Fibromyalgia Community
JUST WONDERING
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JUST WONDERING

    HAS ANYONE NOTICED THAT PEOPLE ( NOT IN HERE ) ARE TRYING TO TELL OTHERS OR CONVINCE OTHERS IN THINKING THAT THEY     H AVE FIBRO... MAYBE JUST TO GET PAIN PILLS.  IVE HAD SO MANY PEOPLE COME TO ME AND THEY KNOW THAT I GET PAIN MEDICINE AND HAVE FIBRO AND A MILLION OTHER THINGS BUT ACTUALLY COME TO ME AND TELL ME THAT THEY HAVE FIBRO... ITS LIKE OH, REALLLY?  AND WHAT MAKES U THINK SO?  AND THEY WILL WANT ME TO ASK THINGS LIKE ..' WELL DO YOU HURT HERE OR HERE AND THIS AND THAT'........WELL WHEN I DONT SAY ANYTHING THEN THEY MIGHT SAY WELL MY LEG HAS BEE N HURRTING OR WHAT EVER AND I LOOK AT THEM AND SAY NO.. I DONT THINK U HAVE FIBRO AND ITS NOT MENTIONED AGAIN.  I THINK .. WELL THE PEOPLE AROUND HERE ANYWAY...THINK THAT IF THEY HAVE FIBRO THEY CAN GO GET NARCOTICS.........PATHETIC!!  JUST WONDERING IF ANYONE ELSE HAS HAD THIS PROBLEM OR HAS NOTICED IT!!!!!!!!!!!????????????????
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I haven't noticed that, but I think I last read that there are 8 million people who have fibromyalgia and 4 million people (80% of them are still undiagnosed), who have CFS.

A lot of sick people and still no real answers. But there are some people, unfortunately, who are addicted to narcotics and need help. Of course since fibro is relatively a new illness, with no blood test, I think that would be an easy way for some of these people to score medications. What I've learned is that the majority of people who have fibromyalgia, are usually not on narcotics... but there are some people who have had it many years and are in a great amount of pain and according to Dr. Teitelbaum, they need them.

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yes i agree... the area i live in there are alot of druggies here and it seems like they are always trying to  find some way or some excuse to get narcotics.  its pathetic around here.  probably why doctors around here dont prescribe pain medicine ! ! !   i just think its weird that all these people like you said.... 4 million...have all these symptoms.. its almost like a plague!  i just wonder how long this has been around .. i know ive had fibro since my .. oh probably late 20's or around 25.  but i never heard of it then not that i can remember anyway.  they say that it doesnt get worse over time... i disagree with that.. how about you?  i have definetly gotten worse over the years and i think the work i did didnt help much either.  info is appreciated!                 catwoman
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I have not had a problem having drugs pushed on me for FMS.  If anything I have problems getting the medication.  I lived in a state for 25 years and was finally diagnosed with FMS in 1994 after being in severe pain for many years.  I went up the scale of medications - trying over the counter - NSAIDS (ADVIL) and Tylenol) and then trying stronger meds (Tylenol 3, Percoset, Percodan) and now I am taking Oxycontin and Oxycodone (there were many other types of meds between Percodan and Oxycodone.  There have been so many people in the fibro community who warn of addiction but with the narcotics but  even with very distinct symptoms I had trouble getting stronger medications to control the pain.  Doctors who know FMS know how to diagnose it.  It is not difficult to diagnose.  You cannot go to a doctor and say you have a pain in your arm or knee and suggest to the doctor that you might have FMS in order to get narcotics.  The diagnosis for FMS is specific and the treatment for it is gradual also.  Many types of meds are tried before delving into the world of narcotics. There are low doses of pain meds, antidepressants (not because you are depressed but you may be) but because many antidepressant medications are used to lessen pain and not just in FMS but other illnesses as well.(yes, narcotics CAN be addictive but for the most part if narcotics are given to someone in severe pain (after other meds are usually tried) people can become dependant on them rather than addictive.  You might think there isn't a difference but there is for me.  I have taken opiods for 15 years and it has given my life back.   I was able to return to work without pain and my stress level dropped considerably even after trying various types of tranquilizers.   Finding a mediation that will treat FMS is a complicated process.  To be successful is something I am extremely grateful for.  I tried combinations of drugs - the process was grueling and finding a doctor who would listen to me was EVERYTHING.  I did find a couple of doctors who listened to me in one State but it was an expensive and tiring ordeal.  I won't mention the name but if anyone wants to know who it is I'll be glad to give you the name.  There was an article in a magazine about one doctor where I was living who believed that FMS was an illness that was all in your head.  After countless evidence in medical journals this doctor says "of course it's all in your head.  The pain centers are in your head so it would follow that FMS would be in your head also."  I'm sure he thought he was being funny but it's taken a long time to get FMS to be recognized as a legitimate illness so his comments were not funny. I think along the same lines with people saying that pain pills are addictive. In the 15 years I have taken narcotic medication I have not gotten high or suffered withdrawal if I didn't take it in the exact 6 hours I was prescribed to do.  I was recently in the hospital for 2 weeks - an experience I told the fibro group about last week.  I was in a coma for 5 days and in intensive care for 8 days.  I did not experience any withdrawal.  Once I was out of the coma I was placed back on my oxycontin and oxycodone.  I know the problems pharmacies have had with this medication which makes it difficult for the rest of of us who need this medication.  However, because the drug may cause problems for some doesn't mean it will cause problems for all.  It isn't a good drug for all and if it is a problem for you, you will find out in a short time.   Good luck to all.
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YES I AGREE GETTING PAIN MEDICATION IS SO HARD TO GET AROUND HERE AND I GET SO UPSET WHEN I HEAR OF THE ONES THAT ARE JUST TRYING TO GET DRUGS SO THEY CAN GET HIGH.. IT MAKES IT HARD FOR PEOPLE LIKE US.  I KNOW WHAT U MEAN ABOUT NEEDING THE MEDICATION TO FUNCTION .. IM THE SAME WAY.  IF I DIDINT HAVE MY PAIN MEDICATION I WOULDNT BE ABLE TO WALK.  I HAVE NEVER GOTTEN HIGH OR ANYTHING OFF OF MY MEDICATION EITHER AND I  WAS ON 800 MG OF MORPHINE A DAY PLUS OXYCODONE WHICH IS ALOT OF PAIN MEDCATION!  SO I KNOW WHAT U MEAN THERE!  BUT SOME OF THESE DUMMMIES AROUND HERE THINK THEY CAN GO TO THE DOCTOR AND TELL THEM THE SYMPTOMS OF FIBRO AND THINK THAT THEY WILL GET NARCOTICS FOR IT, MAKES ME MAD.  IM SURE THERE ARE PEOPLE THAT HAVE IT AND I HOPE THEY GET HELP BUT THE ONES I WAS TALKING ABOUT I KNOW THEY SEEK DRUGS... ITS PATHETIC.  MY DOCTOR ONCE EXPLAINED TO ME THT WHEN SOMEONE IS IN SO MUCH PAIN THAT THEIR PAIN WILL EAT UP THE PAIN MEDICINE.  IT JUST SEEMS LIKE IT  TAKES ALOT FOR ME TO JUST GET THE PAIN TO EASE UP.  THE DOCTOR IVE HAD FOR ABOUT 5 YEARS JUST KIND OF UP AND LEFT ME HANGING AND NOW IM TRYING TO FIND A DOCTOR THAT WILL TREAT ME AND IM RUNNING VERY LOW ON PAIN MEDICATION AND I DONT KNOW WHAT TO DO,  ITS SCARY!!  I SEE A DOCTOR AT THE END OF THE MONTH SO HOPEFULLY HE WILL HELP ME.            TAKE CARE EVERYONE AND TRY TO BE PAIN FREE!!!!!!!!!!!!!!!! CATWOMAN
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Avatar_f_tn
Until the medical arena stops thinking of FMS as a psychologically induced illness, it will continue to be difficult gaining any type of pain medication for it.    :-(

