My 11 year old daughter gets tenderness in all the fibro points. She is fine most of the time, but has flares after too much exertion - this week she had a school trip and walked around all day. 3 days later she's still sore and achey in all those danged fibro points. Luckily, she's not tired and she's bright and perky, so I don't think it's CFS.
I give her Advil, but it doesn't ease the discomfort enough for her to get up and do fun things, never mind go to school.
She was assessed at a children's hospital 2 years ago, but they thought it was psychosomatic and did not offer any help. She had acupuncture which helped for a while, so we'll try that again.
I am going to do my best to find a decent Rheumatologist for her to see (and we all know how hard THEY are to find). She's a happy little thing - I can't bear for her to spend a whole summer desperate to get up and swim and play, as happened 2 years ago.
In the mean time, I'd love to hear from any other parents with a child suffering from Fibro. Do they prescibe Lyrica for kids? What have you found helps your child?
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