Hi Everyone. I fell upon this forum whilst researching vit d for swine flu for my support group. I have both CFS and Fibro for 20+ yrs and have been taking high doses of vit d for a while now.I have recently up'd my dose again to 2000iu per day as reasearch is suggesting it is the vitamin to take to avoid swine flu.. Does anyone here take high doses of vit d and does everyone know about Vit D for swine flu?
If anyones interested in the info i have from my research i'd be happy to send on by email.. You can email me at ***@****
Just to inform you: medhelp blocks email addresses. I take high doses of vitamin D. I am awaiting my most recent lab results to see where my levels are at. The first time my vitamin D was tested, my level was so low that it was nearly non-existent. The last time it was checked, the level was actually close to normal, but that was some time ago. So, my doctor agreed that it was time to check the level of vitamin D. I take more than 2,000 iu myself, because I had started out with such a low level with my first vitamin D test. I'm also extremely sensitive to the sun and unable to get the amount of sun exposure needed to optimize my vitamin D levels.
I learned recently from the Vitamin D Council's newsletter that magnesium is necessary to synthesize vitamin D. I have seen a lot of information on the forum about how we need to supplement our magnesium as a treatment for FMS/CFS. And, most of us have had to deal with vitamin D deficiencies or imbalances.
The problem for us is that they don't check Vitamin 'D' levels in uk, so there's noway of knowing whether we're defficient or not, Speaking for myself my fibro & cfs improved considerably once i started on Vitamin 'D' Living in Scotland uk we don't see much of the sun at all, Your right about having to suppliment with magnesium, you also have to suppliment with calcium, Can i ask Do you take high doses of Vit 'C' also?
If i can't show the link to my email can i post the link to my support group where all my findings are posted also..?
I'd be interested to know if anyone suppliments with any other vitamins/minerals and prescription drugs and what you find works best for you?
Yes, I take several supplements. I've been told to take each one specifically that I'm taking, too. My neurologist told me to take my magnesium and calcium at separate times of the day, because taking them together defeats the purpose of taking either one.
I take 5,000 to 6,000 iu of vitamin D3 everyday just to stay in the normal range. I am also taking 1,000 to 2,000 mg of vitamin C everyday. I was told that vitamin C is necessary to synthesize the iron supplement that I take. Since my iron was low to begin with, I was told to take high doses for a while, but now I'm just taking the RDA of iron. I take a chelated iron. All other iron supplements really upset my stomach.
I am taking high doses of B2, because that's what my neurologist told me to take along with the magnesium and feverfew for my migraines. I am taking an RDA of vitamin K1 and B12.
For the neuropathy I am using Alpha Lipoic Acid, which really does help and works fast. It's also inexpensive. I still get the neuropathy, but I stopped getting those debilitating and painful waves when I use this supplement. I'm also using chlorella, digestive enzymes, probiotics, Oregon grape and cascara sagrada just to deal with the IBS issues.
I just learned that the chlorella is also good for those of us with sulfite allergies. And, it's good for copper imbalance. I don't have any idea if I have a copper deficiency or imbalance, but I know that the chlorella does help with the IBS, and if it helps with the sulfite issue that's all the better. Plus, it's full of nutrients and trace minerals that I probably don't get otherwise, since I have a whole laundry list of food sensitivities.
I was told about one other supplement to try for the peripheral neuropathy that I have yet to try. It's called Acetyl L Carnitine. It's a little on the expensive side, but swansonvitaminsdotcom has some for about half the cost of what is found in the discount stores here is the states. It comes in 500 mg and 750 mg doses. It was suggested to take the 750 mg doses for the peripheral neuropathy. My doctor is fine with the Alpha Lipoic Acid, but I haven't mentioned this Acetyl L Carnitine yet. I anticipate it being just fine, too, but since I see the neurologist before I'll see my other doctors, I'll ask him what he thinks. Hopefully, he knows what I'm talking about.
I also just started taking Pau D'Arco, since I just learned that it's supposed to be good for Candidas. I thought I would mention that since Candidas is another big issue for people on this forum. I haven't had any ill effects from it. I hope it actually does something for me, though.
