Hello,
I'm a 33 year old
femaleCondoms
Female condoms
Female sexual dysfunction with a myriad of problems. The biggest one right now seems to be constant abdominal pain on the right side, sometimes it seems that it is just below my
ribsRib cage pain and others it is closer to my waist area. This pain does not leave. Ever. And it is not relieved by anything I've tried. There are some days it is worse than others, but I can no longer sleep on my right side due to it. It is not affected by food. I had this pain before my gallbladder was removed (lap choly 10/01) and it seems to be worse now. I've been told it is from IBS but honestly I don't think it is. I also have severe abdominal cramping following my
firstFirst progesterone mc10
First progesterone mc5
First-progesterone vgs 100
First-progesterone vgs 200
First-progesterone vgs 25
First-progesterone vgs 400
First-progesterone vgs 50
First-testosterone
First-testosterone mc meal (which is sometimes just crackers or something like that) almost every single day that will usually
leadLead poisoning to several bouts of explosive diarrhea unless I take Immodium preventively every day (which doesn't always help). Very often when I am having these bouts of diarrhea I notice that as the diarrhea bathroom trips go on it becomes completely
clearClear by design
Clear eyes
Clear eyes acr
Clear eyes clr
Clear-atadine
Clear-atadine children's and watery and an intense
brightBright beginnings yellow color - and to describe how badly it burns is impossible. Then the next trip to the bathroom will consist of just mucus. It makes me want to die.
My ALT (72) and AST (36) are slightly elevated (have been for years). I also have Fatty Liver. Had an MRCP to rule out problems with the duct and it was normal. Over the past couple of years have had many various imaging scans, barium studies, colonoscopy, EGD, was tested for Mastocytosis (have dermatographism and flushing episodes) and Carcinoid Syndrome (5HIAA was 6.8 first time then neg. 2nd time), both neg. History of polyps in colon (1 was an adenoma) and polyps in stomach; gastritis, GERD, esophagitis, hiatal hernia. Also have PCOS/Stein Leventhal Syndrome with insulin resistance which is getting worse. Protonix is the latest med for acid that I'm trying, the others have either stopped working or ended up making the burning/gnawing feeling worse. One of my biopsies during the last colonoscopy showed "Ileal mucosa with congestion" and that doesn't seem to be too far away according to the diagram from where my pain is but I could be way off on that. The picture looks like it is right near where my appendix is, just above it.
Current meds are Glucophage XR 1500 mg, Protonix, a multivitamin, and last night started Flaxseed Oil due to severe dry eyes following Lasik Surgery.
I don't dispute the fact that I have IBS. Although I do predominantly have diarrhea, there are occasions where I am constipated (mostly due to taking lots of Immodium though I think). But this pain seems to be independent of the diarrhea; it's not relieved by it nor does it seem to cause it nor be caused by it. It is constant. My gastro suggested last visit that he may have to send me to a university hosp. in NYC. I'm all for it at this point; my quality of life stinks.
Can you offer ANY insight or give any direction? I'm at my wit's end.. Thanks so much in advance.
Oh I should also mention (ran out of room in my rambling original post) that I previously posted under the ID Pixie1969too but I couldn't remember my password to post under that ID again..
Our specialist told us that the MRCP is not 100% conclusive
and if all fails go the other route ERCP but it comes with
it's own complications. But it is the most accurate!
She has had Pain (more on than off) for 1 1/2 yr. now and I am convinced that she has "SOD" and it needs to be treated. Our quality of life also has been less than desirable. for she is a 37yo and we have two young girls. I have found that for the most
part all of the specialist's we've seen are rude uncaring and refuse to listen to reason. I am a fairly intelligent person that has researched this inside and out, but the unfairness is it is their choice and that is it! I feel without question that SOD is the problem, only because all other avenues have been sought. The only one left is a ERCP. Also if you notice IBS is always the lazy and easy answer. Sorry for the ranting but the frustation is getting old as you know!!!!!!!!!!!!!
