You may have orthostatic hypotension and/or orthostatic tachycardia. Both are forms of dysautonomia. These are very common in CFS/FMS and can be quite disabling. Also not recognizable to many doctors, unfortunately. There is a Medhelp forum for Dysautonomia with lots of good information and support.
Take care,
Laura
Please check your thyroids
I have alot of what you have described. But also have fibro.. What cardio doc. was cardiomyopathy and tachacardia and low potsium (however it's spelled). The fibro. damages one of the valves wich makes your pulse rate climb. And the potasium is what was makeing me feel faint when i got up. Wich also caused pain and therefore caused pulse to climb rite back up. Mine was avg. 170 standing with pain and about 100 when sitting. Doc put me on alpha blocker,beta blocker and potasium. Now i avg. about 85 to 100 all the time with alot less pain. And fainting spells are few and far between. Hope this might help,let us know!
i'm having a glucose tolerance test tomorrow and hoping for maybe some answer's. The cardioligist really has no idea why my I'm suffering frim tachycardia i seem to be a medical mystry not sure I like that idea lol
I had my 24 hour ECG tracing done now just waiting to see if there is something els makeing me feel as bad as I do when I'm not runing on adreniline from my anxiety. Could take up to 2 weeks for my dr to recieve the report about my results. Now I just have to get threw 2 weeks with out crashing to bad to soon or I the next time I might have to ring for ambulance just incase it not just anxiety. Problem with that is last time I was out of to much and alone and did not think to call for ambulance. I need to try to stay alert enough to call the ambulance if I get that bad again.
I have looked at orthostatic hypertension while resershing to see if something els can be contributing to how bad I feel when it gets real bad.
I've finally made everything clear with my dr and she agrees with my and my partner that my heart rate is getting to low and too high with little reason. So she has refured me to the hospital to have a holter monitor for 24 hour.
now I just have to wait for the hospital and then the results and go from there.
I have this thought that my anxiety has been masking a heart problem for years and now that I'm getting better it becomeing a problem cause the adeniline is no longer in my system all the time which is what might be causeing me to crash physically after exercise. Exercise uses adreniline which is meant to good for people with anxiety. The dr agrees that it a posabilty and that test do need to done now.So I feel better about that now I just have to face the anxiety related to extra tests and attenstion. But I need to know why, this is not first time I have had this problem is every time I try to get more active eg start to jog finally on tread mill. In the past I gave up thinking I was just panicing.
Hopfull thay fine something that easy to control and I'll be able to feel better.
Have you had a stress test done by a cardiologist? Sounds like you may need one.
Have you looked into orthostatic hypotension?
My son suffers from that.
thank you....
I'm going back to my dr to try again to see if I can get her to understand how bad I feel and felt that say I swear I nearly passed out for what eva reason. It my fault partly I think cause of my anxiety I'm so scared of talking to Dr's been scared since I was kids I grew up with a mum that was always at the Dr and yet she called me the hypercondract when I said I had headach or pain ect. My anxiety is worse with female Dr and authoratity figures so I freeze up and dont manage to alway express how bad things are. I dont like to question a Dr's oppinion incase I'm some how make things worse. if I do question there opinion latly I get even more scareds and the anxiety really kicks in. The funny thing is I can talk my phycologist better than my general health Dr, partly because I know I have time to do the ramble first then he picks the information for me focus on I feel like I have try to be quick with my dr to the point.
I'm going back today to let her know how the sleeping meds are working and making me feel, and how the pain meds are helping with my pain. Then hopfully I can also ask about how to manage my asthma better in case thats whats also impacting my energy when I walk. I wanted to ask about Fibromyalgia as my mum has prety much been diagnoised with it and I have the same symtoms as my mum prety much yet I've tryed so hard to pretend I dont specially to my mum as she make me feel like I'm lieing. I still want to know about the stress test speical since I got pains yesterday down my left arm after feeling the fluttering feeling in my chest and my pulse went to 65 when sitting I had not stood up or layed down or anything and my sitting pulse has been around 90 since I got my watch. This is the second time since I got the watch that my pulse did this after the feeling but the first time I noticed my left arm hurting but I get pains in my left arm alot and pains down my left side over the last fue year I dont really think i get pain in my chest but I get so many pains that I foget when but if remember how my partner reacted a fue time he looked concerned about where I was getting the pain but I alway told him I'll be fine cause I brush of the pain as anxiety of just general pain's. What found interesting yesterday was I had taken higher strength pain meds and the seriously bad pain in my legs had prety much gone away but there very mild pain in my left arm, which was about hour after the fluttering feeling and the drop in pulse with no real change in behaviour(eg stand. or lay) I ignored it due to telling my self it was just in my head or was just a general pain, but then later that night the pain came back and was worse and when all way from just below my shoulder kind at the back/side of my arm and went all the way to my little finger from time to time, but mostly it stopped around my elbo. I'm not good with my memory these day but since the sleeping meds are helping me sleep I better sence of clarity in my head. I worried this will seem like I adding symtom to get my way because I think she think I'm hyperchonract cause of my anxiety around her. My history with Dr's, mainly one for 12 year, but I did see any Dr when I just thought I had a general infection. Shows I dont complain this is the second time I really pushed for something to be diagnoised or rulled out and the first time I was diagnoised with OCD, GAD, depression with in 6 month of seeing my last phycologist who also move on me. I feel prety good general most days anxiety wise now and thats why I'm not fully convinced these symptoms are just all related to my mental illness lables.
anyway thank you for you oppinion I hope it help to push my own fear of just putting all my syptoms out there for the Dr to ***** and I hope my memeoy does not make it hard once I'm in the office with her lol. I even wrote things down last time but was so scared i could not focus on what I wrote to tell her and my wroting is bad she would have never read plus some of really was a bit obsessive but I also know I dont lie I cant even read a non fiction story for my self and I struggle to read them my kids lol always prety much my stress level use to high and I get anxious about it. It crazy I know kids love stories and I love playing with kids and having fun with them but when ask to read them a story instant anxiety and not just when I was doing childcare work also as home. These days I get my kids to help me hold the book, but I still stuggle to concentrate due to some anxiety/OCD issues I'm prety sure cause I dont struggle to read when I'm on line lol. My memory never makes me repeat a line very often unless its a trigger.
I rambled again sorry.
thank you
Maybe you should get a second opinion from a Dr. You sound like you need an active treadmill test. Your heart rate is dangerously high with exercise. It sounds like something going on with your blood pressure. Sometimes people who have been in bed a long time need to sit up on edge of bed slowly, wait a coulple of mins., and then slowly stand up to prevent dizziness and even fainting. Sounds like you need a more extensive cardiovascular exam.