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Why are there so many doctors who do not beleive in fibromyalgia?
why are there so many doctors who do not believe in fibromyalgia??
cause it doesnt show on tests and cause they could never imagine such a ghastly condition.
if you find a good dr, an autoimmune dysfunction will show up on tests - but then, they won't think it can cause such pain
if you find a good dr, an autoimmune dysfunction will show up on tests - but then, they won't think it can cause such pain
i read somewhere that the standard method of 11 out of 18 tender points was never intended to be used as a diagnostic criteria--not sure how it ended up that way. fortunately, i have read a number of articles that acknowledge that some people with fibromyalgia don't have 11 tender points---some have less.
i have been to a rheumy and a neurologist both----and neither one of them tested teh 18 tender points---and i went to them specifically for fibromyalgia. i have read most of the symptoms and it is like i wrote the book on symptoms myself.---ok, there are some of the symptoms i don't have---and i have some symptoms that probably aren't listed. i have no doubt that i have fibro even though the neuro only said i have a "touch" of it and the rheumy told me that if i had fibro i shouldn't be on pain meds?????? my orthoped, has chronic pain listed in my chart--but at least he realizez i really am in pain and is willing to prescribe meds for it.
nikodicreta, could you message me and tell me about your natural pain remedy----i'm not sure if i know how to do a private message on this board.
i have been to a rheumy and a neurologist both----and neither one of them tested teh 18 tender points---and i went to them specifically for fibromyalgia. i have read most of the symptoms and it is like i wrote the book on symptoms myself.---ok, there are some of the symptoms i don't have---and i have some symptoms that probably aren't listed. i have no doubt that i have fibro even though the neuro only said i have a "touch" of it and the rheumy told me that if i had fibro i shouldn't be on pain meds?????? my orthoped, has chronic pain listed in my chart--but at least he realizez i really am in pain and is willing to prescribe meds for it.
nikodicreta, could you message me and tell me about your natural pain remedy----i'm not sure if i know how to do a private message on this board.
Hey zacsmommy177.
This is a complex (medically) condition. It has been a huge challenge, not only for the sufferers, but the Health Professionals as well, as far as diagnosing and treating FMS
goes.
Also there's the issue with pathogenic mycoplasmas ( 99% of FMS cases have a pathogenic mycoplasma infection as a cause , according to the research).
A lot of controversy with this and the medical community. The vast majority
of Doctors do not have a clue, regarding mycoplasmas and FMS.
The diagnostic protocol used up to now, is inadequate and a total disaster to my humble opinion.
I am so glad that the standard diagnostic method (11 out of 18 tender point test) is
being reviewed and there going to be some drastic changes- soon according to the health authorities and not soon enough for the sufferers, as such implementations usually take
years!
So for the few that can afford proper tests and treatment here are the recommendations,
From a previous post of mine in layman's terms.
Proper Diagnostic Testing for FMS
"-You can ask your doctor to give you a 24-hour Holter ECG. You know, of course, that an electrocardiogram is a measure of your heartbeat and shows what is going on in the right ventricle, the left ventricle and so on. Tests show that 100% of patients with chronic fatigue syndrome and fibromyalgia have an irregular heartbeat. At various periods during the 24 hours, the heart, instead of working happily away going "bump-BUMP, bump-BUMP", every now and again goes "buhbuhbuhbuhbubbuhbuhbuhbuh". The T-wave (the waves are called P, Q, R, S and T) is normally a peak, and then the wave levels off and starts with the P-wave again. In chronic fatigue and fibromyalgia patients, the T-wave flattens off, or actually inverts. That means the blood in the left ventricle is not being squeezed up through the aorta and around through the body.
-There is also the blood volume test. The normal range for red cell volume is 25 to 35 ml per kg of body weight. FMS patients have 7-50% less blood than what their body needs to function well. Most doctors do not know this.
-Polymerase Chain Reaction Test should follow the above 2 tests. if positive.
The above tests in conjunction with the tender point test (properly done!) will confirm FMS
Please post here again with your opinions and questions.
Also if you need a natural pain remedy-better than most meds- please message me directly (forum rules) or post at the alternative therapies.
Blessings to all.
Nikodicreta
This is a complex (medically) condition. It has been a huge challenge, not only for the sufferers, but the Health Professionals as well, as far as diagnosing and treating FMS
goes.
Also there's the issue with pathogenic mycoplasmas ( 99% of FMS cases have a pathogenic mycoplasma infection as a cause , according to the research).
A lot of controversy with this and the medical community. The vast majority
of Doctors do not have a clue, regarding mycoplasmas and FMS.
The diagnostic protocol used up to now, is inadequate and a total disaster to my humble opinion.
I am so glad that the standard diagnostic method (11 out of 18 tender point test) is
being reviewed and there going to be some drastic changes- soon according to the health authorities and not soon enough for the sufferers, as such implementations usually take
years!
So for the few that can afford proper tests and treatment here are the recommendations,
From a previous post of mine in layman's terms.
Proper Diagnostic Testing for FMS
"-You can ask your doctor to give you a 24-hour Holter ECG. You know, of course, that an electrocardiogram is a measure of your heartbeat and shows what is going on in the right ventricle, the left ventricle and so on. Tests show that 100% of patients with chronic fatigue syndrome and fibromyalgia have an irregular heartbeat. At various periods during the 24 hours, the heart, instead of working happily away going "bump-BUMP, bump-BUMP", every now and again goes "buhbuhbuhbuhbubbuhbuhbuhbuh". The T-wave (the waves are called P, Q, R, S and T) is normally a peak, and then the wave levels off and starts with the P-wave again. In chronic fatigue and fibromyalgia patients, the T-wave flattens off, or actually inverts. That means the blood in the left ventricle is not being squeezed up through the aorta and around through the body.
-There is also the blood volume test. The normal range for red cell volume is 25 to 35 ml per kg of body weight. FMS patients have 7-50% less blood than what their body needs to function well. Most doctors do not know this.
-Polymerase Chain Reaction Test should follow the above 2 tests. if positive.
The above tests in conjunction with the tender point test (properly done!) will confirm FMS
Please post here again with your opinions and questions.
Also if you need a natural pain remedy-better than most meds- please message me directly (forum rules) or post at the alternative therapies.
Blessings to all.
Nikodicreta
i don't have an official diagnosis of fibromyalgia---at least not more than, "you have a touch of it." that came from the neurologist. but my orthoped is at least willing to acknowledge that i have alot of pain and is willing to treat me---but my medical record just says 'chronic pain".
it could be because it can be so hard to treat and if they acknowledged that it existed----they would have to figure out how to treat you so that you get at least some sort of relief.
I dont know but there are plenty of them out there, just as there are many good doctors who do not only just believe in fm but specialize in it. Because it cant be seen, it must not be?? but the neuroreceptors cause pain stimuli to be over amped.....studies with rats and fibro have actually shown up on MRIs showing what happens. But if the ydont want to call it fibro, then they can call it what my first doctors called it CHRONIC MYOFASCIAL PAIN
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