is their hope to feeling better

[buttercups123]

I have been diagnosed with Fibromyalgia and take amitryptiline 30mg at night, sometimes I sleep and sometimes I don';t.  I have just started fluoxetine aswell to help improve my low mood.  I have put on a couple of stone in the last year, have had a hysterectomy 2 years ago and was assaulted in hospital last year which even though I thought I'd got over, is what I think may have triggered this.  I still work full time but am finding this increasingly difficuly but I am scared to start staying off incase it is a downward spiral that I cannot get out of.  I feel like **** and have no energy at all. I still hurt everywhere as if I have exercised the day before, but the shooting pains that I had in my arms, legs and everywhere else have mostly gone.  I am trying hard to stay positive because of my husband and children.  It was me people always came to for a laugh to cheer them up but I just can't do it anymore.  My migraines are under control thanks to topiramate which I also take at night and my weight gets me down aswell - I don;t feel anything like my normal self anymore -- any ideas?  My husband says he understands, but he doesn't.

[kitonthemoon]

Hi.......Mellissa,

At least you've got to see a doctor and I would ask him for medical record including today's fainting episode, for social sec. disability's paper work.

Ortho.Int. I believe is the same as what PlateletGal...print what you read out and show it to your doc next time.  Don't worry about the bill, explain your situation and arrange
payment installment, if you could.

It is not strange to say you want something proven wrong with you.......if you don't get answers from this doc. find another one.....keep digging.  Don't give up, okay?

We are all cheering behind ya.

Tender hugs,
Kit

[Melissa70817]

Well, I went to the doctor and nothing.  I got more blood work.  The only thing that was good was that I had one of my "attacks" while I was there.  I had walked from the parking lot and rode the elevator to the 4th floor and I started feeling dizzy to the point that I had to squat at the reception window.  Once I got back to see the doctor about 15 minutes later my blood pressure was 81/56.  Now wonder I felt like I was going to pass out.  I WAS going to pass out.  While sitting there talking to the doc. he took my blood pressure over and over and it kept coming up.  He said I was ok and sent me for tests.  No blood pressure meds though, kind of odd.  He told me that most of his patients with FM experience the same thing.  OK, well what in the blank causes it and how do we fix it so I can stand to wash dishes or clean litter boxes, etc.  All he did was send me for blood work.  The whole day cost $500.00.  Wonderful.  I have applied for medicaire, I hope it is approved soon, I will also apply for Social Security as I don't see me going back to work anytime soon.  I just cross my fingers that something good comes out of the blood work, they find something.  I WANT something to be wrong with me, isn't that strange to say???  Thanks for being there everyone.

[kitonthemoon]

Good luck at the doc's.

[Melissa70817]

I tried the Lyrica and Cymbalta for 2 to 3 weeks each.  I wish I could find something that works, anything.  I don't care what it is.  I'm just sick and tired of feeling sick and tired.  I have a doctor appointment today at 2:00 and I'm excited.  I haven't seen him in 6 months due to the brain fog.  I thought I made my appointment but didn't so by the time I called they didn't have an appointment for 2 months so I had to wait.  I have my symptoms written down and ready and will do the blood work today even though I can't afford it.  I need it.  I'm getting worse each day and I'm tried of living like this!!!  I want to feel better!!!

[plmrsm8]

Maybe you and your husband can research this desease together.  I could help him understand what is going on.  It helped my husband.

[dede383]

hi there, you are doing so well working and managing to look after your family i am in total awe that takes alot to do at the best of times, i also take the same medication os you , dont know if it helps but ,wont stop them to find out, i have been unable to work since jan o7, i feel apart from anything a complete failure , low self asteem, i think it all part of the big picture of living with fibro, my husband had a breakdown a few months ago so there has been alot of stress which i find makes symptoms much worse , is there any way that you could take the presure off yous self for a while? and just get some rest.
bless you its such a pain and feels to be never ending , look after you be strong

[fibromama]

Wow I had severe panic attacks when I first started taking lyrica also and told my doc  he told me to stick with it a couple weeks and if the panic didnt go away I could stop taking it. Because the pain relief he didnt want me to stop due to a side effect that might possibly go away.  Now my INS wont pay for it so hes working hard on trying to convince them I need it,,,Neurontin which INS will pay for and I already have 280 pills of just does not work for me.  I do hope the Lyrica gets approved.

