Short Bowel Syndrome/

Posted By Eydie on October 25, 1998 at 00:38:37:







I experienced a traumatic loss of all but 19" of small intestine s/p colectomy for a dysfunctional colon (very complicated medical/surgical hx, born with exstrophy of bladder). I have been on TPN now for 20 months. I have asked what criteria is used to decrease TPN and theres been little discussion about this. I currently cycle TPN 12h/d. Weight stable 118lbs. @ 5"3'.
The TPN does not bother me it has become a part of my life. But I just want to make sure my liver stays as healthy as possible. Am I being impatient? I fear long term complications to my liver.
What levels of LFT's should alert me.
I need the fluids for hydration.I receive 4.5L. total volume daily. Less than this and I experience Pylelonephritis (Ileal Conduit & Jejunostomy & Left Nephrectomy)Serum Creat. WNL.
I've had 6 UTI's this year usually occur q4-6w.
I also have been diagnosed with severe osteoporosis. Isn't it rather early at my age to have developed this with TPN only 20 months?(Currently on ERT).
1. Where can I research TPN further ( I am a nurse )
2. Any suggestions for recurrent UTI's?
I've been to 3 Urologists at 3 different institutions. The only answer was hydration and Increased ascorbic acid in TPN to 1000mg. Its been 4 weeks since last UTI. so we'll see.
3. What levels to expect with LFT's what is dangerous.
I am 40 years old and hope to live another 40! I just want to do everything I can to stay healthy.
Thank you for any information