I have been suffering with so called 'IBS' since I was a child(43 now) Recently, I have become really poorly with right upper quadrant pain and been rushed to hospital and been off work for 6 months. I have had every test possible to finally find out from a HIDA scan I have biliary dyskinesia and possibly Sphinctor Oddi Dysfunction. I have had two specialist with conflicting opinions; one has said not to remove the gallbladder as if i have SOD it wont improve things and i'll end up with the operation anyway, which can be high risk(the reason for this is I had an MRCP - pancreas pressure test come back normal so their not sure for definate) I really require a ERCP but the one doctor feels i should take the gallbladder first rather than risk the other test, which can cause pancreatitis.
I was admitted again two nights ago, virtually unconcious and given Buscopan(anti-inflammatry) to stop the pain.
This disease gives the most bizzare sypmtoms(i.e.breathless, fatigue,itchy bite-like spots on the face and neck, right groin pain, effected vision, severe bloating, weight gain and poor weight loss, headaches, swollen lymph nodes behind the ears - the list goes on)
My question is: has anyone going through similiar problems and also in deciding what best? they seem to be leaving the decision to me, is anyone having repeated urine infection with blood and protein presant? Are others finding their off work.