Aa
IBS problems anyone?
Hello All
Been a while since i have been on here, i have had IBS ( though never been tested for it just diagnosed from symptoms i had ) for 20 years and have always controlled it with diet it has always been pain before a bowel movement then once i have gone it was ok until the next time also when i needed to go i had to go quite quickly after getting the pain but it was always hard or normal never diarrhea then when i got diagnosed with fibromyalgia and myofacial pain syndrome it got worst due to the lack of exercise and the medication and when going on fentanal 100 two yrs ago and baclofen the consipation got worst but would go at the worst in 4 days with movical or senna max, but the last 4 mths i started having bouts of diarrhea and vomiting at first i thought i had a bug but it happened every month and then the week before christmas it happened again but this time the pain in my tummy was different it was higher around my rib area each side of my belly button and above it my tummy gurgled and made loud sounds the diarrhea smelt so bad and the gas did just like if it was a stomach virus i was fatiuged and had a headache and feel awful for 4 days then it passes my tummy got better then there was a 2 week break and it happened again i did not vomit this time 5 days of on off diarrhea awful pain same symptoms then i got better then to happen a week later this time lasting for 10 days on and off so i went to the dr she just thought it was IBS but said a sample would help see if it was something else but here is the problem it has been 7 days since my last diarrhea motion and i have not had a bowel movement so 2 days ago i started taking my usual the movical 5 sachets over the 2 days which usuualy work after 1 sachet and so i took a senna nothing, i have the same pain as if i am going to have a diarrhea bout and the pain has not gone away from the 10 day bout lessoned at times but built up again my tummy turns over i feel sick and full and my gas is bad, i dont know if i should be worried and would not be if it was a mild tummy ache but my left side is bad along with stabbing pains and a awful deep pain in my stomach my flank area hurts either side though that could be the MPS that i have,i am just wondering if something is wrong and cause i am on opiates that slow the colon down the something wrong is being hidden does that make sense, can IBS be this painful and disabling it never was before and if it is IBS thats something else i will have to adjust and live with along with the fibro and MPS and also have raynards diagnosed 6 yrs ago before i had the rest, i am a mum of 3 girls and its hard enough being ill without this too. Any advise, taking aloe vera juice and probiotic.
Thanks
Been a while since i have been on here, i have had IBS ( though never been tested for it just diagnosed from symptoms i had ) for 20 years and have always controlled it with diet it has always been pain before a bowel movement then once i have gone it was ok until the next time also when i needed to go i had to go quite quickly after getting the pain but it was always hard or normal never diarrhea then when i got diagnosed with fibromyalgia and myofacial pain syndrome it got worst due to the lack of exercise and the medication and when going on fentanal 100 two yrs ago and baclofen the consipation got worst but would go at the worst in 4 days with movical or senna max, but the last 4 mths i started having bouts of diarrhea and vomiting at first i thought i had a bug but it happened every month and then the week before christmas it happened again but this time the pain in my tummy was different it was higher around my rib area each side of my belly button and above it my tummy gurgled and made loud sounds the diarrhea smelt so bad and the gas did just like if it was a stomach virus i was fatiuged and had a headache and feel awful for 4 days then it passes my tummy got better then there was a 2 week break and it happened again i did not vomit this time 5 days of on off diarrhea awful pain same symptoms then i got better then to happen a week later this time lasting for 10 days on and off so i went to the dr she just thought it was IBS but said a sample would help see if it was something else but here is the problem it has been 7 days since my last diarrhea motion and i have not had a bowel movement so 2 days ago i started taking my usual the movical 5 sachets over the 2 days which usuualy work after 1 sachet and so i took a senna nothing, i have the same pain as if i am going to have a diarrhea bout and the pain has not gone away from the 10 day bout lessoned at times but built up again my tummy turns over i feel sick and full and my gas is bad, i dont know if i should be worried and would not be if it was a mild tummy ache but my left side is bad along with stabbing pains and a awful deep pain in my stomach my flank area hurts either side though that could be the MPS that i have,i am just wondering if something is wrong and cause i am on opiates that slow the colon down the something wrong is being hidden does that make sense, can IBS be this painful and disabling it never was before and if it is IBS thats something else i will have to adjust and live with along with the fibro and MPS and also have raynards diagnosed 6 yrs ago before i had the rest, i am a mum of 3 girls and its hard enough being ill without this too. Any advise, taking aloe vera juice and probiotic.
Thanks
Best Answer
The Bentyl is sedating. This is why, if I can help it, I take it at night. Bentyl is an antispasmodic, but it is not a muscle relaxant. It is really just for the colon. The usual dosage I've been on is 20 mg every 8 hours. The dietary changes do help make it possible to take it only PRN (as needed) for me. I haven't resolved all the constipation, but I at least got the pain and spasming to settle down most of the time. Bentyl is used for both kinds of IBS, so it should help with the IBS-D part of the problem, too. I generaly don't get that kind of IBS, but I do have bad bouts with the IBS-C, as I mentioned.
