Thanks for the reply. Chronic low grade fever only goes away when i have my period and the week after then its back again up and down all day long. Sinus and allergy problems even though I have tested negative to all allergies including chemical and food. Sinus issues are still there. Muscle twitching everywhere. Bit of vertigo. Ear tears and plugged head feels like it full of mud. Muscle pain and horrible tight and stiff shoulders and neck, i can feel the tightness in my head like someone is pulling my strings. Oh and my hand go numb. Thanku
Must add i think that i have been tested for everything under the sun all that comes back is i have a iron defecency and that i have thalassemia minor but i've had the thalassemia my whole life.
Thanks for the reply. I have been tested for lyme twice and yes my b12 level were just checked. i have no idea what celiac disease is or how they test for it. Actually when i wake up i'm in pain and yes when i do more i am tired and feel sick for like 3 days. Um i have about 2 headaches a wk but i think there sinus related and my blood pressure is always low due to my thalassemia. Thanku for ur help
Celiac disease is an autoimmune condition, but the good news is... it is so easy to treat. People who have Celiac disease have an intolerance to gluten (wheat) and since their body isn't getting the necessary vitamins/minerals, they get deficiencies and often feel depleted and have muscle aches and/or other symptoms. Since you've had a fever, I wouldn't think you would have Celiac disease... but if you have Celiac disease, you can be prone to getting other autoimmune conditions.
You may want to talk to your physician about Chronic Fatigue Syndrome and especially if you wake up feeling unrefreshed and if you push yourself, you pay for it the next day. Of course to get a CFS diagnosis, your physician needs to exclude every other possibility and make sure that everything else has been ruled out. I'm sure your physician has already checked your ANA titer to rule out an autoimmune disorder.
Since you have muscle twitching, you could have overlapping fibro symptoms (which is common). Also people who have stress and/or a magnesium deficiency could have muscle twitching as well. You may want to try taking B12 (liquid drops) and magnesium (I buy the powered magnesium).
Thanku so much for all ur help. I do believe i had my ana tested cause i thinks thats how they test 4 RA and i have been tested for that. My infectious disease specialist said something about CFS but i don't understand it and i'm not sure that I can accept it. But anyhow thanku very much for ur help its greatly appreciated.
CFS is a tough diagnosis to accept, but there are many tests that can help make the diagnosis. Here they are:
██ T3 REVERSE -- "The mix of treatments needed varies from patient to patient. There are some abnormalities that are common. For instance, close to 100% of individuals with these syndromes have low thyroid. This is, however, usually not picked up on the standard blood tests because the TSH is not elevated in these individuals due to pituitary dysfunction. Many of these individuals will also have high levels of the anti-thyroid reverse T3, which is usually not measured on standard blood tests. In addition, the majority of individuals can also have a thyroid receptor resistance that is not detected on the blood tests. Consequently, thyroid treatment, especially with timed release T3, is effective for many patients. T4 preparations (inactive thyroid) such as Synthroid and Levoxyl do not work well for these conditions."
Kent Holtorf, M.D. --- link to article: http://www.immunesupport.com/library/showarticle.cfm/id/4320
██ ANA -- "Up to 25% of ME/CFS patients have an abnormal ANA" --- Dr. David Bell link: http://www.davidsbell.com/PrintLynNewsV4N2.htm
██ Uric Acid --- "Uric acid levels in CFIDS patients are among the lowest I've ever measured, in all of medicine". --- Dr. Paul Cheney
source: http://www.dfwcfids.org/medical/cheney/heart04.part2b.htm --- but also see:
██ Viral Testing --- EBV titer, CMV titer, HHV-6 titer (best methology & lab: http://www.drpodell.org/chronic_fatigue_syndrome_hhv6.shtml ) You can also visit the CFIDS Association of America's page on viruses that play a role in CFS patients.
I don't have fibro, so most of my time is researching my own condition... CFS. However, I frequently read the latest research and talk to people who do have fibro. I just googled now and can't find anywhere that says you can have a fever with fibro. Can you post those links you've found ? Perhaps you have overlapping symptoms of CFS ?
A low body temp is common in both CFS and fibro patients.
What lyme tests have you had? The ELISA is practically worthless. Lyme can test negative even if it is present. The sicker people are and the longer they have it the more likely they are to test negative. This is because the immune system is so weakened it cannot form antibodies to lyme. Therefore the tests are negative. Some of the sickest people with bad neuro problems test negative. You live in a lyme endemic state. Low grade fevers are clearly a sign of infection of some sort. Not saying you have this but I think it warrants looking into. There is a lot of info at lymenet dot org.
I honestly have no idea what type of lyme test i have had. I just know that I had one like 7 yrs ago and I had another lyme test done in March. I have been bitten by at least 2 that i know of, my cats always bring them in. I don't remember getting bitten by any when i got sick. When i do find the tick its just by luck.
Here r some, there are plenty of other places that I have read that it does give a low fever. But ur right there are plently of places that says it doesn't also. Then there r other forums that some say they have always had low fevers with fibro and some say that they never have. So I am at a lose. I just know that me Nero. said I have the symtomes of Fibro and Ms. But I rather Fibro then ms. I am having a emg of my nerves done soon. I've thought that i had lyme for yrs. but the docs r convinced other wise. I'm sure they r right with the lyme thing. thanks 4 ur help
My only suggestion to you regarding lyme is to get evaluated by a doctor who specializes in this. A negative test does not mean no but most doctors do not know enough about it to understand the testing is poor. There are several doctors in PA. You can find one at the link I posted above.
Most Fibro patients have a low body temp - mine is 96.0 - 96.5, so when my temp is at 99, I feel like I'm burning up (that's where I kept butting heads with that idiot VA dr - that is why I don't go there anymore).
I recently switched from the MP to Dr. David Jernigan's protocol. Although I've made progress on the MP, I found out that Jernigan is successfully treating lyme disease and other chronic conditions without antibiotics ! I thought I would give it a shot (it is relatively inexpensive) and guess what ? I'm herxing. I'm quite impressed and think I will stay on this route, as I know that my body is killing the pathogens that are responsible for my immune dysfunction. When I mention these protocols to some people, they think it is a quick fix. I'm like, "are you kidding ?... it takes hard work to actually heal and cure your condition". One thing I've noticed since I started the MP (and now Jernigan's) is that a mole on my left foot is disappearing. I agree with some physicians that this treatment is lowering my risk for cancer as well.
I would consider asking your physician to check your thyroid. However, the standard thyroid tests aren't picking up a low thyroid in fibro & CFS patients. The test you should ask your physician about is called a "T3 REVERSE". I also hear that timed release T3, is effective for many CFS & fibro patients. Apparently the T4 preparations (inactive thyroid) such as Synthroid and Levoxyl do not work well for these conditions.
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