Just wanted to say hello.

[DeniseApril]

Hello everyone,
I haven't been on here in a while-- I'm a real "mixed up kid" - actually, I am far, far from being a kid, but it just felt good to type that! lol!  Well, it was funny to me!  All  kidding aside, I just wanted to check in with you because my first diagnosis, many years ago was CFS/FM.  I enjoy visiting and reading your posts.  Oh my gosh, how I can relate to so much of what I read here!  I liked your question of "What do you call a good day?"  You know, I need to type in "my story" because although I have been sick since 1989, I went though a long period of time where I was so much better!!!  I'm a "limbo-lander" in the MS community, and by the way, I so appreciate the information regarding CFS/MS.  So many of our symptoms are the same, it's just unbelievable!!!  I don't seem to have many good days now, for a while.  I suffer so much with fatigue-- it's just terrible.  In the old days, after being diagnosed, and the fatigue was so bad, I'd often say that I felt like if I were to lay down and close my eyes, I felt I could just die.  I feel alot like that now days... I certainly don't want to die!!!  I have too much to do...but I can't get much of it done. Well, I'm sorry for "carrying on so much,"  but I wanted to touch bases with your community, you were all so nice to me when I first signed on with you.  May God bless you all, DeniseA>

[VaBreeze]

Hello -

Isn't it strange how similar the symptoms are?  This is one reason that I believe all of these diseases are connected somehow.  Maybe caused by the same culprit, but manifesting itself in different ways depending upon ones immune system.  We do know that they all fall under what is being called 'neuroimmune' disease.  

I've also heard others who have had a remission like yours.  Then it seems to hit full force at a later date.  I have had those days where I was feeling so poorly as if I might be on my last leg too...esp. if I come down with any type of bug.  You aren't alone in that respect...we do understand.

Sorry to hear you have been so ill lately.  I hope you begin to see better days ahead.  I'm glad you stopped by to say hello.  Take care and get well soon.

[Caroline565]

Hi Denise,

Nice of you to stop in!  I have a great deal of difficulty with fatigue also and the past week or so has been very bad. I am attributing some of it to allergies because I am sneezing and coughing alot and not sleeping particularly well. What's even worse is the brain fuzz--I really hate not being able to concentrate or think straight.

I really hope you have return of some of your good days very soon. Rest as much as necessary and wait until your're feeling well enough to tackle some of the things you need to get done. I sometimes will take one small task at a time, that way at least I feel like I've accomplished something. We need sometimes to "lower our standards" (ha-ha) and not expect so much from ourselves! Use some of that energy to do something fun and take care of yourself!