Try a google search, use the words healthy awareness to access archives then one of your symptoms each one has been discussed at length
If you need more info post
look up my post on 12/4/03
My URQ pain turned out to be a bacterial co-infection common with a chronic yeast infection .
You may relate to this
Biliary pain is common symptom with Candia infections.
This extract from : Chronic Fatigue Syndrome: The Hidden Epidemic, by Jesse E. Stoff, M.D., and Charles R. Pellegrino, Ph.D. may also be relevant
The liver is one of the primary targets of Epstein-Barr Virus (EBV), Cytomegalovirus (CMV), and some other viruses associated with Chronic Fatigue Syndrome. Indeed, most people suffering from acute EBV disease (mononucleosis) or chronic EBV (CEBV) develop subacute hepatitis. The liver is also one of the major powerhouses of the body and, when it is badly infected, disruption of both the metabolism and the immune system results, followed by fatigue - a main hallmark of CEBV disease, and depression. Thus, it is essential that the liver be treated.
Don’t know if you relate to any of that , obviously testing is the first option , but that’s not so easy , it maybe that a course of antibiotics would be the way to go , I found that Trimethoprim ,Zitromax & Cipro are the most effective, penicillin is not so good. If you respond to the drug . You know what your up against .
The most important thing is to report back to this forum any progress or otherwise , the politics of medicine leave many of us struggling to treat our own illnesses , your & my story could prove vitally important to other’s
Good luck if you need any more info Post.
Please let me know more about your history - what your symptoms are and what you went through. I am so frustrated with all this... maybe you can give me some insight!
Thank you,
Tracy (SweetSaudade)
I have an 18 year old daughter who has been having similar symptoms for 2-1/2 years. She began bouts of vomiting and diarrhea when she was 16 years old. She would vomit for a couple hours straight some nights. Right after her 17th birthday she had her gull bladder removed because a hidascan (sp?) showed it was only functioning 20%. Her symptoms never improved after its removal. In fact, they got worse.
She had a colonoscopy which showed nothing, but shortly after was diagnosed w/c diff. It took almost 5 months of flagyl and vancomycin to finally get a negative. Her symptoms seemed to get better, but she still had diarrhea and stomach pain almost constantly. One of her Gliadin levels is up but not both which I understand rules out celliac disease.
She recently developed c diff again - only this time it only took 8 weeks to get a negative. She just had an endoscopy yesterday, and her GI dr took biopsies but won't get results for a few days. The endoscopy showed a lot of inflammation in her small intestine and a pin-size erosion in her stomach. She tested negative for h pylori in September.
She has been on Protonix, but it only worked for awhile. She just started Aciphex today.
In many of these comments I have seen SOD, MRCP, and ERCP mentioned. Since I don't know what these mean, could someone please enlighten me? I would also like to know how they test for yeast infection syndrome.
We are getting desperate for answers. I have a child who has been healthy her entire life until now. She is depressed, and just plain tired of being sick all the time. She missed her entire senior year of high school and had to be home-schooled because she couldn't function in school. She is now at a community college but had to take three Incompletes because of missing so much class. Luckily her instructors have been very understanding. I have to keep her in school or we'll lose her health insurance. If she has to quit and loses her insurance, we will never be able to afford the medical bills!
Thanks so much for your help! I know how frustrating this can be.
1. have attack
2. get bloodowrk done
3. have a MRCP done.
I have finally found a good relationship with a local primary physician. This is the course of action he has recommended. He also prescribed me pain med.s to take when I have attacks. I only need to take them for approx. 2 days, then I feel better. So far, my bloodwork shows normal but the MRCP shows a small stone in the bile duct. Since the stone is smaller than my bile duct and since I have already had a sphincterotomy done, I am told (by a local gastro. dr) that I live with the attacks as long as my bloodwork is normal. Apparently dr.'s will not do anything about the stones unless bloodwork shows elevated enzymes, meaning that the stones are blocking the flow of bile. Then another ERCP would be in order. It was very hard for me to accept this course of action at first. My first response was why can't they take out the stone?? Well, they have tried, but by the time they schedule me for an ERCP, the stone seems to have passed. I keep producing small stones in the bile duct and they cause intermittent pain for a couple of weeks, then pass. So this is what I live with and hope that maybe some of my information may be of help to you.
