- good one! support, in any form, is always welcome and is not always easy to access. thanks.
You might try the autoimmune board or the lupus board. A lot of people who have autoimmune diseases and lupus also have fibro. I have lupus and fibro. Those two boards are rocking with conversations that include fibro and cfs etc.
God Bless.
acker, that is a very true statement. It is exhausting and sometimes we have to pick where we put our energy. Be patient and people will get to you.
true - it's not a busy board. this really is a picture on the state of most of us who have a fatigue or fibro condition! - simply too sick to participate and help!
also, it's a picture on the mysteriousness of the diseases, where doctors don't know and tests don't seem to help much, and in some cases we simply don't know and can't help either!
fibro and f.s. are cruel diseases - they affect us from head to toe, and then physically, mentally, socially, psychologically etc etc the whole nine yards. the quietness of this forum is truly an indication of how severe these diseases are. we are all passed out, in pain, or uncoherent - and unavailable..!