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Chronic Nausea

Hello,

I am a 29 year old woman that has been suffering from severe nausea for the past 3 years. I have always been a person that didn't eat much or always felt full really quickly, then when I finally went to the GI doc to see what was causing me to have sudden spurts of nausea and constant fullness, everything went down hill from there. It seems like as soon as I went to the doc to see what is wrong with me, I got worse!

I am not able to eat at all because I constantly feel nauseated. I may drink and ensure a day and some kool-aid, and maybe 2 or 3 bites of something, but other than that, I don't eat! I have had several tests ran, bloodwork, upper GI, ultrasound, scopes, cat scans, and no one can find anything wrong with me.

I am currently 5'6" and weighs 89 lbs, and no doctor is seeming to take this seriously. Everytime I do put something in my stomach, I get gas, probably because it is so empty and its filled with air.

I don't throw up, but that's because I keep myself from doing so because I am afraid of vomiting. So now I am just to the point where I just won't eat. 3 years ago, the doc said I had gastroparesis based off of a scope that he did, but when he did it last week, he said that it was better because there wasn't any food in my stomach, just bile. But that is because I don't eat.

I currently take, reglan, zofran, and prevacid, and none of them are helping me to be able to eat so I can put on some weight. The only time I feel relief is when I am sleeping or when I just wake up. Once I start moving around a little bit, I am so ill. So now, all I do is sit on the couch, watch tv, nibble on things here and there, and smoke cigarrettes.

Does anyone have any suggestions of what I have or is anyone going thru the same thing? I need help like last week!
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Avatar universal
Well I will try it out and see what happens. Hopefully it will help. I will let you know my results.
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Avatar universal
Yes, they had nausea, gastroparesis, along with other symptoms from the autonomic dysfunction.  Almost every medication my son tries, even the anti nausea medicines, say side effects could be nausea.  It's crazy.
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Avatar universal
Sure I will try it and let you know. Did the girls that you read about have the nausea too? Did the Cymbalta help with that? Because from what I read, one of the side effects from Cymbalta is nausea.
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Avatar universal
Try the Cymbalta, it is next on the list for my son.  Anti-depressents are used because they also work with the autonomic nervous system.  My son is currently on Doxepin(anti depressent) which has helped with several of his symptoms, just not the nausea.  So we are going to try the Cymbalta next.

I have read on the dysautonomia forum that a woman in Florida has 2 daughters with this and both are doing great on 120mg of Cymbalta, along with  Abilify.  I hope it works for you.  If it does, can you PM me so we can push faster for the Cymbalta.
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Avatar universal
I was prescribed Cymbalta because I was told that I may have an anxiety disorder, but I haven't taken the meds because I fear the side effects. I really wonder if I should go ahead and try it. Like I said before, I feel like I have a nervous stomach that always makes me feel sick and causes me to not want to eat.

I am just hoping that I do not have to continue on like this for the rest of my life. I can deal with having to take meds for the rest of my life if it allows me to live a normal happy life.

I was just referred to U of M which is like the Mayo Clinic of Michigan. Hopefully, these specialists will be able to figure out whats going on with me. I just don't want to continue to have a series of tests done, and then they send me home to wait again. I would rather be admited into the hospital, and let them run lots of tests until they figure out whats going on. At least thats what they do at the Mayo Clinic. We will see.

Let me know how things work out for your son. Best of luck to the both of you.
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Avatar universal
He still has the nausea, but the doctors aren't giving up(which is important).  He keeps trying new medications, we just haven't found one to work.  

Most doctors aren't real familiar with autonomic dsyfunction, so it was hard to get the diagnosis.  Once we got the diagnosis, there are such few autonomic specialists, we have to travel from St Louis to Cleveland.

My son kept being told it was anxiety or depression, even though a psychologist had cleared him.  The psychologist is the one who researched his symptoms and told us which route to go.  Even though his main symptoms are GI related, he was diagnosed by a cardiologist.  He is currently being seen by a pediatric GI is specializes in autonomic dysfunction.


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Avatar universal
Thank you Christy,

I will look into this because the nausea seems more like "nervous stomach" then just nausea.

Now that your son has been diagosed with this disorder, is he better? How is it treated? Or does he still have the nausea?
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Avatar universal
My son has daily nausea and has been diagnosed with gastroparesis.  His gastroparesis is caused from dysautonomia.  Perhaps you have more going on than just the gastroparesis.  My son has not been able to go to school for a year because the nausea is so bad and lasts most of the day.  Zofran has not helped him either.

The autonomic nervous system runs everything involuntary (digestion, heart rate, blood pressure, body temp,etc).  If the autonomic nerves don't work or are damaged they can cause you to be sick. Blood can pool in the abdomin, stomach doens't empty quickly, etc..

Look into dysautonomia or autonomic dysfunction.
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