I've just started taking vitamin d... i know they say it takes a while to hit your system but between that and the sun ive been getting it seems to be helping... I've heard about the influenza link... you have Vitamin d receptors in your lungs and eipithelial cells that activate AMP (anti microbial peptide) genes. Technically its a hormone and not a vitamin. Also try Kefir... its a probiotic. I tried a bunch of probiotics when I first got CFS. Lactospore, Activia, BB-12, Bio Salud, YoPlus, ... I had some good improvement....and then I found store bought Kefir. Kefir packs a real punch. I found that probiotics really helped my cognitive levels and anxiety on the cfs, but the kefir really took a dent out of my symptoms. The real interesting thing with the Kefir is that you're getting about 5 trillion CFU per serving (i drink a gallon a day had SERIOUS improvement). I started making my own kefir at home with grains and its even stronger. I would also try N-A-C (n-acetyl-cysteine) ... its very cheap here and like lipoic acid raises glutathione levels for a real nice immune boost (its also been tested on Previous lethal H1N1 flu strains in mice and is actually synergistic with tamiflu if taken together). Thats my swine flu regimen. -KEFIR, NAC, VIT D-
It would be worthwhile to also research symptoms of too much vit D. A good friend of mine was placed on prescription strength vit. D. She began to have psycosis, depression and anger issues. She normally has none of these issues. It ended up, her vit D level was toxic.
I too am on a vit D supplement along with a large list of other supplements.
According to the Vitamin D council you really only see side effects with completely activated vitamin d that comes in prescriptions like calcitrol (spelling?). Supplemental vitamin d is safe in daily dosages up to 10,000 IU. The reason for this (as is explained), is that excess supplemental vitamin d (which is not calcitrol) is stored in the liver and your body just sits on it. CAlicitrol is already activated and its like taking a VERY powerful hormone. Its kinda similar to the difference between taking beta carotene and retinol (two common forms of vitamin A). Retinol is much more active than beta carotene. Retinol over dose (certain types of liver) can kill you, but over dose on beta coratene usually isn't even fatal, but just changes your skin tone (also it take TONS of beta carotene to hurt you, compared to smaller dosages of retinol). The difference is retinol, like calcitrol is activated. You should definitely watch your vitamin a levels, according to the vitamin d council (Dr. CAnnell) vitamin a interferes with vitamin d. I didn't realize it until I read his website, but I was getting Vitamin a toxicity (and probably that was blocking a good chunk of the vit d I was getting). If you go to vitamindcouncil.org, they have a TON of nifty information about the myriad of health benefits of vit D. Somewhere in there they discuss getting the right balance. If you're like me and taking multivitamins, watch out that it doesn't get most of the VIt A from RETINOL. I was getting it from two sources and it was making me sick and irritable on top of everything else. Now that I canned the Vit A to a reasonable level, I feel like my hours in the Sun are even better. I'm about to start some Vit D supplementation on top of it, to level out around 5,000 IU a day, which is not recommended as a good daily level by many doctors.
Apparently all primates have evolved special genes in their lungs that that respond to Vit D and it activates antimicrobial peptide sequences. This was probably an adaptive advantage - our posture forces mucus into our lungs putting us at an increase risk for respiratory infections, unlike most other animals. The vit D mutation found only in primates gives us the ability to upregulate our immune response with a commonly available vitamin D ... except that in modern society its not as common as it used to be. We used to run around naked baking in the sun. Now we huddle underneath cloths and we don't get the vitamin that our lungs, liver, kidneys, and brains are evolved to need. Vit D activates 200 different genes in our body, and a day in the sun can give you about 50,000 IU. So daily supplementation usually is very small compared to what we can handle and sometimes do handle when we spend a day outside. The vit d in milk, about 100iu, is almost nothing. You either need the sun or supplement.
You did a great job in reiterating the information that I've read on both Dr. Mercola's site and the Vitamin D Council's site. Your post was well-written and you did a better job than I was able to do. Your post about vitamin A toxicity is something I had forgotten about. This is why both Dr. Mercola and the Vitamin D Council do not recommend using cod liver oil as a source of vitamin D.
There is very little danger for most of us to get too high of vitamin D levels, since most of us are low on vitamin D. What you said about 5,000 iu of vitamin D is now even what my PCP has started recommending. She works in an office where graduates from the natural health university can do their internships. So, she is aware of what the naturopathic interns suggest to her patients. I'm really grateful that she works in a clinic that actually supports an integrative medicine approach. They even offer acupuncture now in the evenings on a sliding fee schedule. This is the only way I can afford acupuncture, which has already helped my FMS and bursitis.
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