My 11 year old has been burping food 20 times a day for 5 months!

[debkoch]

My daughter started burping up food after a party new years eve this year.. She is 11. She was a little prone to this prior to the party but it only happened once every few months.   Now she does this almost every time she eats. (20 times a day) She's had an endoscopy, motility test, gastric scan, ultrasound, and a gall bladder test. She has a small weakness at the base of her esophagus.   The gall bladder test (torture for 3 hours) was inconclusive they said because she moved too much.  She is on 40 mg of nexium 2 times a day, and a drug called Reglan.  She is not getting any better after a month.  In fact tonight she has added stomach pain and incredibly loud stomach gurgling followed by frightening burps to her symptoms.  Her pediatric gastroenterologist is suggesting it is psychosymatic.  I don't think so. She's missed over 30 days of school.  The talk of esophogeal cancer being caused by constant acid reflux is terrifying me! HELP!

[debkoch]

I am researching a disorder called rumination.   I think my daughter has it possibly.  The Mayo clinic did alot of studies on this too.  It reccomends deep breathing exercises for children who are burping up food repeatedly.  Kristen has been trying it and it is making a difference.  Imagine after 6 months of tests and missed school, tons of meds all she needs is deep belly breathing.  I am hopeful!
Deb

[JennasMom]

I am considering at this point to take her to the Mayo Clinic. They are suppose to be the experts  in Gastrointestinal Diseases. In the mean time I am going to get her into the swallowing clinic at our Childrens Hosp and see what they say. I am so confused and bewildered.

[ChitChatNine]

Last I heard, severe reflux may be linked to a gene .. I will try to find out if this is accurate info or not but worth asking about.  

I wonder if she has had the strep long before she had symptoms and that is accounting for all going on in addition to the barium ? hmmmmmmm ?

My oldest had what is called post streptococcal reactive arthritis at age 10 from a strep infection that was undiagnosed or missed on a strep culture .. it produced an awful arthritis similar to Rheumatic Fever but slightly different and it was verified thru a high level AntiDNase-B blood test for it ...... moral to story:  strep is nasty germ and can do nasty things as you probalby are aware and that germ alone can cause a bad reflux flare and/or stomach issues in an otherwise healthy kid .....

What a roller coaster you are on .............

C~

[JennasMom]

She started 2000mg of Penicillan and of course, there are only certain scripts you can use for Strep and penicillan is the first line.  We will have to go with it I guess.   Bad day for regurg, for some reason,  Yesterday we were regurg free! Today we are making up for it.  The Pediatrician wants her to go to a swallowing clinic. I hope we get into the other GI specialist soon!  THe only thing I have to say at this point is Why?  I guess we all have that question about our kids.

[ChitChatNine]

OH NO on the throat!!!!  And, yes, the antibiotic can do a # on her .. I hope it is the most mild one available for her right now that will help her get over that throat but not upset her tummy!  I feel so bad for you ... oh no!!!!!

Cheryl

[JennasMom]

Well on top of everything else that has been going on Jenna has come down with strep throat.  I Just hope the antibiotic doesnt upset her stomach more.  
Lisa