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Undiagnosed Chronic URQ Pain, Sphincter of Oddi Disfunction
In 7/2011, I had pressure in my chest. I was sent to a cardiologist. I had a normal stress test, nuclear imaging test, and echocardiogram. In August 2011, I had pain in my chest and went to the ER. My EKG was normal and I was admitted for more testing. I had an MRCP, nuclear imaging studies, another echocardiogram, and a heart catheterization. I had sludge in my gallbladder but the other tests came back fine. The very next week, I had my gallbladder removed.
After I had my gallbladder out, I still had pain. I got spikes of pain that sent me back to the ER repeatedly. In late 2011, I was sent to a GI doctor who did a colonoscopy. It was normal. In early 2012, I had some labs come back abnormal, so I went to the Biliary Clinic at Duke. They did an ERCP in April 2012. After my ERCP, my pain was constant. I still had recurrent flareups that sent me to the ER. The doctors at the ER got tired of seeing me and told me to go to a pain clinic and stop coming to the ER.
I went to the Pain Clinic at Duke in 9/2012 who checked for pinched nerves; I didn’t have any. I was given a TENS unit and put on Tramadol. It only sort of helped. I still had pain every minute of every day. I still had to go to the ER, but I went less frequently because I knew they didn't want me there.
On 3/15/13, my pain changed, so I went back to the Biliary Clinic at Duke. I was sent to have a trigger point injection. It didn’t last so I had another MRCP at Duke and was told again that it’s normal.
I’m in serious pain 24/7 and I’ll do almost anything at this point. I know that my body runs at a different level of normal than other people. Normal levels for others are high levels for me. I know my body better than anyone else and I need someone who’ll listen.
I know there’s something wrong because I can feel it. This pain is ruining my life and I need help. I need answers. Please help me.
I have a very high level of trust in my colleagues at the biliary clinic. I assume that you saw Dr. Branch who is a recognized expert in the field. Given the workup and continued frustration, I don't think there would be any insult by obtaining a second opinion. The other regional program held in high regard is the Medical University of South Carolina.
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