....and 'autoimmune symptoms'......it may shed a light for you.
Lots best wishes
Kit
I, too, have those strange burning skin.........I still scream when my skin hurts and scared the heck out of my hubby when he touches me.
As I read an article lately, all autoimmune diseases share many similiar symptoms. I have ME/CFS......I'm not familiar with Reynauds. Try and do a research by just type in 'reynauds symptoms'....and 'autoimmune symptoms'......it may shed a light for you.
Lots best wishes
Kit
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