hi honesty im sorry to hear that im onZYDOL50MGandAMITRIPTYLINE 50MG although sometimes im out of it so i try to hold out aslong asi can without the AMIT,i hate beingunder the tablets but as you now you have good days and bad hope you feel a lttle better s..
Hi Susie, I kind of gave up with trying to do anything with my fibro, am on painkillers for when i need it but most of the time it was brute force and ignorance on my part 'i will not let it beat me etc' although now i'm looking into whether it was MS all along but i'm not holding out any hope of finding someone to admit they were wrong!
What pain killers have they put you on?
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hi i was diagnosed with Fibro after about ten years of continuing pain ,also with the process of elimination. i often felt like screaming ,has i thought they didnt believe me for atime i just put up with it till i went back and finally got adoc that listened he sent me for the tender points test and i think it was 12 i am on pain killers and do alot of stretching and water excercise (dont work) so if you have any ideas i would be gratful
Thanks all! I appreciate this. I don't think I had the proper testing. I had a questioniarre test. It all sucked. I just get sick of being passed around and plus my MRI's show something on it and they are all like that is nothing...well it is something to me! It shows something right where I have been telling them I have a great deal of pain! Thanks again.
Thank you Patsy, you've just made my day, I was diagnosed with Fibro when i was 15, they didn't do any testing, it was more a process of elimination, i've now been diagnosed with MS which when i Q'd was it MS all along they looked at me like i had sprouted another head! My older sister has just been diagnosed with Fibro too but she didn't get these tender point tests or anything!
Right... thats me off to kick up a stink! :o)
Thanks again!!
There is diagnostic criteria that has to be met to be diagnosed with FMS. One criteria is 11 out of 18 tenderpoints. Unfortunately people often get this diagnosis for the reasons you stated above, without proper testing. The testing should be done by a doctor who knows and treats fibro. I was diagnosed by more than one doctor with fibro. None of the doctors ever checked for the tender points. I also have Chiari 1 but not bad enough for surgery.