[Melissa70817]

I loved Elavil but it stopped working for me or I thought it did.  I slept so good....My doc put me on Lyrica and I started having panic attacks, he took me off of both, the Lyrica and the Elavil.  Now he won't put me back on because he said it doesn't work.  I wish I was back on it.  I really had such great sleep!!!  I've tried both Lyrica and Cymbalta, severe panic attacks on both.  

[fibromama]

when I was first dx with Fibro I was given Elavil and it made my muscle spasms worse do you have this problem with taking the Elavil or has anyone had this problem,,I would like to start taking it again but am kinda afraid due to all the muscle pain I had.

[buttercups123]

hi there, many thanks for your kind words. I've played around a bit with my dose of amitryp and what time i am taking them and my topiramate at night time and the evening and i don't feel quite so groggy in the day now, perhaps they are initial side effects.  Something I have noticed though is that I have started feeling a bit trembly almost like an anxious feeling but I'm not sure why because I never suffered like that before - it's a bit like when you're starving hungry and you get a bit weak and shaky, but with the hunger - but it's not a feeling I like - is there anyone else out there who has experienced this with amitryptiline as that is the only thing that is new to me.  I am going to go back to work next week as I'm sure that if I stay away too long I won't want to go back...

[kitonthemoon]

G'Morning!!!

I agree with Melo........it is time that you take care of yourself.

While it is a blessing that we are able to give to others who need our support, adivise and what-knots.....it is okay to be on the receiving end as well.  ...I always believe that ....."We cannot take care of the world, unless we are well ourselves". Make sense?

Sleeping meds, anti-depressant, pain meds can all make you groggy come next morning.  Perhpas your doses do need readjustment.

It is unthinkable that one get assaulted in hospital where you're supposed to be treated with tender loving care.  My heart goes out to you for what you had endured.

Please take care.....

Lots hugs,
Kit

[buttercups123]

It was unfortunately because the pain everyday all day and night which is why the amitryptiline was prescribed and that has mostly gone. I did go for counselling and that did seem to help and I thought I was back on top of things but then the aches and pains and chronic tiredness started some months later and perhaps that is how my body is expressing its reaction to it!! i don';t know!

My GP that I'm seeing now is very understanding but I suppose its just getting the balance of meds right.  We'd both read articles that a combination of amitryp and fluoxetine were good for FMS and that's why we've gone down this route.  Thanks for your comments though, when you see it written back to you, yes you;re right it's a lot of happenings for anyone to have to go through.  It's just that I was always the stronger person that everyone came to for advice and a laugh when they were feeling low and needed cheering up!!

[melo1224]

wow, it sounds like you have been through a lot recently. As you probably know Stress will make anything that's wrong with you worse. And it sounds like you have had your fair share of stress!! My advice would be try to focus your attention on yourself, and your well being. If you need counseling please seek it to help deal with the emotional stress of an attack etc. Sometimes the meds that we take to help us sleep will leave us tired a groggy all day, therefore making us feel depressed. So try to take your sleep meds earlier or possibly try a lower dose? It's different for everyone so you'll have to find what works for you. I personally feel better without sleep meds, I'd rather hurt than feel brain foggy all day. I tried Effexor for mood and it did wonders, I was in the best mood in years but I had to stop taking it b/c I was having side effects. (shaking, muscle twitches) Withdrawing from Effexor wasn't a picnic but I did like the way I felt while taking it.

Good Luck with everything, I hope things get better for you

[jmbirds]

You may want to ask your dr to do a vitamin D blood test now i was having lot of FM and cfs and i was dx with hypothyroid symptoms  and multigoitors with normal levels  i felt worse and worse well i switched endo and he said he was going to try this therapy  and i had to stop my synthyroid for 3 days 100mcg was giving me palpatations so i'm back to 50 mcg and i feel more alert more connected i don't feel wiped out so perhaps you can see an endocrinologist  , now you can take walmart brand vit D3  and see if you feel better in some way , my rx is 50,000 iu  of vit d3 so lmk if you perk up can't hurt to add a vitamin  or have a blood test