I have been experiencing a burning sensation around my liver area for "a while" that comes and goes. The best way I describe it is that funny feeling you get when you have a CT scan w/contrast except this stays with you. It is isolated to my right side and does not radiate. I do have primary sclerosing cholangitis and have labs drawn monthly. My MELD score is not high enough to be presented to committee for transplant but I know that will eventually undergo that procedure and am actually looking forward to feeling "normal". I am concerned that this burning sensation may be an infection. Spoke with my transplant coordinator and she didn't seem concerned but I don't think that she sees very many patients with my diagnosis. She suggested I ask my PCP, but all she says is "it is my liver". Well isn't that just dandy! What do I do? Need magic wand, ASAP!!
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