I am new to this and haven't written about anything.I have been treated for fibromyalgia for over a year now. The dr. never really stated I have fibro. I'm being treated for high cholesterol and trigylcerides. I'm taking welchol powder once a day and trilipex for this. I'm taking lyrica 150mg. bid and mirapex at bedtime. I went to get a lab slip yesterday for blood work and was informed i needed to be fasting for my cholesterol and trigy. levels.I have never been told this before. When I first started with this dr. my cholesterol was 398 and trigylcerides were 499. the dr. just gave me meds. as stated earlier. I am mad about this.The lyrica worked well at the beginning but now after gaining 25 lbs. and noticting the side effects more(swelling nin legs and feet, blurry vision, brain fog) I'm ready to stop. The pain is mostly my legs-sometimes they hurt so bad all you can do is cry. the dr. wont give me any pain meds that work-although he did at first give me darvocet which helped but of course they took it off the market- and now gives me tylenol #3 which is like taking a baby aspirin. I'm also wandering abot the connection between Fibro. and Cholesterol meds. Long story,but I was on Crestor form a dr.that liked to have killed me and wondered if this is when my fibro. appeared. Thanks for listening.
angela, what are some other symptoms? stiff/cracking neck, swollen lymph nodes, bowell issues, muscle and joint pain, stabbing sensations in diff body parts, food sensativities, vertigo, smell and sound hypersensativity, night sweats, radiaing nerve pain from neck down to back, possible tinntinnitus, anger/anxiety? If so, you don't have Fibro, you have Mycoplasma or Lymes or both chronic intracellular bacterial infection. PM me if you want additional info OR repost this on the Lyme message board. We will get you connected to get the proper testing done because the labcorp tests are so bad as admitted by the CDC.
ewford, I have IBS, pain in my legs mostly.The leg pain feels like a deep aching in the bone? it's hard to describe. Some days it's hardly there and others it hurts so bad I can hardly walk. I do have neck pain but I chalked that up to being in a couple of car wrecks. I have had numb feet for around 10 yrs. that several drs. never could figure out. I have nerve tests( to what extint I don't know) The cholesterol I found out about 3 yrs.ago. I do have tinnitus all the time! I have night sweats and day sweats, vertigo some. I have no sense of smell but haven't since nose sx. I don't think I have anger/anxiety no more than anyone else. I do get stabbing pains in my legs and feet. Night and blurry vision has been worse. I take a Multi-vitiamin and 1200mg fish oil every day. Thanks for listening-this is making me feel better that I'm not alone in this. I need all the help I can get.
Ok, you need to go to www (dot) ilads (dot) org and look for an ILADS dr near you. These are doctors that are aware of Lymes and Mycoplasmas and coinfections causing CFS/Fibro, and many other atypical or typical Autoimmune diseases. This is an intracellular bacterial chronic infection. also research www (dot) immed (dot) org and look at mycoplasmas causing Autoimmune illnesses and other chronic illnesses. waste no time, do your research and if you need help, go to the Lyme page and repost. we are there to help and educate. Don't be suckered into being told this is in your head or you are crazy. The bacteria is affecting you causing every symptom. Borrelia Burgdorfer is a spirochete that can change shape and corkscrew through vessles and enter muscle tissue, the cell wall deficient form enters joint and spinal fluid. go to YOUTUBE and search for a video. Look for Dr Lida Mattman and an autoimmune conference she spoke at. It will explain how the bacteria operates and why so many are missdiagnosed. She is a Yale educated PHD, 35 yrs researcher and proffessor.
ALL your symptoms are Myco/Lymes w/coinfections. research babesia, bartonella, HGE
also, go to Youtube and watch "under our skin" there are 5 diff videos posted by OPEN EYE PICTURES, watch them and see if you see someone like you and how people have been missdiagnosed. Get back to me after you have watched these. ok?
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