There isn't even a category for chronic myofascial pain. I am new here. Where do people with CMP type? I have both so I am here. This is not tender points. I have been researching online almost every day for two years. I have been to so many specialists trying to rule out every disease known to man. the neurologist is not done with me as she understands that there is contraction of the muscles and believes it to be some sort of dystonia. More tests. I KNOW WHAT IS WRONG and its mind blowing. The second I read the discription it was like my whole entire world changed instantly. Someone did it. They put it into words. Now I need to find the person who is educated in this. My trigger points are off the wall. Two hours of sleep per night if I am lucky this past week. Using the Fibromyalgia and chronic myofasciaql pain manuel bought yesterday evening (starlanyl & Copeland) has changed my life forever and ever and it hasn't even been 24 hrs with the book. (If you don't have this book and have FMS, CMP or both I suggest you go out and find a copy) I have almost every trigger point and every single diagnosing symtom. Strange strange symtoms that are unheard of. Its liek someone took my medical file and made evry single thing I have ever gone to the doctor for a part of this dignoses. Stange bizarre things. Anyways, please tell me. What health care provider out there studies this stuff. Who can help treat me. The book says its treatable. I want treatment. My GP does not understand it at all. Its like smashing my head against the wall. I need some tips. thanks everyone.
I believe chiropractors, pain management drs. and accupuncturists know how to work with that. Google the symptom and maybe you will get the results you are looking for. Good Luck on your research efforts and pain eased. Sharon
It is a wonderful thing to actually figure out what is going on and just need to find the right doctors to treat it. After having fibro, cfs and cmp since 99 I have learned like you will that finding a good doctor that believes you and knows how to treat you is very very hard. I am fortunate now to have found a pain mangement specialist who has a daughter with fibro and a wife with lupus. This man is so understanding and he keeps up to date with treatments. I get the trigggerpoint injections everytimes the pain gets severe enough to have add more intense measures to the treatment. I suggest that you call your local physical therapy offices and ask them the names of any doctors they know who treat fibro. These doctors will treat all kinds of trigger points including cmp. Don't be dissapointed if you have to go through more than one. I also call a gp"s office and ask the nurse how the doctor feels about fibro. before I ever go the first time. Whether he feels it is a catch all for not knowing what is wrong or if he actually realizes it is an illness. If you have been tested for all the other illness and know that they are not the problem and a new doctor starts with lets start over and really see what is wrong it is time to find another doctor. If you haven't been tested for other things please do because if it is something else that can be treated easier maybe they can find a cure for what you have instead of living with it till a cure is found. Good luck and I hope this helps some at least. It is how I have found good doctors. Lin
thanks for that great reply. It was really nice to hear someone speak who understands trigger point pain. My mother and aunt have both been diagnosed with fibro. My grandmother thinks that something happened withher disc during delivery and she was messed up since. She has tones of things on the list in the manual. I just hope that treating these trigger points can help me and then I know my family would try it. I was raised by such good people and I don't understand how we can all be in chronic pain and no one connects the dots. We are a medical family of doctors and nurses and everyone is stumped which confuses me because they were all health professionals. Fibromyalgia is so common it seems, but I guess people have a reason for every symptoms. All the women on my mother's side except my grandmother die around 60 from strokes. My mother has already lost her vision due to a clot. Has anyone herd of this? My mom is in her 50's and I am terrified. She cannot get her blood pressure controlled.Does anyone have this problem with blood pressure and a solution maybe? My mom can't stand up right now and there is no solution that I know of.
OH, Nik........I can see how worried you're over your mom's blood pressure. I sure hope and pray that she will find a medicine that helps her bp. Is mom's blood clot in her brain?
I will look into some site if I can find possible answers for you.
There're so many myterious symptoms out there. I just watched a program about a little girl who vomited and coughed so often, specially at night and no doctors seemed to find the cause, from allergist, pediatrician, to neurologist. Two years later, her mom found out about a neurologist and brought her daughter in. Tests afters tests, the doctor find out this little girl had epilipsey (sp?) Truth was, no one relating vomit and cough to the illness.
What I'm trying to say is, sometimes, even with medical professionals.......they don't always have all the answers and look into the right area of your problems. It is really up to us to be deligent in educating ourselves and help our doctors to help us...and you did just that. You go, Nik!!!
There're many treatments options that are benefitial to fibro patients to be able to get yourself under the care of a real understanding, compassionate, and capable professional is another matter. Make sense?
hi. i have myfascial pain syndrome. had it my entire life. two weeks ago i went to have myfascial release by someone trained by barnes. see: http://www.myofascialrelease.com/home.asp. it was a life changer!!!!! it was exciting and overwhelming at the same time. i had to go home after the first treatment and mellow myself out and try to get my brain around what happened. it's very passive. massage therapists have tried the 'deep tissue' route with their elbows. not only was it painful but it made me worse! i have a thera cane (http://www.theracane.com/) that i use to gently massage the trigger point so they release. i also go to an integrative med doc in california who treats many fibro patients. i take medical food for fibro. i can't say for sure if that's made a huge difference for me, but the myofascial release was unbelievable. the myofascial work also has helped repattern my nervous system from being partially parylyzed from a herniated disc. the practitioner is basically telling my nervous systme how to work correctly and i've started to fell things coming back- never thought i would see the day. i have also done a lot of work with biomechanics for a back injury and have done a lot of work on my posture. i was a chronic sloucher & walked like a duck. it's amazing how much bad posture can mess up your body. i really feel that the fascial release is the last leg in a very long journey of chronic pain. let me know if you have questions. hope this helps. kimpton
Thank You for your post kimpton. My neurologist is not so sure that my only problem is fibromyalgia. I did have a severe head injury 1.5 years ago. It's just confusing because now I have this triger point pain as well. I am going to read through your post a few times when my mind feels a little clearer. My doctor put me on amytripteline and 60mg of baclofen for now. I've been on baclofen before, but I often stop taking he amytriptiline because it does something to my eyes, I have trouble reading and I get slightly nausious and get this head ache in my left eyebrow that never ever goes away. My sensitivities to light get so strong that I need to always wear sunglasses and I can't bear to have the TV on. Even the air planes outside my house sound really really loud. I don't know about my pain, but I have been able to sleep a little more. that trigger point therapy you mentioned will be so useful to me and probably doesn't have all these side effects. I will look into that therapy in my city right now.