Melinda
I am still waiting for results from biopsies taken during the ERCP. Hope for the best !!
Kris
I am so glad there is something like this out there. I sometimes feel like I am going crazy. I started about 2 years ago having pain in my ULQ under my ribs feels like a knot, sometimes very severe. I like many have been to the doctors repeatedly & test all come back normal. About six weeks ago I started having nausea & pain in my stomach; it got so bad I went to the ER. They said I have acid reflux & sent me home with pepsid. 3 days later I went back thinking I was having a heart attack; they changed my medicine to protonix to see if that would help it did not. I am losing weight because I get sick when I eat, but on the down side when I don't eat my pain is worse. I have had an ultra sound, CT scan, blood work & everything is normal. I have IBS & I think sometimes think when doctors cannot find something they always revert to that. I have has IBS for years & I have never felt like this. I also get burning pains around my belly button, I have a lot of mucus in my stool & I get spasms in my lower belly (fells like a vibrating sensation). If anyone has any incite please let me know. I go for a hida scan tomorrow.
I am 36 years old. I am so glad there is something like this out there. I sometimes feel like I am going crazy. I started about 2 years ago having pain in my ULQ under my ribs feels like a knot, sometimes very severe. I like many have been to the doctors repeatedly & test all come back normal. About six weeks ago I started having nausea & pain in my stomach; it got so bad I went to the ER. They said I have acid reflux & sent me home with pepsid. 3 days later I went back thinking I was having a heart attack; they changed my medicine to protonix to see if that would help it did not. I am losing weight because I get sick when I eat, but on the down side when I don't eat my pain is worse. I have had an ultra sound, CT scan, blood work & everything is normal. I have IBS & I think sometimes think when doctors cannot find something they always revert to that. I have has IBS for years & I have never felt like this. I also get burning pains around my belly button, I have a lot of mucus in my stool & I get spasms in my lower belly (fells like a vibrating sensation). If anyone has any incite please let me know. I go for a hida scan tomorrow.
I am so glad there is something like this out there. I sometimes feel like I am going crazy. I started about 2 years ago having pain in my ULQ under my ribs feels like a knot, sometimes very severe. I like many have been to the doctors repeatedly & test all come back normal. About six weeks ago I started having nausea & pain in my stomach; it got so bad I went to the ER. They said I have acid reflux & sent me home with pepsid. 3 days later I went back thinking I was having a heart attack; they changed my medicine to protonix to see if that would help it did not. I am losing weight because I get sick when I eat, but on the down side when I don't eat my pain is worse. I have had an ultra sound, CT scan, blood work & everything is normal. I have IBS & I think sometimes think when doctors cannot find something they always revert to that. I have has IBS for years & I have never felt like this. I also get burning pains around my belly button, I have a lot of mucus in my stool & I get spasms in my lower belly (fells like a vibrating sensation). If anyone has any incite please let me know. I go for a hida scan tomorrow.
I am so glad there is something like this out there. I sometimes feel like I am going crazy. I started about 2 years ago having pain in my ULQ under my ribs feels like a knot, sometimes very severe. I like many have been to the doctors repeatedly & test all come back normal. About six weeks ago I started having nausea & pain in my stomach; it got so bad I went to the ER. They said I have acid reflux & sent me home with pepsid. 3 days later I went back thinking I was having a heart attack; they changed my medicine to protonix to see if that would help it did not. I am losing weight because I get sick when I eat, but on the down side when I don't eat my pain is worse. I have had an ultra sound, CT scan, blood work & everything is normal. I have IBS & I think sometimes think when doctors cannot find something they always revert to that. I have has IBS for years & I have never felt like this. I also get burning pains around my belly button, I have a lot of mucus in my stool & I get spasms in my lower belly (fells like a vibrating sensation). If anyone has any incite please let me know. I go for a hida scan tomorrow.