Long Term Fibro

[Veryniceblonde]

I don't know anyone who has had fibro aslong as I have, I had been managing but all of a sudden my symptoms have changed, I know it's stress related I have been under an enormous amount of stress the last few years. The pain i am having in my hips back and legs is truly unbearable, the pain killers don't help. I am having problems with cognitive skills I am 43 and feel like I am 70 I find myself having problems forming sentences and reaching for words, basic math skills and my short term memory although always affected has become pretty bad I will forget anything. I could live with most of it but the pain is something else. my family talked me into going into the hospital lol what a joke. Doctor says sorry there is nothing we can do for you! I lay there and said I can't walk and you say there is nothing you can do? He did blood work and xrays and said if it's not something we can immediately deal with you deal with it with your family doctor. I have been on waiting lists since february for refferals. If anyone has any suggestions i'll take them
thanks

[PlateletGal]

ideasofmarch is right. The preferred thyroid test for CFS & fibromyalgia, is listed on the Health Pages.

Since some of us have CFS and both CFS & fibro... I should mention that two positive tests that MS & CFS patients have in common ---- many of us have a low uric acid level and an abnormal MRI. Our MRI's will often show small T2 weighted high intensity lesions in 80% of cases.

I know... I didn't mean to make things more confusing, but sometimes this is why it takes physicians years to figure out a diagnosis. I can tell you that there are millions of people out there with CFS and 80% of them are undiagnosed.

[idesofmarch]

Have the thourough blood workup for thyroid.  Most of us FMS sufferers also have hypothyroidism or bounce back and forth to hyperthyroidism which is Hashimotos.  This also has many of the FMS symptoms that we experience.  Also an mri of the brain can be done to rule out MS which also mimics FMS.  An MRI of the lower back will show if you have any disk disease or ruptures.  A good doctor will do all the tests to rule out the issues that mimic FMS.  If your dr. won't do anything, get a new dr.  Prefably a RA or a Neurologist/Neurosurgeon.  Those are the 2 best drs. that are up to date on FMS issues.  When calling for an appt with any dr. first ask what the drs. views are about Fibromyalgia.  Some still don't believe in it. I have found that Vitamin b complex, vit d calcium, maganiesum together, and fish oil have helped some of my issue with pain, fibro fog and depression/confusion etc.  Taken everyday with a meal but take the calcium/mag combo atleast 4 hours  away from any other meds.  Mag. can hurt the other meds from being fully absorbed.  Best of luck with all that.

[kitty51]

Check out plateletgals website theres some good info there,also have you tried a tens machine? I find it quite good although its not a cure relief is at hand,i get use it when my pain levels go up and it eases it,better than pills and no side affects.

[Melissa70817]

Yep Yep, I feel for you and know EXACTLY what you are going through.  I am to the point now that I don't care what they find wrong with me I just want something OTHER than FM wrong with me.  I cannot take, I'm sorry, this is all we can do for you which is what I get.  I have had every test that there is and I'm fine, imagine that.  They can't find anything wrong with me except curvature of the spine and a cyst on my right ovary.  OK...well, why do I have chronic bacterial infections, why does every joint in my body hurt, my back hurts, my muscles ache,I can't sleep for days, literally,  I can't remember my kids names sometimes,when I stand up my blood pressure drops,  I feel like I've been out drinking all night and banged into every coffee/end table while running in my house when I wake up or falling down a flight of stairs...that would be close the the pain.  And nobody has an answer.  SO.  I ask my doctor to up my meds or change my prescription for the pain meds, I've been on the lortab for over 2 years and apparently I'm immune to them now because they are equal to drinking a glass of water at times.  His reaction, just keep doing what you're doing.  My reaction (without him knowing of course) how about I take a ball ping hammer and knock out every one of your joints, roll you down a flight of stairs and make you stay awake for about 3 days and see you function like YOU are normal and there is nothing wrong with you.  I just had blood work done a week ago...the results, I'm normal....ok, I'm normal compared to what?  Someone who just got into a head on collision? A boxer? There is no way I'm normal.  I cannot believe that I spent $500 at the doctor and they couldn't find ANYTHING wrong.  I wonder if they even ran my blood work.  And if I'm fine why is it that when I stand up for any length of time my blood pressure drops.  I know I'm not insane, I can't make that one up.  
My option now, go to the hospital.  From what you said, I won't get anywhere there either.  I'm still going to try.  I cannot stand this anymore.  
By the way, I've seen some 70 year olds that I envy, I wish I could go and do like they do, I wish I could get up as fast as they can and have the active life they do.  I just turned 40 but I sure don't feel like it.  

[PlateletGal]

"Doctor says sorry there is nothing we can do for you! "

I've also had problems with cognitive skills... reading sentences and even managing my checking account at times.

There is something you can do. I list my website in my profile and on there I have various treatments and possible cures recommended by the experts. Feel free to check it out.