hi. i feel for you. what i believe is that the nervous system finds a new way to function when it's injured. and, in doing so it functions in ways that it was not designed to. i think this is where the random symtoms/pain comes from that's hard to diagnose. this school of thought is a little alternative. myofascial repatterns the nervous system to work as it was intended to in a very passive way. take care & hang in there! kimpton
I have spent a fortune with acupuncturists, chiropractors, massage therapists, etc. Finally, I found a pain management doctor who referred me to a group of phyiotherapists in Birmingham, Alabama, Eskridge and White in Homewood on Hy 31. What an awakening!!!! Painful, yes, but well worth it. I now have more motion in my neck than I have had in 25 years. I finally found someone who can perform myofascial release. My arms, shoulders, back.....all relieved of the muscle/nerve entrapment. I was put on a program of exercises to corrrect my poor posture, esp forward head posture. Before visiting this group, I had run across a book entitled Pain Erasure The Bonnie Prudden Way. Of course, my massage therapis pooh-poohed it (at $70/hr weekly why wouldn't he?). I started trying some of this trigger point therapy on myself and found that it worked. Then I started researching and read about Barnes but could find no one in my area (Mobile, Al) who was trained by him. I have a friend who started out with chronic fatigue syndrome and has ended up in wheelchair drinking methadone with RSD. So I think it is smart of you to dig until you find someone who can help you with this pain. It is not "normal" or "just part of the disorder" as I was told many times. Have you read any of Dr. Teitelbaum's theory on myofascial pain? He has a web site that has been ery helpful to me.
sounds like Fibro to me! classic that you have had every test known to man and they all say you are healthy but you are miserable...classic for Fibro. The one poster mentioned the Myofacial pain release!! It is the best best best thing for this condition. As for your Dr........just find one that is with it! There is no excuse anymore for a Dr to not acknowledge this illness............where you live can have some bearing on you Drs however I was diagnosed in a tiny town in the mountains of NC a good 25 years ago by a enlightened Dr for his time! You have the "Bible" for Fibro....please understand that YOU really have to advocate for yourself and research and make your own decisions about your care. Antidepressants can help , well alot of meds can help......but if you are like me and many other Fibro's you will be highly sensitive to meds and will only require a fraction of the amount the prescribe.........and many you won't tollerate at all. Look into a unit called Alpha Stim, some Physical Therapist rent them out........they are a med free way to treat pain......they have ear clips , pads and little stick things so there are three ways to use it..........IT IS AMAZING....Another wonderful thing is a book called FOOD CURE .....really really good...well.........good luck. You will find if you do some of the things you learn.....you will have good spells.......Oh , I forgot........you mentioned a car wreck was it? Fibro often manifests for the first time after a trauma be it physical or emotional.......did you know that? I have kindof skipped through the posts so excuse me please if I am being redundant!! Take Care , Cathy
hi i'm very new to this site and this condition, mine started with an MVA my mri said i have artheritis mild a pinched nerve muscle tendon in my shoulder i have 2 tear in my shoulder superspinatis and infaspinatis? its in the back of my shoulder , i was in the MVA 2/08 in FLA felt ok just my arm ached when it rained but i was just in an MVA soo i came back to ny in march cold snow and more and i turned into an old lady fast at 43 my first dx was move to fla, dx mri damage dx a tens unit a godsend! went to chiro still go, go to massage therapy aqua therapy 3 x week so thats 6 times a week i'm in a therapy now dr just ordered soma 350 mg i take it at night live by tens and therapy by day i had 3 days no problem stopped therapy on a mini vacation and its BACK , my myofacial pain was concurred by my GP CHIRO orthopedist you can feel the knotts and lumps my arm is cold and aches like a toothache i use biofreeze rub absorbin jr massage and its not an ooh ahh massage its an OWEeeeeeeeee WOWeee and i become a saint OH MOTHER MARY and lamaze breathing so my spouse says you don't moan and groan ooh ahhh you complain and i said DUH this is excruciating but the spasms go for a while and i feel human i applied for SSD still in the process and then i ended up with a dangerously low VIT D due to thyroid and so i would advise get your D cked my MFP simmered down since i started therapeutic synthroid for goitors and vit D 3 the sun one, i also have CFS FIBRO and hypo symptoms with normal levels and thryoid has alot to do with our bodys function so i'm a mixed bag, and now i hve this insomnia and like RLS or is it mps? welcome to my world of hypochondriac via family yet dr and test prove my symptoms i hope SSD agrees
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