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how true!!!!!!!!!! i would think with all these ppl having these symptoms they would start believing it.
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I think that the sheer volume of people coming down with FMS/CFIDS is probably overwhelming to them.  Esp. since there is no real diagnostic test developed to wean out the true cases.  I also think that 'politics' is playing a HUGE role in how quickly we will see an outcome.  

Hope you have a low pain day catwoman.  I'm thinking of you and praying for you.
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THANKS FOR THE PRAYERS.. MAYBE THATS WHY MY PAIN HAS EASED UP IN THE PAST 1/2 HOUR OR SO.  BUT ANYWAY I THINK POLITICS PLAYS A HUGE ROLE IN IT ALSO.  I TRUST NO ONE ... IF U KNOW WHAT I MEAN!?  I WISH THERE WAS A WAY THAT THEY COIULD TEST SOMEONES PAIN AND HOW BAD IT REALLY IS .. I THINK THEN WE WOULD BE ABLE TO GET ARE PAIN MEDS ALOT EASIER.  BUT THAT WILL PROBABLY NEVER HAPPEN.  ONE CAN ONLY WISH. IT SURE WOULD ELIMINATE SOME THAT IS FAKING THE PAIN JUST TO GET NARCOTICS!  LOL.
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Funny this should be the topic that I happened to look at today.  I went to my pcp to talk to her about what was going on.  She had seen me about 6 weeks before when I had a panic attack waiting for test results.  Still not in.  She kind of yelled at me when I told her I had taken the xannax 4 nights in a row because it helped me sleep and lessend the muscle twitching.  She said it was not meant to be used that way.  That I needed to go on celexa for an everyday anxiety.  She then also wrote me another rx for xannax.  Can't understand that.  I still had over half a rx from before.  So I'm not abusing it.  She also said my bp was up and she was concerned.  I tried to tell her I have been running from neurologist to rhemy to eye md to retina specialist.  On top of that they messed up my bloodwork and I had to go back for more and my dad just got diagnosed with kidney cancer the week before and was in pain and I was waiting to find out if he was going to be admitted to the hospital that day.  Then I got a phone call from sister in law saying mom in law was being admitted because she was unable to breath right.  Found out she has congestive heart failure.  So to say I've been a little stressed and in pain for almost 3 months straight.  I think my bp should be up.  Really I've never had high readings so I really think it is stress related.  Sorry had to go on a vent.  So I hope to god when this is finally diagnosed I can get something that is going to work for pain weather it is herbal or a narcotic.  Whatever will work.  Hope everyone has some good days ahead.  
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