Aa
Aa
A
A
A
Close
2015036 tn?1332997788

I have questions about fibromyalgia

Hi,

Back in 2006 I was dx'd with fibromyalgia.  Since then, I have also been diagnosed with multiple sclerosis.- so I thought that the fibro diagnosis was incorrect.  I guess that was silly of me, because having one type of disorder doesn't make us immune to having another disorder.  

I don't have the pain usually associated with fibromyalgia, and from a look at my MRI's-I have only a mild case of MS.  That said, it seems like my doctors are associated all my symptoms to MS, and I just don't think it can be that simple...  

I have a few symptoms I haven't reported to my doctor yet, because I am having a hard time with describing the problems accurately.  (Bear with me, while I try.)

I choke on my food a lot.  It's very frequent...  

I have a hard time holding my head up for long periods of time (say the length of football game).

My jaws get exhausted during meals- so that I can't finish chewing.  (I wish this would translate into weight loss!)

I have a hard time lifting both my arms.  

All of these things are very uncomfortable, and sometimes they are scary.  I know all of these can be caused my MS, and I think they can also be caused my myasthenia gravis.  What I want to know is this:  Is it possible these symptoms are caused by fibromaylgia?   I have tried researching this myself- and I can't find anything.  Then I remembered that the REAL fibromyalgia experts were right here.  Please help, what do you think?

Thanks,
Tammy
Best Answer
Avatar universal
MEDICAL PROFESSIONAL
Hello and hope you are doing well.

Myasthenia gravis causes weakness of the voluntary (skeletal) muscles. Voluntary muscles are those that are under your control. If it affects the chest wall muscles it can cause breathing difficulty. And yes, a neurologist can help you with this problem.

Hope this helped and do keep us posted.
7 Responses
Sort by: Helpful Oldest Newest
2015036 tn?1332997788
I saw my neurologist yesterday.  He does think I may have myasthenia gravis, in addition to multiple sclerosis.  It was too late in the day to get any further testing done.  I have to get more testing done.  We (my neurologist included) are hoping that the problems are just axon damage- but it doesn't look good.

Thank you for alerting me to the possibility. I didn't mention MG at all, I just described the problem, and he immediately started the in office testing (gag reflex, etc.)  Now I wait for additional testing.

Thank you for your help.
Tammy
Helpful - 0
2015036 tn?1332997788
Thank you for your help.  I will have this looked into soon.

Tammy
Helpful - 0
2015036 tn?1332997788
Someone else has mentioned this to me as well...  I done a little research, but I am still confused.  I will see my neurologist at the end of next week, and I will mention it all to him.

Another thing I forgot to mention is that I sometimes wake up choking/painfully unable to breath, on what seems to be saliva.  Does this also sound like Myasthenia Gravis?

I appreciate the answer  you already gave me.  I apologize for bothering you, I just want to be sure I take this to the appropriate specialist. (Is my neurologist the right one?)

Thank you so very much for your help!
Sincerely,
Tammy A.
Helpful - 0
Avatar universal
MEDICAL PROFESSIONAL
Hello and hope you are doing well.

Your symptoms could be due to Myasthenia gravis, which is an autoimmune neuromuscular disease leading to fluctuating muscle weakness and fatigability. There is an Edrophonium test, which helps to diagnose Myasthenia gravis. Besides this there are blood tests to detect antibodies and electrodiagnostic studies. These tests will help confirm/rule out a diagnosis of Myasthenia gravis. Please discuss this with your doctor am sure he will provide further assistance.

Hope this helped and do keep us posted.
Helpful - 0
2015036 tn?1332997788
Any ideas are welcome...  
Helpful - 0
2015036 tn?1332997788
I forgot to mention: at religious meetings, we sing... My jaws get sore during the song, and my voice gets hoarse, then goes away, during the song.
Helpful - 0
Have an Answer?

You are reading content posted in the Fibromyalgia Community

Didn't find the answer you were looking for?
Ask a question
Popular Resources
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.