GASTROENTEROLOGY / DIGESTIVE DISORDERS EXPERT FORUM
Porphyria

Porphyria

Does anyone who post here have porphyria or ahve you been tested for porphyria.
Porphyria is a disorder of the heme pathways and how porphyrins or excreted from the body..It affects the hepatic system. It causes abdominal pain, nasuea, vomiting, Mental changes, fast hearbeat, high blood pressure, Neurological symptoms such as pins and needles and nerve pain and mental changes. It carries a host of symptoms. I see so many of you with undiagnoised belly pain and it makes me wonder how many of you may have this disease.
So if you have this or have been tested please let me know.. I am just collecting numbers on testing.
Thank You
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pins and neadles yes at night only after alcahol (alcohol) though ....so cut it out for now
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