Also, it won't happen right away or anything, but changing the diet should help with the gas. The idea is to eat the foods that are benign to you, as each of us is different. I am certain that some of the foods I eat would make your problems worse. I know many of the foods that other people bother me, and at least now I know why. It really is a very individual thing.
Also, it won't happen right away or anything, but changing the diet should help with the gas. The idea is to eat the foods that are benign to you, as each of us is different. I am certain that some of the foods I eat would make your problems worse. I know many of the foods that other people bother me, and at least now I know why. It really is a very individual thing.
Hi
Thanks for your reply, i am frightened to go out now till this tummy business dies down not that i go out often with my fibro and MPS, before i had the bouts of diarrhea i used to get pain before a bowel movement nothing too bad but once i went i was fine now even if its not diarrhea i get radom pains and i have the worst gas problem its embarrassing enough at home never mind out and i never know when it is going to come.
Thanks for your reply, i am frightened to go out now till this tummy business dies down not that i go out often with my fibro and MPS, before i had the bouts of diarrhea i used to get pain before a bowel movement nothing too bad but once i went i was fine now even if its not diarrhea i get radom pains and i have the worst gas problem its embarrassing enough at home never mind out and i never know when it is going to come.
Hi,
Thank you so much for your post, it was full of such good advise, i will google and see if i can get the bentyl here in the UK and then see if my dr will give it too be, is the bentyl like a muscle relaxant? as i am already on baclofen for my MPS and fibro so dont want to take more of the same or is it just for my tummy? and can i just take it when i need it like i take extra of my muscle relaxants and it be an instant relief or is it one of those drugs that has to be taken on a regular basis to be effective?
I am finding the aloe vera juice of help and i am going to buy a probiotic at the health store but still researching if i should buy a probiotic or a prebiotic do you know the difference between them??
for 20 yrs i have had IBS but consipation why it has changed now and swinging from consipation to bouts of diarrhea i dont know and why i am in pain alot of the time with my tummy specially when i drink orange juice which i have always loved but cant drink more then one glass or i get a bad tummy ache get pains and have bad gas the gas i get is awful and if i take a senna or other stuff to help me go the gas is ten times worst and very very embarrassing i am sure there is something wrong in my gut.
Thank you for your advise and thanks in advance for answering any of the questions you might know.
Thank you so much for your post, it was full of such good advise, i will google and see if i can get the bentyl here in the UK and then see if my dr will give it too be, is the bentyl like a muscle relaxant? as i am already on baclofen for my MPS and fibro so dont want to take more of the same or is it just for my tummy? and can i just take it when i need it like i take extra of my muscle relaxants and it be an instant relief or is it one of those drugs that has to be taken on a regular basis to be effective?
I am finding the aloe vera juice of help and i am going to buy a probiotic at the health store but still researching if i should buy a probiotic or a prebiotic do you know the difference between them??
for 20 yrs i have had IBS but consipation why it has changed now and swinging from consipation to bouts of diarrhea i dont know and why i am in pain alot of the time with my tummy specially when i drink orange juice which i have always loved but cant drink more then one glass or i get a bad tummy ache get pains and have bad gas the gas i get is awful and if i take a senna or other stuff to help me go the gas is ten times worst and very very embarrassing i am sure there is something wrong in my gut.
Thank you for your advise and thanks in advance for answering any of the questions you might know.
yes I have IBS, and Yes my bowles start girgling up under my ribs, the pain is so bad I often vomit also, and break out into a sweat nad feel like i'm gonna pass out. It just flares up now and them ussed to be worse, My doc put me on elavil for it, because it drys up secreations, it did seem to help when i took it. If we go out to eat, I have to KNOW where there is a bathroom in about 20 minutes, or I'm in trouble. A real pain! I feel for you!
Have an Answer?
You are reading content posted in the Fibromyalgia Community
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.
The generic antispasmodic I take is Dicyclomine. The brand name it's known by in the States is Bentyl. There is another one I know about that is sublingual that the generic is Hyocyamine. It wasn't as sedating as Dicyclomine is for me, but it wasn't effective for me either. If you do take either one of these, your GI or your PCP would have to be the one who prescribes the medication. Beware of the sedating effect from the Dicyclomine. We're dealing with fatigue that is bad enough, then you're using the typical opiate pain meds which add to the fatigue. So, be sure you take Dicyclomine closer to bed time as much as you possibly can if your pain is from the colon spasming from the IBS.
