GASTROENTEROLOGY / DIGESTIVE DISORDERS EXPERT FORUM
Porphyria

Porphyria


  Do you know of anyone in the Detroit area who treats patients or has experience treating patients with porphyria?  I have VP and am looking for a doctor who is willing to help me find a way to combat my constant symptoms.
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Dear Lisa
Patients with porphyria often receive primary care from a hematologist.  Dr. Rosa Alaman-Canoso of our Division of Hematology will be happy to see you and to work with you regarding your medical problems.  If you have primarily gastrointestinal complaints Dr. Ben-Menahem of the Division of Gastroenterology will see you at times that are convenient for you and Dr. Alaman-Canoso. Please call 1-800-653-6568, our Referring Physicians' Office and make an appointment to see either of these physicians.
If additional information regarding porphyria is needed you can always contact the American porphyria Foundation at (713)266-9617.  Their address is P.O.B. 22712, Houston, Tx 77227.
Best of luck.
HFHSM.D.-rf
*keywords: porphyria
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