Aa
Just wondering what questions I should ask my doctor
I've read about Fibro and CFS before and felt like I have many of the symptoms. I've been feeling tired, not refreshed from sleep, have random pain, especially in my upper shoulders, and some of the other things listed for CFS/ Fibro.
Also I seem to have chronic headache pain. Most of the times it is dull and goes under the radar, but sometimes flares up to full blown migraine pain. Ever since 2004, I've noticed a drop in my short-term memory and times where I just felt out of it and a bit light-headed. It was part of what led me to drop out of college besides an online gaming addiction.
I thought it was depression, anxiety... That's what I ended up diagnosed with. As far as the physical complaints, I've had various doctors and they've taken those complaints with various attitudes. I had one doctor in 2007 who took me seriously, tested my thyroid, tested me for lupus, and tested me for an autoimmune condition. All the tests came back normal.
I'm frustrated because whatever bothered me in 2004-2005 seems to have flared up again... Recently I heard back from my mom that her doctor now is suspecting she has Fibromyalgia and is considering tests on it.
With that information now I'm left wondering about myself and what things I need to talk to my doctor about. I want to schedule an appointment soon for other complaints such as my knee pain and my migraine headaches.
Also I seem to have chronic headache pain. Most of the times it is dull and goes under the radar, but sometimes flares up to full blown migraine pain. Ever since 2004, I've noticed a drop in my short-term memory and times where I just felt out of it and a bit light-headed. It was part of what led me to drop out of college besides an online gaming addiction.
I thought it was depression, anxiety... That's what I ended up diagnosed with. As far as the physical complaints, I've had various doctors and they've taken those complaints with various attitudes. I had one doctor in 2007 who took me seriously, tested my thyroid, tested me for lupus, and tested me for an autoimmune condition. All the tests came back normal.
I'm frustrated because whatever bothered me in 2004-2005 seems to have flared up again... Recently I heard back from my mom that her doctor now is suspecting she has Fibromyalgia and is considering tests on it.
With that information now I'm left wondering about myself and what things I need to talk to my doctor about. I want to schedule an appointment soon for other complaints such as my knee pain and my migraine headaches.
P.S. The reason I suggested starting treatment is due to the problems that physicians have with understanding and dx'ing someone with these illnesses. Of course, you'd want to first rule out any other disorders that may be causing your symptoms (ie. an MRI and Western Blot). It seems you've had other testing done previously.
Take care.
Take care.
I'm sorry you are having these problems. No...it is NOT normal for someone to experience chronic pain. Since it appears that more and more are coming up with these illnesses, and you've watched the video, you will see that it's a pretty critical issue for everyone. One doesn't need to be in a war to contract these illnesses...they can be induced in may forms, or brought back from someone exposed while in service.
Even if a doc. doesn't dx you with any of these, you can still begin treatment at home. There is some helpful info. in our Health Pages to get you started. We are all in the same boat (so to speak)...so you have much company.
Also, I have attempted to post about heavy metal toxicity, which could cause some of the symptoms. While the post looks awful, the links will work. It's worth reading how these metals influence neurological disorders.
Take care and I pray you feel better soon and get some answers to your questions.
Even if a doc. doesn't dx you with any of these, you can still begin treatment at home. There is some helpful info. in our Health Pages to get you started. We are all in the same boat (so to speak)...so you have much company.
Also, I have attempted to post about heavy metal toxicity, which could cause some of the symptoms. While the post looks awful, the links will work. It's worth reading how these metals influence neurological disorders.
Take care and I pray you feel better soon and get some answers to your questions.
Saw the video. Very interesting. If I didn't hate war already, I sure do now. It sickens me (no pun intended) that people would do anything like that....not something I'd wish on my worst enemy...
I don't recall ever getting lymes disease, but it would be interesting to see if there is a connection with my autism and CFS/Fibromyalgia. I guess it's official, my mom was diagnosed by her doctor to have Fibromyalgia.
I don't recall ever getting lymes disease, but it would be interesting to see if there is a connection with my autism and CFS/Fibromyalgia. I guess it's official, my mom was diagnosed by her doctor to have Fibromyalgia.
Rambling is okay. I don't know what it is I have, but it is *something*. It could be things like poor posture, but what I find odd is that it seemed to have gone away and I was going though a time with very little to no flair up, then with not much change to my behaviors or routines, the pain returned.
I want to rule out it being things related to sitting most of the time. (I need to be more active, but I can't stand cold weather with a passion...so I've been cooped up for the winter.) It seems every winter my tolerance gets less...
