XMRV is a human retrovirus the Cause of Fibromyalgia and ME/CFS

[dustybrown]

I wasn't sure if anyone was aware of this new groundbreaking research. This could shed light on the cause and perhaps a better treatment method for fibromyalgia.

[lvfrogs]

I agree with you Dusty but I do seem some possibilities in this being a good thing!! Let us hope so, we all need some hope!

[dustybrown]

Hello,
I saw this episode of Dr. Oz yesterday with intrigue as well. I think we all need to exercise some caution with our excitement though. I would hang tight on getting tested at this point. I am waiting myself to make sure that the tests that are performed are the most accurate and reliable. I also want to be sure that I have buy in from my doctor and I'd really like my insurance company to fit some of the bill! This in my mind is a good indicator of acceptance on their end if you ask me.

Also, I am curious to learn more about the virus and see if the studies can be replicated in not only the CFS-ME population, but also with the FM population and healthy individuals. I've got my eyes on this for sure and my hope high!    

[lvfrogs]

I just wanted the Dr. Oz show (well 12 minutes tops) on CFS and the retrovirus. For the short amount of time, it was pretty informative. The only problem if you have CFS and want to get tested, the test cost about $400 and is not covered by insurance. Hopefully, this will change and maybe, finally, we will get some kind of routine test for it. He is supposed to have more info on his website, so will check that out too! Thanks for these links!
Colleen

[karla11173]

i just watched a show about retrovirus and chronic fatigue.  i have fibromyalia and it seems the symptoms are the same.  should i talk to my doctor about it?

[dustybrown]

Thanks for posting that oped article. It was very informational. This story is very fascinating, isn't it???

[friggy]

Here ya go, on the paper of record

http://www.nytimes.com/2009/10/21/opinion/21johnson.html?_r=1&em

[PlateletGal]

Exciting, isn't it ?  I posted a couple of threads about it (check below).

Now we need to pay those physicians who didn't believe in CFS (or how serious CFS is) a visit.  ; ^ )

[dustybrown]

I meant to post these links too:

http://wpinstitute.org/xmrv/xmrv_qa.html

http://chronicfatigue.about.com/b/2009/10/14/fibromyalgiachronic-fatigue-syndrome-retrovirus-possible-treatment-avenues.htm