I am at the end of my tether, and its getting me down, I suffer with severe pain in my neck, shoulders, upper arms, lower back, hips and knees, a continual headache, problems sleeping, depression and dizziness aggravates my problems walking, I have been issued with a wheelchair from the NHS, and receive the highest rate DLA for both mobility and care, yet neither my doctor or consultants can find anything sufficiently bad to cause the problems I’m having.
My doctor even sent me to a psychiatrist because he thought I was making up the symptoms. I am on 60mg Oxycontin, tamacet and paracetamol, yet the pain is still unbearable, any idea’s on what might be causing these symptoms? I have been like this for 2 years now. Thanks
Sounds like fibromyalgia to me. My pains are exactly where yours are. Also, since starting the Lyrica, my daily headaches are gone!!! I still get occasional migrains,but I deal with them with migraine meds.
Talk to a rheumatologist. They are the doctors who diagnose FM. By the way, depression is a common side symptom of fibromyalgia.
so sorry for what you are going through at the moment, i guess your doctors have tested you for MS,lymes,lupus, B12,thyroid and i guess you have had MRI, x-rays and blood test.
If so i would have to agree with icrohetafghans and say its fibromyagia or M.E though M.E does not cause constant pain.
Do you get flares? are you Fatigued?
I use lyrica 375mg for my nerve pain diazapam and quinine for my muscle spasms, i get hip,thigh,knee,lower back,arms and stomach pain, inbetween my flares i have constant nerve pain and my arms and legs feel like they have concrete in them and burn when using them.
Iv had a clear MRI of my brain and spine and waiting for one on my pelvic region and going up to a london hospital in October for a LP and EMG.
Iv had mild heatlth problems since the birth of my second child in 2000 but since Jan this year it has become really bad and i have been signed off sick for 4 months now and just been signed off for another 3 months.
Its hard not knowing what is wrong and its hard being ill with three kids like i have, i hope you can find some support and help here on this forum.
Thanks for the replies, the rheumatologist was a laugh, he didn’t care, but my ex GP (70 year old srilankan)was fixated with tennis elbow and “postural” causes for the pains in the shoulders and neck, so the letter to the rheumatologist was not helpful. UK2, what do you mean by “flares”? Fatigue yes defiantly, yet sleep doesn’t help.
Knowing I am not alone helps; I was starting to think I was going mad.
So sorry your rheumatologist was not helpfull, by flares i mean peirods of time i go down feeling ill as in bed ridden in my case in large flares and slow days and pain in small flares. I have a degree of fatigue in my muscles all the time and cant walk far at all but i manage at home and with the kids on non flare times but cant work.
I would talk to Curls if you can as she has a huge knowledge on CFS as i think they call it in the U.S.A, M.E here in the UK and she can advise on diet and what blood tests can be done, im find myself limited in the UK on the blood tests as im NHS not private.
My doctor dismissed fibro and said it was just a achey (achy) flu type illness and said i had too much bouts of pain for that, but i have read alot about it and it fits more then MS on some sx. So im under going more test soon got a LP and EMG at the london hospital in October.
You never said if you had all teh above tests i had mentioned?
thanks for the answer, I am uk nhs as well, every time I ask for help, the doctor says its just nerves trapped by warn joints so further tests aren’t necessary, so I take my 24 pills a day like a good boy and just have to wonder what’s going on with my health, yes some days I have to stay in bed I cant cope other days I feel reasonably good. but as you know asking the GP for anything upsets them, an if you don’t fit in a neat little box you stand no chance. I will try and see if I can get any info from Curls.
Sounds like Fibro to me too!! I hate to say it but for some reason the Dr.'s tend to try and made you feel crazy, and that it is all in your head. DON"T LET THEM!! Hang in there and be persistant with your concerns. After all why would anyone wish to make up such claims of such severe dibilitating pain. In my past position I saw a lot of people diagnosed with BI-POLAR. However, all that occurred after their diagnosis was they became very vegitated due to the prescribed meds. This only masked their other symtoms (symptoms) and really I think affected their Quality of life in a very negative way.
How do you get tested for fibromyalgia? I have been having mostly the same symptoms since 2004 I was given oxycontin in the beginning to manage the pain. Then gabapentin and topamax. Nothing helped I'm on a string of medications now and my doctor is at a loss . I've had everything done CT scan MRI nerve testing ect. Any suggestions on how to get my doctor started on looking for fibromyalgia? He has been constantly testing for Ms....I'm so tired....
Fibro is a exclusionary diagnosis. You should be looked at for tender points (what rummy think a diagnosis is) but you doc needs to rule out everything else before you get a Fibro diagnosis.
I all of the pain issues coaterman has and at times more. Everyone is different. I have taken all of the meds you are on except Oxy. I take Norco. However, I was on gabapentin for a few years and was couch bound. I was Lyric that changed my life and reduced my pain significantly. I take pain meds and muscle relaxers. Topamaz is a mood stabilizer and can be used as an adjunct to gabapentin. Talk to you doc about Lyrica.
Hang in there. What you are going through is mentally exhausting and the stress does nothing good for you symptoms. We are here for you and many have gone, or are going through, this too. Hope, always find hope.
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