I also am hoping to develop support for the diagnosis of Fibromyalgia. It is such a catch all diagnosis that often we don't want the dx. We need to start supporting each other while waiting for more people. I was dx over 10 years ago. I currently am on flexaril for bedtime and if I have severe flare up. Heat is always a help. I forget just how difficult life gets if I am hurting a lot.
I went off the lyrica because I thought it was making me gain weight. I have since found out that my thyroid was under-producing & since the beginning of March have been on a thyroid med.
I have continued to do stretches/exercise to counter the fibromyalgia. So far so good...not completely pain-free, but it is working. I feel burning on the bottom of my feet & in the toes in addition to hands, etc. where it is like nerve endings send impulses of pain shooting through. I was taking lots of supplements & changed my diet also, but now with the thyroid med, my schedule is wacked. I will have to figure a good time to squeeze the supplements in...before I took them early a.m. when I ate breakfast, but now have to wait a hr. after taking the thyroid med. before eating breakfast & by then I am off to work.
I feel a bit over-whelmed by all I need to learn but will keep trying & read various posts on the forums relating to these areas in addition to reading things online.
Thanks for encouraging everyone to support each other. I agree. I like using heat also. I have the bed buddy's & put them in the microwave & around shoulders, on back, etc. I am still using the thera-cane & used it today as I felt pretty bad when I got up. It help loosen the knots in my upper back. My lower back was killing me the other day. I realize I have to keep doing the stretches but not over-do it to keep limber (flexible) in those areas.
Since you've been diagnosed for so long, have you noticed any adverse to reaction to certain medications? Reading possible side affects is one thing but when the pain is as diverse as fibromyalgia is, nothing can be too general.
What supplements have you been taking? Are they all natural or pharmaceuticals?
In your post you mentioned lyrica and I noticed on their website that there seem to be some nasty side affects... Just wondering if you've switched to anything since that time as you are now on the thyroid medication.
I think the diagnosis group is a great idea. Back 13 yrs. ago when I was diagnosed, there were no doctors in my area that were familiar w Fibro and I spent two yrs. going from doc to doc and one test after another until I finally went out of the area to a Rhurmetologist who knew within 15 minutes what the problem was, what a relief after being made to feel like a hypochondriac for two yrs. It's a very stressful time and the support would be great for those going through it.
I went over 2 years c/o being sick and tired af being sick and tired. I underwent numerous tests which only told MD what I did not have. I also was sent to a rheumotologist and was dx within 15 mins. It always helps to know a dx it helps makes one not feel so helpless. Due to numerous other problems I am limited to using the fleaxril and heat. Alot of people have success with sm doses of antidepressants that help with the physical pain. Each person has to explore their options and then educated physcian on possible success. I hope you can find relief and know what will work for you. Good luck and God Bless.
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