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Part 3 Is this CFS
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Part 3 Is this CFS

Part 3
Investigation and Conclusion:
I was looking far and wide on the internet asking many, many people to help me. Some thought I was crazy, others flatly refused saying I was imagining things and I felt like complete ****, alone in the world. First my family tragedy, then a few days later the risky incident and feeling like crap ever since. Ironic for a person who was a virgin till age 30.  However, one expert on the internet suggested I get tested for Cytomegalovirus (CMV)   a member of the herpes family. Guess what my CMV test came back positive. The IGM test came negative 0.134 but the IGG test came back positive at a high level of 78. I got retested two weeks later for CMV IGG and it showed a value of 60.  Now two months after my last CMV IGG test I got retested for CMV IGG and the value came 70.

Questions:  
I am really confused. I have done extensive research on CMV. Its effects on the human body are varied. Inflammation of the blood cells, high blood pressure (derived from an experiment done on rats), breakdown of red blood cells. Apparently it effects cholesterol as well because my LDL cholesterol came to be 112 whereas my HDL cholesterol came to be 55. Almost twice as much bad cholesterol as compared to good cholesterol. Now if anyone can HELP  ME  I would much appreciate it.

Q1. Please tell me do I have an active CMV infection. If I do not then why is my body feeling so bad even two years after the incident. I still have urination problems, Bilirubin problems, high uric acid, body pains fatigue, feel depressed all the time and I cannot go out in the sunlight. I cannot even stand bright lights anymore. From what I have read CMV limits your ability to be in the sunlight as well as be in bright lights.

Q2.  The thing that is confusing me so much is the fact that if my CMV infection is inactive then why am I feeling all of these problems and why does my body react in these ways. If the body has supposedly fought of this infection (negative IGM) then how come my uric acid is not normalizing and my urination, fatigue and muscle pains are not going away.

Q3.Also is it actively destroying my liver and kidney? Is IT that I have HIV as well but that it is just not showing in the reports. The only thing that makes sense to me is that I have HIV and that is why the CMV is affecting me so much on a daily basis. Maybe the HIV is actively weakening  my immune system and that is why I am in facing so many health issues due to CMV.

Q4. Is my level of 0.134 CMV IGM a high level?


Q5. Will they ever come out with a cure for Cytomegalovirus. Are there any cures already out for it?

Q6.  Are there any anti-inflammatory medicine or viral medicine I should be having every day?  

Q7. When I caught the flu recently my doctor gave me apart from Augmentin an anti-biotic also gave me Tandegyl (an anti-allergy medicine). And the anti-allergy seems to make me feel good. Do you think my liver is permanently affected that I feel good only if I have tandegyl?


PLEASE people help me out. God Bless all of you. I really need help. Please, I know that this post is an incredibly long post but I needed to put in all the information so that you people could be aware of my case history in detail and hence may be able to offer me some help. Please, if possible give me the answers to my CMV predicament and whether or not it is active and if not active then why I feel the way that I do.

THANK YOU SO MUCH!!


