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Avatar universal

Struggling

.Hello,
   I am new to this and hope someone can at least relate to what I am experiencing and maybe get some much needed advise. I have tried posting in the neurology forum without any comments.
    I'll try to make this long story as short as possible. In December had 2 episodes in the same night of getting extrememly dizzy and passing out. The 2nd time I fell and hit my head, obviously had a concussion. 17 years ago, i got dizzy and passed out, no concussion. Back then I was dx with MS even tho I never had a lumbar puncture or any neurological testing.
       This time everyone has been focused on the concussion. I ( for the past 7 months) have had chronic headaches, dizziness everyday, numbness in hands, weakness, arms and legs, electric shock feeling that shoots through them, extemely tired, forgetful, blurry vision, i sometimes see things out the corner of my eyes that isn't there. At times, I don't have the strength to hold anything, i drop things, can't snap my fingers now..
        I have had a Ct of head, some white matter changes, tho i was told they don't mean anything. I had a tilt table test, mri of head, evoked potentials, and labs. Besides the white matter changes my Vitamin D  level is 19, which is very low.
         I am now gong to Cleveland Clinic, no other doc would look at all these symptoms. They are concerned and trying to get an MRI of cerivcal spine authorized. For some reason the first doc didn't think that was neccesary. This doc things something is going on, but not sure yet.
         I was tried on Gabapentin and took for a few months. I took my self off of it, i don't like how it makes me feel. I work full time doing surgery scheduling, and it's hard to concentrate and get through the day. I am no good after 1:00 pm, I am really tired by then and makes for a LONG afternoon.

         The Dr. thinks it could be MS ( but not real sure yet),or fibromyalgia,  she won't tell me much until i get the MRI. I am to try Cymbalta, but of course insurance hasn't authorized that either.

  Any comments, suggestions. ideas would be most helpful. My poor husband is getting tired of me complaining.

Thank you and sorry to ramble on .
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Avatar universal
I have researched alot about the Vit D defiency and with no doubt it's a factor to some of my symptoms, but the Doc still believes theres something else  under lying thats why she ordered the MRI of cervial spine.

Hoping to get some meds soon, the insurance still hasn't authorized it

Helpful - 0
Avatar universal
Thank you for your concern, yes, I do live about an hour away from The Cleveland Clinic for  which I am grateful. They at least listen and do what they can to help.
I'm sorry you are uable to seek some help, it's very frustrating as you well know.

Take Care and hope you get some relief
Helpful - 0
1530171 tn?1448129593
Hi Juneau.
You should not get to far ahead with any investigations until you resolve the vitamin D deficiency, because the entire body has numerous vitamin D receptors!
The body cannot metabolize calcium properly, unless you have adequate levels of vit. D.
Did you know that deficiency in vitamin D leads to vitamin B12 and B-complex deficiency as low vitamin D can affect the G/I system and its ability to absorb and assimilate certain nutrients and vitamins?
Also your D3 levels (vit­a­min D 25OH test) should be about 50- 60ng/ml
Memory and other neurological issues, are indirectly associated with low vitamin D, which by the way affects over 3000 genes!
The implications of low D3 are overwhelming.

-- Problems with Vitamin D absorption, assimilation & resistance to vit D:

*General Inflammation and G/I inflammation(Very common with low thyroid sufferers) or Leaky Gut Syndrome.
* Low fat diet or issues with fat digestion also relating to not enough cholesterol for hormonal AND vitamin D synthesis ( vit D is fat soluble)
* Obesity
* certain drugs
* high cortisol
* Vitamin D Receptor (VDR) gene mutation  ( genetic /autoimmune) or decreased VDR expression, common with hypothyroid & Hashimoto's sufferers also.
In this case need increased levels of D, above and beyond normal serum levels, for optimum function.

Let me know if you need more details.

Niko
Helpful - 0
Avatar universal
It sounds like you are having a bad time.  I am sorry  you are going through so much pain.  I wish I had an answer.  I have been sick for about four years and I have tried a lot of meds and snake oil.  I wish I knew.   I hope you live in an urban area where you can get some help.  I happen to live in the country and there are no alternative doctors here to speak of.   Alice
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