Re: Stomach Pain, Sore Tongue, Painful Swollen Inguinal Lympth Node

Posted By HFHSM.D.-rf on April 10, 1998 at 12:40:58:

In Reply to: Stomach Pain, Sore Tongue, Painful Swollen Inguinal Lympth Node posted by Anthony Phillips on April 05, 1998 at 15:39:24:






On 1/31/1996 I went to the doctor suffering from severe pain under
my right rib cage. I was treated with ulcer medication that only seemed
to help some. In May of 1996 I had a very high Basophil count and
also got fertilizer dust in my mouth which  caused me to have a sore tongue
and tongue lesions. In June 1996 I had inguinal hernia surgery on
my left side (they used nylon mesh for the repair). The incision
became infected 4 times and each time I was given a an oral anti-biotic. My tongue
was still sore and they gave me a topical steroid for it. I then
ended up with an oral and nasal yeast infection (yeast was coming out of my nose).
I then experianced severe abdominal and esophigal pain which an
endoscopy showed signs of chronic inflamation (inflammation). The severe abdominal pains got worse
along with the sore tongue, myalgias, allergies,fatigue, and swollen inguinal lymph
node on my right side. I later requested tests for CMV and EBV that showed high
antibody levels but no early antibodies. I have had tests for HIV
that were all negative. Also CBC shows slightly low platelet counts.  Inspite of
all this evidence that something is going on, the doctors at my
HMO treat me as though everything that is happening to me is all in my
head. I need advise on what I should do or where I should go. I
have a hypothesis that I was suffering from a undiagnosed primary
CMV infection at the time I got the hernia surgery and fertilize dust in my mouth. I also feel that the topical steroid that I
was prescribed, along with the yeast infection that drained into
my stomach from my sinuses caused the CMV to cause the inflamation (inflammation).  I'm in constant pain from the swollen
lymph that does drain and subside at times but mostly it hurts and
is swollen. The abdominal pain usually shows up after eating along
with the sore tongue which goes smooth and turns bright red. I have
had upper and lower GI series that only showed a close grouping
of my ileo loup which they say is probably from the hernia surgery.
I am about to go back to my HMO and demand to be refered to the Cleveland Clinic for
diagnosis.  Any help or insight on what can be going on with
me would be greatly appreciated.  Also, I have been tested for
HBV and HCV which were both negative.
Thank You,

Tony Phillips



____
Dear Tony Phillips,
I read your letter with great interest.  I am not surprised that your physicians could not make a diagnosis given the complexity of your symptoms.  There are several pieces of clinical information that are not provided in your letter.  These include your age, present and past medical cnditions, and current medications.  You write that you have tested negative for HIV infection.  Was this test performed recently?
The pain and sore tongue related to eating could represent irritation by acid or food.  Diseases of the mucous membrans must also be excluded. If you have oral ulcers, these should be biopsied. The history that you provide would not lead me to the diagnosis of CMV infection in the absence of acute markers.
This response is being provided for general informational purposes only and should not be considered medical advice or consultation. Always check with your personal physician when you have a question pertaining to your health.
If you would like to be seen at our institution in order to obtain additional information regarding conservative treatment or to have a biopsy, please call 1-800-653-6568, our Referring Physicians' Office and make an appointment to see Dr. Fogel, one of our experts in the treatment of complex and unusual gastrointestinal diseases.  He also has experience evaluating patients with unusual viral infections.  He would be happy to meet you and help you determine the cause and best treatment for your symptoms.
HFHSM.D.-rf
*keywords: reflux, inguinal hernia, sore tongue
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