Fibromyalgia Community
Recently diagnosed and they're not done yet....
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Recently diagnosed and they're not done yet....

I have been recently diagnose with Fibromyalgia and just before that Trigeminal Neuralgia w/migraine also with severe vitamin D deficiency . They are still trying figure out swelling in my legs and feet which seems to be receding some but I am now having severe spasms of pain mainly in my arms, hips and colon which just started about 3 weeks ago. It's bad enough with the Fibro because they still haven't figured out the correct meds to have me on to relieve some of the pain and previous meds had some real adverse affects on me one even causing something called a pseudo lymphoma to me. Right now they have me on 6 meds that I have to discuss w/ doctor. Could these spasms be connected with the Fibro or could it be from something else? These spasms can get so bad that the morphine ER 30mg doesn't put a dent in it nor does the vicodin 5mg. Could the medications do this? I can barely stay on my feet more than 15 mintues and now I'm can't hardly sit for any length of time either or use my right hand and I'm right handed. Does anybody have any ideas? I'm also very new to Fibro and TN  I was a very active Cook by trade and am having a hard time adjusting to this or understanding it....could stress and having an infected tooth pulled while still infected triggered this? I was perfectly healthy til I got the tooth pulled.
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1611319_tn?1378621999
I am off all pain meds, take 100 mg Savella am and pm.  this is a huge dose.  And with your Vitamin D diff you could be having a thyroid problem too.  If you do not have that managed, your fibro may seem like it never gets any better.  Thyroid problems can cause severe pain just like Fibro.
Sass
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Avatar_m_tn
lunawolf1313, the pain caused by Fibromyalgia may become chronic if you are not using the proper meds. It is preferable that you visit your doctor and establish you a prescription medication to control pain. For example I take vicodin for three years and as all medicine it has side effects but I read in Findrxonline that if you take it correctly can be very helpful for chronic pain.
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1364259_tn?1298664781
Oh  I'm sorry, I forgot to put in that these are the meds that the doctors have me on at this time...as a matter of fact one doctor wants to stop the pain meds (morphine and vicodin) after the savella has been in me for a few weeks. I'm not looking forward to it due to the fact that there are times that the pain gets so bad the meds don't even put a dent in it.  I will check that website out too..its one I had seen yet, thanks!   :)    I usually check my meds out through drugs.com for interactions and whatnot too, but a new place to look though is always good!
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1611319_tn?1378621999
Make sure you are getting ALL of your thyroids tested.  TSH<FreeT3,FreeT4, TPO, everything!!!  I have Fibro and Hashimoto's (Thyroid AutoImmune Disease)  The symptoms can mimic each other.
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1611319_tn?1378621999
I am off all pain meds, take 100 mg Savella am and pm.  this is a huge dose.  And with your Vitamin D diff you could be having a thyroid problem too.  If you do not have that managed, your fibro may seem like it never gets any better.  Thyroid problems can cause severe pain just like Fibro.
Sass
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1364259_tn?1298664781
Thanks! I'll mention it to my Rhuemy...I go back to her the 8th...I just started the 50mg am and pm and will talk to her about Hashimoto's. I think they are getting ready to run a new set of labs on me soon too so I'll ask them to run those too they've been very obliging to me when I ask or want them to check on something for me.
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1623704_tn?1300456345
I went through the same thing. What did they give you for the spasms? They put me on Hyoscyamine. I get bladder and bowel spasm's. This is from IBs.. do you have IBS? They will not give me any pain pills for FM... I am so surprised you got pain pills! Please be careful. I have heard about Tremadol for FM pain. Something you might as your doc about. I too cant stand more then 10 min on my feet..I can walk.. just not stand in one spot, or walk slow. Low Vit d seems to go along with Fm. also have your vit b-12 checked. Trama could cause Fm, but it they pulled a bad tooth while it was still infected, it could be something else in your blood stream. they should give you antibiotic first, before removing the tooth!!!  You might need to good dose of antibiotics and see how you do!. good luck.
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1364259_tn?1298664781
I haven't talked to them yet about it, my next appt. is soon and will be telling them about spasms then. they put me on painkillers before they diagnosed me with Fibro...they were still trying to figure out what was wrong..it all started after the tooth was pulled and I had a headch that never went away for months....they diagnosed me with the Trigeminal Neuralgia and Migraine...had bad reaction which caused a pseudo lyphoma and was put on steroids to counter act that twice then reaction from gabapenten and another load of steroids and the and the pain killers came because they were trying to find out what else was wrong ..came in and couldn't open my hands and pain everywhere so they started other tests and more doctors and they confirmed the Fibro last month so they are taking me off pain meds. Unfortunately the spasms have gotten worse in my back and colon so when I see thme  I'm hoping they will be able to find the cause ..going for colonoscopy in 2 weeks.
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Avatar_f_tn
I can't speak to medication interactions, but I was diagnosed with IBS and GERD, both of which cleared up when I went on a gluten-free diet for celiac, which was an underlying condition; my fatigue also improves considerably on a gluten-free diet.  I then saw an allergist and had blood and scratch tests that came up positive for various foods; if I avoid the foods that I react to, my digestive system is a lot happier, my fibro flareups are reduced, and my migraines are MUCH more under control. I now find it very surprising that US doctors diagnosing IBS do not immediately screen for celiac disease, which is quite common in the US yet often undiagnosed.