I did have a blood test two years ago for RA and it seemed to come back negative. I noticed when I lightly to moderately press the sensitive points, I can sure feel it. Also it is roughly where I notice I have the most pain. Not always in those spots at once, but in those areas.
As far as the level of pain goes, I don't know what people consider severe vs. non severe. I have in the past complained to people about it but usually the response I got was, "Oh you're too young. You must be going on 80..." Or they gripe about their pains. I've learned to keep my mouth shut, thinking what I have must be minor. But I'm noticing other things like feeling stressed out, tired, depressed, or angry for no reason... It just dawned on me recently it could be related to the dull pains and headaches that I've been largely trying to ignore.
My grandma seems to think I'm always making things up. My fear is that I'm being a hypochondriac... Is it normal for people to feel a degree of steady chronic pain?
I'll try to ask for a referral and see how that goes.
I want to rule out it being things related to sitting most of the time. (I need to be more active, but I can't stand cold weather with a passion...so I've been cooped up for the winter.) It seems every winter my tolerance gets less...
I did have a blood test two years ago for RA and it seemed to come back negative. I noticed when I lightly to moderately press the sensitive points, I can sure feel it. Also it is roughly where I notice I have the most pain. Not always in those spots at once, but in those areas.
As far as the level of pain goes, I don't know what people consider severe vs. non severe. I have in the past complained to people about it but usually the response I got was, "Oh you're too young. You must be going on 80..." Or they gripe about their pains. I've learned to keep my mouth shut, thinking what I have must be minor. But I'm noticing other things like feeling stressed out, tired, depressed, or angry for no reason... It just dawned on me recently it could be related to the dull pains and headaches that I've been largely trying to ignore.
My grandma seems to think I'm always making things up. My fear is that I'm being a hypochondriac... Is it normal for people to feel a degree of steady chronic pain?
I'll try to ask for a referral and see how that goes.
Hi MJ;
I'm sorry that you are going through the pain and aggravation of not knowing what the heck is wrong. I finally had to admit to myself that something was wrong and the continuous pain was really taking its toll. I went to my internist and told him that I was so tired of hurting like I was. He drew blood and did a complete workup, everything came back normal except my cholesterol was a little high and my sed rate was a little too high. He sent me to the Rheumy because he told me that it was either RA or fibro.
The Rheumy had more blood drawn and again did a full workup. He also put me through hell when he started the trigger point test. I was literally in tears when he finished. At that time he found 16 of the 18 trigger points. He sat down in front of me and checked my arms, and he pointed out how red they were. I had noticed it before but not paid any attention to it. He was more than positive that I had fibro.
I then asked him why I stayed so tired and felt run down.? I told him that I slept all night, but I never felt rested. And I noticed that when I was so tired my pain was worse. By the time I left his office I was pretty well dxed with fibro and cfs. When my labs came back everything was normal once again, except for my sed rate and it was high.
I apologize for rambling, geez. When you see your doctor ask for a referral to see a Rheumy. Tell them how you feel just like you did here. I hope that you can get in and find something out. This disease is horrible and I wouldn't wish it on anyone. Take care.
gentle hugs
Angel
I'm sorry that you are going through the pain and aggravation of not knowing what the heck is wrong. I finally had to admit to myself that something was wrong and the continuous pain was really taking its toll. I went to my internist and told him that I was so tired of hurting like I was. He drew blood and did a complete workup, everything came back normal except my cholesterol was a little high and my sed rate was a little too high. He sent me to the Rheumy because he told me that it was either RA or fibro.
The Rheumy had more blood drawn and again did a full workup. He also put me through hell when he started the trigger point test. I was literally in tears when he finished. At that time he found 16 of the 18 trigger points. He sat down in front of me and checked my arms, and he pointed out how red they were. I had noticed it before but not paid any attention to it. He was more than positive that I had fibro.
I then asked him why I stayed so tired and felt run down.? I told him that I slept all night, but I never felt rested. And I noticed that when I was so tired my pain was worse. By the time I left his office I was pretty well dxed with fibro and cfs. When my labs came back everything was normal once again, except for my sed rate and it was high.
I apologize for rambling, geez. When you see your doctor ask for a referral to see a Rheumy. Tell them how you feel just like you did here. I hope that you can get in and find something out. This disease is horrible and I wouldn't wish it on anyone. Take care.
gentle hugs
Angel
Have an Answer?
You are reading content posted in the Fibromyalgia Community
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.
