Is This the Right Forum For My Question?

[Zeffect]

I'm not sure if this is the right forum for my question, so here goes: My physician told me to go to a Dentist for 2 problems I'm having inside my mouth - one is the skin inside my mouth (my cheeks) constantly slough off, or peel, for a lack of a better way of saying it. This is a continual problem. My physician said some medications can cause this, but I want to know for sure why this is happening. After I brush my teeth I have to take a paper towel and run it all inside my mouth, along my gums and tongue to get all of the skin out of my mouth. Sorry, I know this sounds gross.

Then I started having these areas inside my cheeks that seem to get blister type bumps in a clustered area. My Rheumatologist said that many of her patients that have Fibromyalgia like I have, complain about sores or blisters inside the mouth, and also in the nose. What worries me is I just got one of these clustered areas on the roof of my mouth. I have never had a problem with my gums or the roof of my mouth, just on the inside of my cheeks. Normally the blistered areas disappear after about one week, but now I have 3 areas that keep getting one blister after another. The other day I had such a large blister, that I pushed on my cheek (on the outside), and I felt the blister pop.

My first thought was herpes, but my Physician said no,  these are from stress. Anyone heard of this??  And what does a Dentist do for this?

[Sis1947]

Wow I was just reading about the skin coming off in mouth and sores.  This has been happening to me also but I get the sores on my tongue.  I had no idea that Fibro had anything to do with it.  I am dealing with a major flare up.  Unfortunately, the doctor and I are having problems finding a medication I can tolerate.  I keep getting bad reactions.  Tomorrow he is to start me on yet another one and see if I can stay on that.  In the mean time, I don't sleep, I am in major pain and just feel so weak.  He has not even given me anything for the pain.  Tomorrow I will ask again.  He says he does not want me on pain med's until he can find a medication I can tolerate.  This is not a fun illness to deal with.

[Zeffect]

Thank you for your comments. These forums are nice because you can talk about things that you don't want to tell your spouse or family. I will definitely try a natural toothpaste. I have always thought that toothpaste and mouthwashes irritate the inside of the mouth. My rheumy pretty much connects any/all of my symptoms to Fibromyalgia. She may be right, however, her answer is to just hand me another prescription, which drives me crazy. Again, thanks for your input!

[avey]

I get that ALL THE TIME! It is really annoying. I have to take a paper towel to my mouth as well...and sometime my shirt works, if I am out in public. It is gross, and i can pretty much pull a long thread of my gum line off at one time. And I also get blisters as well...although I get them in my nose and mouth. There was a time last year that i have it constantly from my nose to my mouth for 4 months, (the doc said no herpes either) but it was like a bunch of little tiny blisters that made up a huge one FROM MY NOSE TO MY MOUTH! Now, that is gross. Anyway, I thought that I was a leaper. Luckily my nose did not fall off. So, to the point I have fibro pretty, well actually REALLY bad...and I do get what you are describing. Although I have never heard of it being linked to fibro, it pretty well may be.

[Curls]

I haven't heard of the sloughting but maybe it's from the same root as the blisters.  Cankers sores are a known side effect of CFS (so I assume FM too).  I started getting them when the CFS started.  (Also bit my mouth a lot because my brain kept losing track of where my teeth were - but that's a different story.)

One suggestion - switch toothpastes.  I switched to Tom's River and the canker sores stopped.  (My teeth felt cleaner too.)  I was using crest and colgate (whatever was on sale).  You can get Toms at health food stores and some drug stores now.  I used the floride one, but they have other's without it.  There are other brands of natural toothpastes too.  Hope that helps and it's the same problem as mine.  These were a response to my immune system being a mess from the cfs, but obviously I found the nature toothpastes less irritating so it helped.  I had some on my gums I'm certain (I can almost feel it).  

I didn't get them in the nose.  And mine weren't blisters that could pop.  I would talk with a dentist, also ask the dentist what specialist to go to for this (which your doctor should have been able to tell you!).  It may be something treatable, I don't know about herpes, but an infection, that your were suseptable to because of the FM.  If is something you definitely what to know!

For my relevent thoughts on stress see my comment to jcl55 on the lyrica post.  Geez, are doctors so stressed out that they need to call everything stress and send their patients away?

Isn't life with FM fun?