crohns and budd chiari syndrome

Hi i am a 29 year old man who at 19 years of age was diognosed with crohns disease.after years of severe abdominal pain,weight loss etc and all the other symtoms (symptoms) that make up this dreadful disease,i was then diognosed as having a rare complication of crohns called budd chiari syndrome,ive since had a mesa caval shunt and am doing fine ,Has any one else suffered the same two illnesses,as my consultant could not find any other cases of this???????

[onher]

Yes I have had or do have 'Budd Chiari, wich was diagnosed when
I was 30 years old ( 12 years ago ).I had a Porto Caval Shunt put in ,in order to relieve the pressure, which has worked quite well
considering.
  I became pregnant 3 yrs post-op, and at the same time diagnosed as having 'sub-acute bacterial endocarditis' (contracted during a veno-gram), but have had relatively few problems until recently.
  I am one of the lucky ones, having  been fortunate enough to be diagnosed in sufficient time, as well as to live in the same city as a well respected physician/surgeon , who was able to help me.   There are not very many of us I am told , and like you  do not know the etiology of this, or what to expect down the road.
  I have never corresponded , or found  anyone else who had the same diagnosis, as (like you mentioned), it is quite a very rare disorder. I am  pleased to have found somewhat of a 'kin' that I may possibly share questions or information with, and hope we can keep in touch to do so.
onher