I had my gallbladder removed lap in Dec 09, since then I have had continuing daily pain, diarrhea and nausea.....after the usual barrage of tests and scans over the next 2 years, I finally came up with the diagnosis of Sphincter of Oddi Dysfunction.
I had an ERCP at the end of September with a sphincterotomy (not pancreatic sphincter) which gave me several weeks of relief, then very quickly came back to the level of what I was like before (needing admitting to hospital for several days at a time with flare-ups)....
I am now looking at surgical options, as pain management is not working succesfully for me....either a sphincteroplasty or a choledochoduodenostomy (biliary bypass).....
My question is, does anybody know about or have had these done and the success rates....I have read that if you've had a sphincterotomy before, a sphincteroplasty may not be successful either.....and Im thinking about the larger bypass surgery.....
I am a 33 yo mother to two toddlers and need to be there for them both mentally and physically.....I am otherwise perfectly healthy.....
I have spoken to the specialist who conducted my original sphincterotomy. He does not feel that it is possible for it to have healed or scarred after only a few months, and that it takes years for this to happen.
How can this be??? Surgical cuts on my tummy, for example, only took a couple of weeks to scar......how can inside be different. For the record, I do have a couple of keloid scars.
That said, he was not prepared to go in again and look; and did not want to place a stent either.
Instead he has suggested that parts of my brain may be over stimulated and as such I should see a psychologist and use relaxation techniques.
I am really upset at this! It feels like a total cop-out; that he does not want to conduct any further procedures to attempt to help me and has placed me in a too hard basket! I also already take amitriptyline and gabapentin to try and control the pain this way, and to no noticeable benefit!
I am currently looking for a new liver/pancreas/biliary specialist that may be able to assist me. Does anybody know of any specialists in Australia that I could approach????
Please help! I can't live in this pain forever....I am only nearly 34 and requiring oxycodone and several other painkillers daily just to try and function normally for my kids!!!
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