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6 Comments Post a Comment
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773755_tn?1328123377
dude, that's heII. lots going on. i'm only commenting on the fatigue query; if you had 'chronic fatigue syndrome' , you would not be able to play the sports you do; you might barely be able to stand up or sit up.
but because of the mention of virus and all the other shi+ clanging around in your body, i think your case is one that could develop into cfs, without proper rest, and if stress continues.
sorry for your loss of a couple of years ago.
hey you have a sense of humour, so you need that for your travels! good luck
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975514_tn?1325001538
Hello,
You sure do have a a lot of things going on. It's hard to pinpoint your issue. I agree with Acker in regards to the fatigue. Also, this is NOT the HIV forum and we do not have definitive knowledge on that subject here. You may want to consider posting your HIV specific questions in that forum. Good luck to you.
-Dusty
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Avatar_m_tn
buddy, thank you for taking the time out to reply to my post. I cannot tell you the countless times I have encountered people who tell me I am imagining stuff or that none of this exists. I keep on telling them that how come untill the risky incident I had two years ago I never EVER spoke about health. Hell, I did not even know which vitamins were which, which were important for me never had my blood pressure checked and/or never went to see a doctor except for FLU which I have encountered alot since when I was a kid.  
I am happy to know that according to what you say I do not have CFS. But the fact remains that I have felt crazy fatigue after the incident. Its quite mysterious. I never used to feel so tired. This is a different league of being tired.  In addition no one cane yet answer why my body keeps on losing vitamins and why I need to have so many vitamins after my injection. And no one can give me a definitive reply on my blood pressure. And the study done on rats that showed that those who have cytomegalovirus usually had high blood pressure.
Acker what else did  you mean "with all the **** in my body". Are you referring to all the myriad problems I have mentioned. The point you made about me getting rest and not taking stress seems to be a very valid point. I feel that humans in general should not take stress(something very difficult to do in today's times) but especially people like me who are very worried about this desease it becomes damn hard not too. I have been stressing about this on a daily basis for two years .It really has taken over my life and I do not know how to get out of this madness and to stop thinking about it.
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Avatar_m_tn
Hey,

Dusty I have posted all of this on both the HIV forum and the Herpes forum but have not gotten much help from them. No one seems to be able to pinpoint what is happening or which virus is affecting my body internally so much. My last HIV test was two years after the incident and it was negative but the effects on my body point to either hiv infection or active cmv hence my post to the cfs forum.
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773755_tn?1328123377
got a dr you like? the light sensitivity and range of symptoms and signs should be a clue to any good dr?
i know it - i had no health problems up till now, with this fatigue. so i now know more than i wanted to, about illness, nutrition, the medical system and its inadequacies, and about how society treats its infirm. oh i have also learned more about 'myself', so that was a surprise..!
whatever it is you have, i think the anxiety is also a symptom of whateveritisyouhave... plus the fact that it sure makes you worry as well.
IF YOU have cuts that heal slowly, when you are normally a fast healer, this is a sign of your body being run down. also, IF YOU have set an alarm in the morning, and press the snooze button 4 times and could easliy stay in bed all day - STAY THERE! this is the fatigue that led to my complete collapse. hindsight's great and these were big clues that - who knows - if i'd noticed could have made my fatigue years more like months and with less severity. this sort of thing. if you are clagged out during the day at work and have to sit or lie during lunch - you're fatigued. you're describing crazy fatigue, which is probably something that can definitely worsen :( it seems you're open to suggestion, so: just do less strenuous things - even if you like doing them - you just have to not do more damage to your cells. as much as it can easily worsen, it can also be stopped from worsening
a good dr should know a bit about antiviral medication too.
apparently vit c could help. i know your system isnt retaining it but most of it we pee away anyway.
(have you had a thyroid test?)
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Avatar_m_tn
Dear Acker,

Thank you so much for taking the time out to read my posts and to reply to it. Very kind of you. I am sorry that I was tardy in replying. I am still trying to navigate this site and do not recieve any kind of notification if someone replies to my posts. The only time I recieve any notification is of someone directly posts to my name. Anyways my fatigue is a constant issue. The worst thing about CMV and herpes is that it makes you feel fatigued all the time. I still try to push myself to jog occasionaly and play tennis but this is a big struggle. It is totally a different league of feeling fatigued. It seems like I am a wind up toy and someone needs to wind me up in the morning and then during the day. My doctor does not think I need serious medication but I feel maybe the antivirals will make me feel better. I have heard that they do damage to the liver and kidneys though. If my cmv is not an active infection do I need to have it? I did have a thyroid test done two years ago and then one six months ago. My values have fallen although still barely in the normal range. Does cmv damage the liver and or thyroid gland? Buddy sorry for my queries but yes since this illness of mine it has made me read up thoroughly on the human body and learn about things I had no clue about before. But if I do so at night I STRESS like crazy and cannot sleep.
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