My worst pain, pain to just have is about an inch above my wrists, about an inch above my ankles, above my elbows and I have swelling on the inside of my legs across from my knees. I woke up several times last night with cold sweats, sheets wet, but the water just pours from the back of my legs from the bends of my knees up. Pretty much where the swelling is. And my neck had some sweating last night also. And, this is not hot flashes. THis all started after mono last spring. Actually mono/thyroiditis-now fibro. I know several people in my area with fibro, but no one has pain where i do. And I have severe pain/tenderness when you touch the fibro points, even if its just to brush against them, but they don't hurt like these other places. These places just ache without touching. My hips have started getting this way too. Sometimes I almost can't walk. I'm always afraid I'm being misdiagnosed. Recent bloodwork came back with a deficiency in vitamin d, they put me on 1200mg a day of vit d and calcium, and really i have felt very good up until 4 days ago. and now it is worse than ever. i do hope someone else tells me that they have the sweating also. NOT that I want someone else to be going through it, i just want to think that this is a fibro symptom and not something else. Any help is appreciated.
fmnetnews.com has good information for FMS/CFS sufferers.
Personally I only experienced odd perspiration for a few months, often cold sweats, day & night. Then it went away. BUT... that doesn't mean anything, we're all going to have different & often unique symptoms. fmnetnews.com explains how they overlap w/other disorders like CFS, Lyme, Lupus, etc. I was afraid of misdiagnosis' also, but then after a while, I was hoping for any Dx at all, other then the one I was getting, that I was fine. I finally got Dx'd for Th1 inflammation disease, which includes FMS.
Please look over the abundant information on "The Marshall Protocol (MP)", marshallprotocol.com. Its a curative therapy for sufferers of autoimmune disorders,(Th1 inflammation diseases). I've been on it for 6 months now, & IT IS WORKING! Despite popular opinion, Vitamin D is NOT a good thing. The MP explains this in depth.
Here's 2 quotes about "Vitamin D" from the MP:
"Vitamin D--also known as calciferol--has several forms or metabolites. Vitamin D was misnamed when it was discovered in 1922. It is not a true vitamin because an ongoing nutrient source is not required to sustain normal levels in the body. Rather, it is autonomously synthesized in the cells of the skin...." ... "In persons with Th1 inflammation (often undiagnosed) the level of measured calciferol (25-D) may be low (due to rapid use of this precursor) while the level of the active metabolite, calcitriol (1,25-D), is dangerously high due to the immune system response to intracellular bacteria. Testing only the precursor and assuming that a low level indicates a Vitamin D deficiency may result in a misdiagnosis. In this case, supplementing with Vitamin D will provide more 'fuel' for the production of excess 1,25-D by the inflamed tissues. This will allow the bacteria to freely multiply with a resulting worsening of Th1 inflammation."
Here's some links.
Look at the symptoms of Hypervitaminosis-D http://www.marshallprotocol.com/forum2/2588.html
I agree with you. When I started getting very ill, I noticed I wanted to hide from the sun. Our bodies always tell us what we need, don't they ? What is interesting is that all of the people on the Marshall Protocol, all have high levels of Vitamin D and yet they say how good it is for you.... not everyone.. imho ! My physician told me that it has to do with the way it is converted in our system.
What is also interesting is how many people w/ CFS, even very young people, have osteopenia. Dr. Marshall explained it.. some of my other physicians' can't.
I'm trying to understand the Vitamin D/ calcium/ calcitonin connection. Would this explain why my lab results came back with an out-of-normal-range elevated calcium level - because I have fibromyalgia?
The vitamin D thing is confusing... it has to do with the way our vitamin D converts. There is the standard vitamin D test and then the D 1,25. What is very interesting is that all of the people who are very ill and on the MP, all happen to have high vitamin D levels and many people with CFS, also have osteopenia. One member has it and she is only 23 years old !
I have similar problems and still don't know what is going on. I have some type of fibro. Pain in feet, ankles, hands, wrists, neck, and hips when walking a lot. I get profusely sweaty around my neck and find my pillow soaked every morning. The sweating has been bad the last year or so. I cannot even get the smell off my neck when scrubbing from so much sweating.
I take cymbalta for the fibro and although it doesn't solve everything, it allows me to continue through daily activities and house chores for much of the time. I also started taking Malic Acid which also has seemed to help that supposedly helps reduce phosphates in the body. I also have sleep apnea and use a CPAP at night. Luckily this is the only thing that lets me not smell my stinky pillow and neck
I don't have any solutions, but you are not alone. If anyone else has any ideas, please share. I lost about 75 pounds a few years ago with vigorous excercise then the fibro reared its ugly head. I can no longer run or light weights because of the fibro and now have gained over 50 pounds back. It is a cruel world that I finally found a way to stay and maintain a healthly lifestyle and then somethine else robbed me of that ability - this fibro whatever.
I am going through allot of the same things buggy. My pain is so severe that I am bedridden most of the days. I can not sit up as it hurts really bad after 15 minutes. I have been diagnosed with several things one being Fibromyalgia. For several months now I have been sweating like a dog. I am on several medications including Cymbalta, nexium, oxycodone, morphine, vitamin d 50,000 i u a week, calcium, fish oil, tizanidine,lovastatin, mirapex, and a few others. The sweating never lets up on me. my bed can be soaked with in 30 minutes after being changed. I have also been diagnosed with degenerate bone deasease, neuropathy, etc etc etc. I have been suffering for over 10 years with a
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