myoadenylate deaminase

Is there anyone at trhis sight that has or know's about myoadenylate deaminase? I have the best doctor's at columbia university'and all i get is it's so rare that i am 1 of 2 that he has as a patient. He say's there is no cure for this type . So if anyone nows about any studies on this please shout out.

[dustybrown]

Hello zeman686,
I have never heard of this condition before today. I am sure you hear this a lot. My guess is that you have already searched the Medhelp database. When I did I found this:

http://www.medhelp.org/posts/Neurology/myoadenylate-deaminase-deficiency/show/893568

If I hear anything else on the topic I will let you know. Take care.

-Dusty

[zeman686]

Thank's dusty already been there. I still don't understand how there are no studies on this.I think i have to start looking outside of the USA.?




                                                                                   zeman686

[dustybrown]

Hmmmm....Have you tried contacting the doctors mentioned in the posting? I know the posting is really old- it's possible the doctors have moved on, but it's worth a shot maybe. Or have you thought about going to the Mayo Clinic to see if they have any other treatment options/ideas for you?

[zeman686]

Yes thank's for that. I tried to find the doctor's.I had no luck. I thint i am going to try a  herbalist.