Yes, a good probiotic should be used. Actually all of us should be using a good probiotic, but especially those of us dealing with these issues. I would suggest a good source to buy your supplements online, but you sound like you live outside of the States and I know this company is prohibited from shipping outside of the States. I do know, though, that from what I've been told that you may have to keep trying various probiotics 'til you find the one that works best for you. The one my naturopath recommended is FloraStor. If you can't find this brand where you live, you may want to Google the brand name and find the name of the probiotic bacteria, so you can find an equivelant in your country.
I use flax seed meal for my fiber when I need to add a bit of fiber to my food. Although, fiber is a tricky thing, because too much can cause just as much problem as not enough. One grain you can look for in your health food type of store is called quinoa (pronounced keen'-wah). By itself it has more fiber and protein than wheat does and no gluten. I'm finding it really makes a good breakfast by itself or as an addition to use instead of the traditional toast people often have with their eggs. A lot of us with IBS have gluten intolerance/sensitivity or even actual Celiac. I like the mild nutty taste of the quinoa. I like it while it is still hot with a bit of my extra virgin coconut oil melted into it. The coconut oil tastes good and is a good source of omega three. Quinoa is available in the neutral color (some might call it white), red and black. The red and black quinoa varieties do have a slightly different taste, much like there are different tastes with the varieties of whole grain rices.
Aloe vera juice may or may not work. I found that I wasn't able to use it, as it upset my GERD and there are just enough sulfite preservatives to make my FMS hurt me more and cause me to feel nauseous. It seems like that one is a very individual thing. It's great for some people but doesn't do much for others.
Do some research on Leaky Gut Syndrome. Most of us are dealing with that whether or not we know it and whether or not conventional medicine recognizes it as a contributor to the problems we have or not. It's one of those controversial issues that you pretty much need to ignore the protests from the conventional doctors about. The diet we need to be on for Leaky Gut Syndrome is really strict. I haven't been able to get that one down pat.
Do a Google search on Tyramine Intolerance. I read about this on someone's post connected to migraines. Then, it reminded me that my neurologist wanted me to do this research for myself anyway. I read it again with some literature that came with some supplements I bought from my chiropractor for migraines that my neurologist likes better than the stuff he recommends to his patients. It's just not available to everyone for as good of a deal as my chiropractor offers it. She offers it at her cost and doesn't mark it up. The reason I mentioned this is because when I read information on a website that talks about Tyramine Intolerance (which I found to be very similar to Histamine Intolerance) I discovered that the majority of the foods I am intolerant to that I know trigger migraines were all listed there--And, I read on there that Tyramine Intolerance is connected to IBS as well as migraines. It's definitely worth checking into. The website I had found also talks about an elimination diet. Funny thing is that the foods I discovered I have a problem with are all connected to the Tyramine Intolerance and these are foods that are restricted on an elimination diet as well. Some may object, but on the elimination diet food challenge, soy is restricted. I don't object, because soy doesn't agree with me, and most of all I found out that it is just all around bad. You can read about this on mercola.com. You can also use his search engine to see what he says about IBS that applies to you, too. A lot of us know quite a bit about these things, but it helps to get reminders or to read the information to see if there is some other tidbit we can glean that may turn out to be a big help.
One more thing about the Dicyclomine: Unlike the opiates, you cannot use this long term. You have to take breaks from it. So, the natural stuff and the diet stuff you may need to tweak just have to be done. I know that from personal experience. I use the Dicyclomine when the IBS just acts up no matter what I do and I'm in pain. I do this in order to avoid having such horrid pain I have to go to the ER again for it.
If you are mindful about it and use it judiciously, cascara sagrada works wonders when the IBS is swinging towards constipation. Never use it more than occasionally--ever. Any laxative, whether it's natural or pharmaceutical, must be treated the same way, for two reasons: One must never become dependent on the stuff, and using too much or too often will cause one to have more malabsorption of nutrients than we are already dealing with just because of having IBS. I read on someone's post about iron from one of the experts that IBS and GERD are known contributors to iron deficiency. Diarrhea is a different kettle of beans. I often look forward to the minor bouts I get with that, since that doesn't come for me all that often and my colon is so slow. It never sticks around for me all that long and often it isn't even the really awful stuff. I know a lot of people in my personal life who have the kind of IBS that you're talking about, including myself. It's really awful. I battle with it constantly myself and have yet to get the colon to a happy balanced state. I know the things I mentioned, though, do help it not to get worse and do help considerably in controlling the amount of colon pain I experience from the IBS. If I can't have the colon not be slow and constipated, at least most of the time, even without the use of the Dicyclomine, I can at least be pain free or have it hurt considerably less than if I didn't make the effort. I know it's a hard struggle, because I really struggle with it. Many with FMS do. I do not envy those who have their IBS swing in the other direction more often than not at all. That's worse than miserable. I know. I had the kind with diarrhea as a kid.