You can get a blood test for celiac, though the gold standard diagnosis is a biopsy, and you must be actively eating gluten to test positive on either of those, so make sure you are eating wheat/gluten as normal prior to getting screened.  (The antibodies/flattened vilii can clear up in as little as two weeks, though they usually take longer than that to fully heal.) D3 deficiency is a symptom of autoimmune disorders like Hashimoto's thyroiditis or celiac disease, so ruling out celiac disease might be helpful for your GI symptoms and even your fatigue and pain. Ruling out Hashimoto's could help the fatigue and pain.

Autoimmune disorders, fibromyalgia, and migraine can all be triggered by stress.  Once Hashimoto's and celiac start up, they do not go away but must be managed, usually with monitoring and thyroid supplementation for Hashimoto's, and with a strict gluten-free diet for celiac.  Therefore, ruling those in or out can make a big difference to your quality of life.  A gluten-free diet is restrictive, but it makes such a huge difference to my quality of life that I would never go back.  As well, the thyroid checkups and supplementation have been a small price to pay for being able to get out of bed for at least part of the day; if my thyroid goes hypo I can't do anything at all.

Definitely pursue the infected tooth as well, but that's what sprang to mind for me because of D3's link with autoimmunes, and all of the GI symptoms.

I hope they figure out what is going wrong and a mix of meds that will help!
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1364259_tn?1298664781
will defnitely look into it .....am kinda out of it right now....spent half my night in emergency bad chest pains so now its a stress test tomorrow  lol they have 3 drs on my case 2 things diagnosed and its almost been a year now ...lol...think the stress test is gonna last about 10 minutes before I fall over  lol  I was perfectly healthy too  and these GI things that are starting to happen are making life any easier getting so I don't want to eat anymore and I am really going to have a long talk with my Rhuemy Dr. next week when i see her.  

Thanks!  
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Avatar_f_tn
If you are on the pain pills and want to stay on them, sometimes it's best to not complain to the doctor so much. I've found that doing my own research and just using my doctor for meds is what is working for me.

You might try looking into diet and nutrition along with vitamins and other supplements to try and help.

Really all doctors will do is switch you from med to med, but on our own we can try so many other things - yoga, acupuncture, meditating, biofeedback, nutrition therapy, juicing, energy work ( like reiki )... The list goes on and on! So maybe use your doctor for the pain meds and then find a holistic doctor to help with the alt. stuff...

Best of Luck!
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London, ON