matter in there, they should have known this. Don't trust that they are doing all they can....trust me on this. If it were me I'd get your son to MD Anderson Hosp. in Texas as they are the best with gastrointestinal problems. If you can't do this at least get a second or even third opinion. It took 4 for my son but by then it was too late. I wish you and your son all the best.