I don't have CFS but I do have fibro and it does make you extremely tired. Fibro often makes you unable to reach the deeper, restorative levels of sleep so even if you do sleep, you never feel rested. These days if I get 4 hours I am amazed, and I am a person that used to regularly need 9 hours to feel really rested and energetic. Most of the time I feel like the walking dead!
Sleep aids, either OTC or prescribed, work for some people. You may have to experiment to find which one works best for you.
Hi gamegrrl.....I too have fibro ...I was diagnosed about a year ago.....It is true fibro can make you very tired....I now have a cpap I use at nite..I sleep alittle better....I find that pacing is very important and not over doing it....I hope you find some sleep aid that works for you....Sleep is very important to us fibro suffers....take care
I had Chronic Fatigue Syndrome before being diagnosed with Fibromyalgia and I can tell you that CFS is worse. Maybe not worse, but a different kind of tired. It's a bone deep, from the inside kind of tired, even if you sleep fine, you wake up tired, no matter what. You want to sleep all the time, that is CFS. You can see your doctor and request a blood test to check for that. Sleep is very important like the others said and do talk to your doctor about that also!
I just got diagnosed with FM today but actually i think i have CFS (my doc said it coudl be one or both as they cross over so much.) My pain is not as bad as a lot of the posts i'm reading, but the tiredness is the way Ivfrogs describes it and much more overpowering than the aches and pains. my eyes burn all day, it takes effort just to breathe let alone move around, i can do an hour or so of activity and i need to rest for the rest of the day. i've had this fatigue for about 10 years. was just nice to hear it validated by a doctor. i think it's common to have both FM and CFS as the symptoms crossover...
There is no blood test for fibro or CFS. I don't know what ivfrog is talking about, maybe something else. I have fibro and lupus. I am tired all the time. Wat does help is a B12 shot (unless it's really bad then I dont ven get energy from that) also taking B12 daily in liquid form (I buy it from Smoothie King if you have one there) also believe it or not if I push myself to stretch and do a little exercise I actually get more energy. I just have to be careful not to overdo because then I am mor etired. It's all a balancing game. Now if you feel you have other symptoms that might be autoimmune you can get an ANA blood test done. Many people with autoimmune diseases also have fibro.
Hope that helped some. I am sorry for the bad typing, I am so tired. Going for a B12 shot and to see if I'm anemic tomorrow. Oh that's the other thing. Have the doctor check your blood, anemia is part of it all and that will make you more tired. Or you could just try taking an iron supplement.
Thanks for the reply. I guess I didn't say that I am female, 64, and have been diagnosed with Fibro for about 10 years. I didn't thinks there was a specific blood test for CFS either, at least other that those checking for anemia, arthritis, etc. I do get a B 12 drop from a compounded druggist here in town, my Fibro doc ordered it. I also take a D3 since I live in Michigan and we don't get a lot of sunshine up here in the winter. Some days aren't too bad, but some are real doozies. It's so hard not doing the things that I used to do and enjoy.
I'm having my physical next month and will get bood tests done then. Thanks for the info and support.
And may God bless you also.
Actually, it was a blood test for the Epstein Barr Virus and I tested positive and from there we concluded that yes, I do have CFS. In addition, EBV causes other health issues and I have developed 2 out of the 6 already. I also tested positive on my ANA test but further testing couldn't reveal why.
I would suggest both of those tests and your doctor should know what they are. Good luck!!
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