anyone interested

if anyone is interested in trying to find the key to FMS?If each one of us chose 1 thing  to research,between us we may find something to help us.
its established that we all have these weird symtoms (symptoms).For example if you look up endorphines find out what it is and what is does,So if we read about fibro and what chemicals we have too much or too little of,we maybe able to help ourselves a little more.Most doctors are too busy and throw us pills.....MORE chemicals to unbalance us,and mostly in our brains to dull them.Im not saying i know more than the doctors do,actually i dont know a great deal.I've come close to giving in to all the meds ive been given as i was so desparate,until they affected me so badly it was dangerous.

[PlateletGal]

The treatment I'm doing is killing the pathogens that are probably the cause of my immune dysfunction and definitely the cause of my symptoms.

You would probably be interested in Garth Nicholson's non-profit organization. I believe he and his wife both have CFS and started this organization as a result. He also posts information on autoimmune diseases as well and their possible causes.

[PlateletGal]

P.S. --- Google his name and it should be the first website, "The Institute for Molecular Medicine". He also posts treatment plans on his website and diet recommendations. There are, however, other treatment protocols that are similiar to his. I chose one of those.

[hosie]

If its wreaking your pathogens is this treatment worth it ?

[PlateletGal]

It is killing the mycoplasma in my body.

This treatment is definitely worth it. It is the same approach that lyme disease patients use to get rid of the borrelia burgdorferi bacteria that is making them so ill. I know it is working because I'm having the same herxing symptoms that lyme patients do.

I'm made so much progress so far. I do have a ways to go. What I discovered is that there are no magic pills and healing can take time and work.  I'm currently using natural formulas and am impressed so far with the results. You may want to google "The Roadback Foundation" to find just a few patient testimonials online. There are many others on the other protocol that I was on and the natural protocol that I'm currently on.

[PlateletGal]

Fibromyalgia/CFS can be caused by a whole range of factors. All of which, it is most likely your doctor or practitioner will not be able to diagnose.

Only doctors and therapists expert in the treatment and management of these conditions will have the time, testing equipment and expertise to tell you the most likely causes and provide an accurate diagnosis and prognosis.

Recent research points toward a variety of triggers prevalent in these conditions.

1/ a chronic bacterial infection which has overrun your immune systems ability to cope.

You can be infected through a variety of mediums. The Sympathetic and Parasympathetic nervous systems are compromised and damaged. The condition is then maintained and exacerbated by musculoskeletal imbalance in the thoracic region causing irritation of the surrounding nerve ganglia.

2/ a viral/ chemical exposure which entered your system causing brain and spinal cord lesions, simultaneously leaving the Sympathetic and Parasympathetic nervous systems in a state of chaos. The condition is then maintained and exacerbated by musculoskeletal imbalance in the thoracic region causing irritation of the surrounding nerve ganglia.

3/ a viral/ chemical exposure which entered your system causing a temporary brain injury to the area of the brain that deals with immune response.

Types 1 and 2 will cause the most prolonged type of Fibromyalgia/CFS, with 3 being mostly related to the type of post viral illness PVFS caused by EBV, in otherwise healthy patients this will usually dissipate over a period of 6 months to a year and should not necessarily result in or be classified as Fibromyalgia/CFS.

http://beatfibroandfatigue.blogspot.com/2006/10/what-causes-fibromyalgia-and-chronic.html

(Dr. Mark Shaw --- CFS & fibro patient)

[hosie]

Yeah thanks for that at least we dont have lyme disease in our country,so that one diagnosis that they cant get wrong

[PlateletGal]

You're lucky !!! You wouldn't believe how many CFS patients have been misdiagnosed with lyme disease and vice versa. The problem with lyme disease is that the testing isn't always accurate. You could have lyme disease and have several negative results. To my understanding, many times it is due to the patient being so immune compromised that they can't produce a positive result.

I hope the information is helpful. As far as I know... that is the latest. I do post the latest research, treatments, etc. on my website. My website address is listed in my profile (you have to read the entire profile though... LOL!)  = )

[hosie]

Hey thaanks again that'll keep me going for a while