Fibromyalgia Community
Not sure what to do :*(
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Not sure what to do :*(

Hi everyone I have been experiencing Fibromyalgia pain for the past 5yrs and lately its been getting worse I cant sleep and as you can see I'm up writing this. It all started with a car accident. I was rear ended at 55pmh at a stop, all because the girl behind the wheel of the other car was to busy talking on her phone. I hit my head on the steering wheel and the side panel of the door because I was looking out the window due to hearing tires screeching then the impact. I felt as if someone hit me with a baseball bat than everything goes black. A few days later I started having seizures and headaches that are so horrible and debilitating that I cant function. Thus starts a trend of headaches that are so bad, I'm in and out of the hospital for the next 5 years to current date. I just currently find out that I have bulging disc in C5 C6 C7 of my neck. My right thumb has gone numb, they have yet to look into the pain in my back I have muscle spasms daily. My doctor is not to worried that I cant sleep or that I hurt daily, saying its just the process of Fibromyalgia.Tuesday I wake up an felt as if a MAC truck hit me, I was so tired, weak, nauseated, head, and back hurt. My whole body hurt for two days. She just says, "its a hit or miss day and it just happen to be a miss day". I was worried it was due to all the meds they have me on, it seams there mounting up and I'm not getting any better. There now sending me to a pain clinic and I fear their not going to help me either. Just drug me up and send me on my way because they don't want to deal with me either.  Im not sure what to do or who to see or if I need to change doctors. My boyfriend is so supportive and helps me look things up to see if there is any new or useful things to help .Could use the extra help thanks.
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Have you seen a rheumatologist?  If you haven't, I would suggest that you try to get in to see one.  They are typically the types of doctors that are most knowledgeable and helpful in treating fibro.

It's very common for fibro patients to have sleeping problems and many need a sleep aid - either over the counter or prescription - to help in that.  I, personally, take Ambien - some nights it works wonders and other nights it's like I've taken a tic tac.  It's a vicious circle with the sleep and fibro - we can't sleep because we're hurting and we hurt more because we're not getting enough or adequate sleep.

What meds are you currently taking?  There are several newer meds out that are made to treat fibro.

While it is true that you will have good days and bad days with fibro, it doesn't sound like your current doctor is taking your pain and other symptoms very seriously.

Some non-medicinal things that SOMETIMES help take the edge off my fibro pain are warm showers (not too hot - I find that extremes of temp in either direction make me hurt more), a heating pad, TRYING to relax in bed with soft music (sometimes helps me relax enough until my pain meds can kick in).

I hope some of this helps.
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Well as of the 9th of this month  my boss is letting me go saying he cant rely  on me and I guess hes right with the never ending headaches and pain I wont be able to keep a job and I'm to young to apply for a disability so at this point not sure what to do bummed for now
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Avatar_f_tn
I'm sorry to hear about your job loss.  That's a tough thing to deal with at any time, but I think especially when you're already not feeling well physically.

There is no age restriction/magic age to be able to apply for disability.  While it might be true that being approved for disability could be a bit harder for a younger person, it can and does happen.  I, myself, was in my 30's when I applied and got approved.

One thing to remember if you decide to apply for disability is that it is not usually a quick process and actually can take a couple of years.  Also remember that the majority of people who apply (especially those that apply on their own without the aid of a lawyer or legal group that specializes in disability cases) get denied the first, sometimes second and even sometimes third time they apply.  So it's very important to try to not get discouraged with the process.

Some things that could help with the disability process -- get as much paper back-up as you can to your diagnoses/es, treatments, doctor ivisits, tests, etc., as you can.  One of the most helpful things, if you can get it, would be a letter from your doctor stating that he/she feels that you are unable to work anymore because of your conditions.  Don't leave ANY of your medical problems/conditions out on the application - you don't need to apply based JUST of fibro.

there are many legal groups out there that do specialize in disability claim cases and they can be extremely helpful.  Most of them typically not only help with the paperwork, but they, themselves also deal with all the communications with Social Security so that you don't have to do it.  Some, like the one that I used, do not require any money upfront.  If and when you win your case, they will take a portion of your backpay as their fee - and if you don't get approved, you don't owe them anything.  While ANY legal help is not cheap, I felt that the amount they deducted from my back pay was well worth them helping me get my case approved.  

I wish you the best of luck!
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TheLightSeeker
London, ON