son diagnosed with eosiniphillic gastroenteritis

  my son has been diagnosed with eosiniphillic gastroenteritis. as a result of this disease, he vomits regularly, and until very recently has failed to gain weight or grow in height.  in november, he had a gj tube put in as his stomach empties very slowly. after endoscopy, eosiniphils were found in his esophagus, and are believed to be in the muscle layer of his stomach. he has been taking prednisone since last april, and is currently on a dosage of 10ml alternating with 8 mls, daily. he also takes neo-calglucon, and omiprozole. he was taking propulsid, and then switched to reglan, but these drugs did not help.food elimination due to suspected food allergies have not helped.  is ther any other drug or treatment of any kind that may help my son?  his doctor is not at all happy with the way he has responded to prednisone.  thank you for your time.  
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Dear Kim,
Gastrointestinal eosinophilic syndromesoften respond to treatment with corticosteroids (prednisone) and membrane stabilizers (Cromolyn).  If there is a definite food allergy, a restrictive diet should permit clinical improvement.  Reading your posting, I am left with the impression that the underlying diagnosis for your son is indeterminate.  Other conditions e.g. visceral myopathy can cause symptoms similar to those that you describe.  Before therapy can be effective, your doctor needs to know with certainty what he is treating.  If visceral myopathy is a possibility, then a fullthickness gastric and/or intestinal biopsy may be needed.
this information is presented for educational purposes only.  Ask specific questions to your personal physician.
HFHSM.D.-rf
*keywords: eosinophilic gastroenteritis, visceral myopathy
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