Gastroparesis

[siobhan105]

My daughter is a very active 28 months old and is presently on a g tube.  She has been diagnosed wiht GERD and gastroparesis.  In the past she has been on a j tube but has now been put back on a g tube which is obviously easier to deal with when she pulls it out.  My question is when she eats she appears to be choking but never  really does choke.  We have been to every dr imaginable and I am wondering do I just wait out the GERD and gastroparesis or do I put my little girl through more tests to a quesiton that may not have an answer except wait? I also worry about her speech development with the lack of muscle control she has.  

[chris998]

Dear siobhan105
I don't know if this is the answer but I had trouble with my throat and swallowing for almost two years.  I learned that the problem is a for of reflux disease called negative endoscopy reflux disease.  It causes the swallowing mechanism to fail and food just gets stuck at the top of the throat.  Only by gravity does it make it's way down.  I ended up changing my diet drastically and taking Nexium for several months.  My diet change was no more diary products, citrus fruits or drinks, sodas, coffe, tea, alcahol,chocolate, tomatoes, beans, nuts.  Also I was sure not to lay down 3 hours after I'd eat or drink.  I no longer have trouble and rarely take any medication.  good luck

[selmaS]

Hi...check with ur local child education services as they should be able to ***** ur DD and get her treatment now...she will need speech and the gaging and choking is normal for those with GERD as they do not know how to use their tongues and move the food or make the shapes for the sounds for words....

Good luck and do keep us posted on her progress : )

"selma"