microvillus inclusion disease

I have been searching the net for info on microvillus inclusion disease cannot find much and certainly cant find anything about medical solutions or outcomes please help I have a 10 wk old baby who may have this very scared as to what it is?

[MeanOleRedHead66]

http://path.upmc.edu/cases/case163/dx.html

DISCUSSION:

Introduction -- Microvillus inclusion disease (MID) is an inherited disorder characterized morphologically by a defective intestinal brush border and by the presence of cytoplasmic inclusions of Microvillus membrane within enterocytes.

This entity was intially known as congenital Microvillus atrophy. Cutz et al suggested the use of the term Microvillus Inclusion Disease (MID) which is more specific and emphazises the typical ultrastructural feature of this condition (1).

Symptomatology -- The absence of microvilli in the enterocyte brush border is associated with an inability to absorb even simple nutrients and the disease presents as refractory diarrhea in the newborn period (2). The infants are chronically dependent on total parenteral nutrition and the disease has a high mortality rate.

Hope this helps.
{{{HUGZ}}}
Denise

[sazzy]

thanx for the info great help, but is there any cure?????
still worried!!!!!

[MeanOleRedHead66]

If you follow the link att he top of my message there is a complete page about this disorder.  I am so sorry you have to deal with this, I have a new grandson and I would be devastated.
If you ever need to talk, look me up ok?
***@**** -- hotmail.com or NO_1_RED_HEAD***@****

{{{HUGZ}}}
Denise

[moya1]

I have had a child with microvillus inclusion disease and am desperatley trying to get in contact with anyone who has had a child with the same thing. My baby girl of 33 days died from it and would love to talk to anyone who could share their story. I will reply to all e-mails. Thanks alot ***@****

[moya1]

I have had a child with microvillus inclusion disease and am desperatley trying to get in contact with anyone who has had a child with the same thing. My baby girl of 33 days died from it and would love to talk to anyone who could share their story. I will reply to all e-mails. Thanks alot ***@****

[moya1]

can anyone help? I have had a child die from microvillus inclusion disease and am desperatley trying to get intouch with anyone who has been through the same thing. can anyoine help? if you can please send e-mail to  ***@****

[moya1]

I saw your question on Microvillus Inclusion Disease, and I see you have a child with the disease. My baby girl died from this at 33 days and I haven't come in contact with anyone who has had or have a child with the same disease. As you might already know it is very rare and no support groups are available. I have just been to genetic counceling and I learnt nothing I already know and they couldn't help in any way too. If you could tell me how your going or if I can help in any way that would be of great importance as there's no one in the world that understands what we've been through. Please write back if you can, Sazzy

[moya1]

I saw your question on Microvillus Inclusion Disease, and I see you have a child with the disease. My baby girl died from this at 33 days and I haven't come in contact with anyone who has had or have a child with the same disease. As you might already know it is very rare and no support groups are available. I have just been to genetic counceling and I learnt nothing I already know and they couldn't help in any way too. If you could tell me how your going or if I can help in any way that would be of great importance as there's no one in the world that understands what we've been through. Please write back if you can, Sazzy